Top Tweets for #IACFSME
✨2025 #IACFSME Conference highlight: #MECFSnet colleague Quinn Barnette showcased #searchMECFS in a poster presentation. This interactive tool gives researchers a new way to explore + request more than 8,000 biospecimens.
Researchers, apply today: https://t.co/iSE200rgz1
New blog: @LBatemanMD reflects on the 2025 #IACFSME Conference—sharing about four decades of ME/CFS research, new insights on Long COVID, and reasons for hope.
🔗 https://t.co/qHrjQHKXNx
#MECFS #LongCOVID
Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), and will co-present a panel with our partners @BrainInflCollab.
Register: https://t.co/dBSAhsRgFf
Does anyone know why there’s no updates from the #IACFSME conference in New York this week? Missing #?
Related to #MECFS or #LongCovid
1 person tweeted about their poster-much appreciated
All the planning effort & $ so a few ppl can talk to each other
@PutrinoLab do u get it?
Thankful yet again for @MayoClinicGIM colleagues, this time for @Ravi_Ganesh_MD & @ryanhurt9296 who braved 90°F in suits to get my poster for #IACFSME 2023 🌟 "Underutilization of Pharmacologic Therapies in #MECFS" from our recently completed chart review.
(1) After 4.5 years of pursuing independent research-level testing that successfully yielded critical results, #IACFSME has declined to let me participate in the 2023 conference. They are unwilling to bend to let someone with CFS have a voice and share critical research evidence
Support @4Workwell's Innovation
Our founder Staci Stevens, MA received the very 1st #IACFSME Innovator Award. This great honor recognized her for developing a 2-day #CPET protocol to study various aspects of #PEM, the hallmark symptom in #MECFS
Watch here: https://t.co/7qT4SPHZyk
A page which links to reports & summaries on the recent #IACFSME conference, by @MiriamETucker, @CortJohnson, @s4me_info, @MEResearchUK & @patientled
https://t.co/FrlucN0p4Y
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID
Dr Hector Bonilla, Stanford University: “Physicians, listen to your patients because they will tell you what they have” This was one powerful moment from #IACFSME conference in July. #MedTwitter #MEcfs #LongCovid
@Rivkatweets Thanks for sharing! Prior to this report, I was not aware of ACh role in immunological (vs autonomic) vasodilation. Seems even more interesting in light of reports of Mestinon (ACh booster) efficacy recently at #iacfsme.
@r_prior Here are a few things mentioned at #IACFSME. LDN, ivabradine, fulvic acid, enhanced external counter pulsation, pyridostigmine. I know @Dysautonomia has been keeping an eye on this.
You can also find more #IACFSME conference coverage from @MiriamETucker at these links:
- https://t.co/GZsNyg1ldF
- https://t.co/ieeueddwYO
#pwME #MyalgicEncephalomyelitis #chronicIllness
🧵
"Clinicians can help people with severe ME/CFS, even unseen"
Report #3 from recent #IACFSME conference
https://t.co/mwUVVkWCMV
(Free registration required)
#SevereME #SevereMECFS #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
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More from the excellent reporter @MiriamETucker from the #IACFSME conference: Increasing Data Link ME/CFS, Long COVID, and Dysautonomia https://t.co/EYc4V0irn2
5/
Another thread with a link to another Medscape article reporting on the #IACFSME conference
https://t.co/Ri0eDKLmE5
🧵
“Increasing data link ME/#CFS, #LongCOVID, and #Dysautonomia”
https://t.co/tQkVeoT1tn
(Requires free registration)
A second article reporting on recent #IACFSME conference
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFSME #CFIDS #PwMEs #SEID #PwLC
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🧵
“Treatments Explored to Ease Post-Viral Symptoms of #ME/#CFS and #LongCOVID”
https://t.co/J7qJO4ewVU
(Free registration required)
Based on the recent #IACFSME conference
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFSME #PwME #PASC #PwLC #CFIDS #SEID
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