Top Tweets for #ItsNotIC
The latest gaslighting excuse a doctor says to this⬇️ patient to evade responsibility….”You’re not dressing appropriately for the condition!” 🙄
Recent video from Doctor B (Bundrick) @BundrickStewart
#ChronicBacterialCystitis #ChronicUTI #ItsNotIC
https://t.co/5fbzqzIPJE
“The science is right there, RIGHT THERE!”
⬆️#EmbeddedUTI
And the @AmerUrological & #Doctors IGNORE IT! Now, patients actually know more than their doctors. #CUTI #ItsNotIC
@JoanneMckinlay4 @actonclimatech1 @elizabethjpayne @KeatingRachelle Joanne, doctors' resistance/refusal to treat us baffles me. The science is right there. Right THERE. And the patient recovery stories, coinciding with pyuria resolution is not just placebo. It's treatment. Actual treatment.
Please Donate to UTI Research & Better Testing https://t.co/UfzrPiVBq6
#ChronicUTI #EmbeddedUTI #ItsNotIC
Another example of an ignorant doctor evading by putting the cause back to the patient.
The Dr should have said,
“I don’t know what’s causing your symptoms & I don’t know how to figure it out or treat you.”
#EmbeddedUTI
#WeNeedBetterTests
#ItsNotIC
The reality of a chronic UTI patient (#111)
A patient says:
“A month into my ordeal a very unsympathetic GP, having asked how much water I was drinking and received my answer of 3.5 litres daily, told me it wasn’t enough!”
The Physical & Mental Harm when -
*Doctors misdiagnose patients,
*Recommend Harmful procedures for the misdiagnosis,
*Refuse antibiotic treatment bc of the misdiagnosis!
I know - It happened to me!
#ChronicUTI #ItsNotIC #HiddenEmbeddedUTI
@ChronicUTIAus @DocSteveG @ConfusedBladder @RACGP @BladderHealthUK @cuticuk Thank goodness for patient autonomy. Doctors who misdiagnose, recommend harmful procedures and refuse abx treatment cause the greatest harm of all - physical and psychological. #chronicUti Patients are well informed and weigh up the benefits and risks of long term abxs.
Symptoms of #ChronicUTI & #IC are Indistinguishable!
If you have all the Symptoms of UTI - IT’S PROBABLY A UTI!
#ItsNotIC #EmbeddedUTI
@goldfingerprint @LindaGeddes @MailOnline @JamesMaloneLee3 @RCObsGyn @rcgp So sorry you’re in this situation. Many/most of our patient group were told for years/decades they had IC & eventually found their way to #chronicUTI diagnosis & effective treatment. Including those found to have Hunners lesions. Symptoms of IC & #chronicUTI are indistinguishable
I am almost 5 months into treatment under Professor James Malone-Lee. Best decision I have ever made in my life!
#EmbeddedUTI #ItsNotIC #ChronicUTI #GotMyLifeBack
@JamesMaloneLee3 @ChronicUTI @ChronicUTIAus @guardian @bladdersupport Fellow patients, we must respond and share widely. I’m lucky enough to be receiving antibiotic treatment under the Pro ML clinic, many are not. #chronicuti #bettertestingforuti
So many “expert” Dr’s are quick to diagnose #InterstitialCystitis W/O ever looking at a patients Fresh Undiluted Urine under a Microscope!...Keeping patients in HELL!
WAKE UP MD’s! You may not like the treatment, but it’s working!
#ChronicUTI #EmbeddedUTI #ItsNotIC
Áine 'interstitial cystitis' resolved once she was properly diagnosed and treated for endometriosis and a chronic urinary tract infection.
"I think addressing both conditions was the best decision I ever made!" (Áine , 2019)
https://t.co/AfdOfohSRH
YAAAY Paula! I just got back to the USA from London, saw @JamesMaloneLee3. We’re on our way to feeling better! 💛🥰#HiddenEmbeddedInfection #ItsNotIC
Interstitial cystitis, chronic prostatitis, and pelvic pain all can be PELVIC FLOOR DYSFUNCTION. #AUA19 plenary. Let's stop unnecessary antibiotics and learn pelvic floor strategies. @AmerUrological #pelvicfloor #urology #itsnotIC

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