Top Tweets for #bettertestingforuti
@ShonaMOliver @DrSarahJarvis Better diagnostics would end this nightmare for so many sufferers. It could even stop the nightmare before it begins. Missed UTIs can lead to a lifetime of suffering, lost careers, broken families, isolation, lost school years, etc #bettertestingforUTI
@NICEComms @MattHancock BAUS & BSU acknowledge problems with current tests for UTI. When will you do the same? #chronicUTI #bettertestingforUTI
Just look at the outdated Kass criterion- an under powered, inappropriate, prospective study on 88 pregnant women with pyelonephritis in 1956- yet we still use its inaccurate threshold of 10*5 to decide if UTI or not #darkages-medicine
“To find out what a patient has, you should rule out what she doesn’t have first-of-all”. So says doctor on @netflix #diagnosis series. Spot on. So how can doctors confidently diagnose #IC #BPS when they cannot reliably rule out infection?! #bettertestingforUTI @rcgp @NHSEngland
Thank you @BAUSurology for acknowledging the problems with urine testing & the need to improve #chronicUTI diagnosis. It's a small but important step in the right direction #bettertestingforUTI @NHSEngland @UKAMREnvoy @CMO_England
@Uro_News You can't diagnose #IC/#BPS when tests to rule out chronic infection are unreliable. You should all be pushing for #bettertestingforUTI instead of dishing out life sentences to everyone with an inflamed bladder & a negative urine test. A severe #chronicUTI looks the same as #BPS
Though the 19th-century hysteria diagnosis has long been scrapped from medical books, it lives on in the refusal to provide adequate diagnosis and pain relief for women.
https://t.co/2tjmnYRh3C
#bettertestingforUTI #chronicUTI @CMO_England @NHSEngland
@DrNighatArif @ConfusedBladder @BBCBreakfast @BBCNaga @Needham3 @DDDoran GPs are on the frontline & becoming increasingly aware of the #chronicUTI problem. You are not supported by the guidelines & it's a brave doctor who steps outside of those. We need you all to demand better from NICE, guidelines for #chronicUTI, #bettertestingforUTI
@sungardenlove @HSELive @SimonHarrisTD This is absolutely wrong. The tests have been seriously discredited & cannot be relied upon to rule out infection. Ignoring this is a health disaster & it is already happening. Failure to treat UTI devastates & threatens lives #bettertestingforUTI #weeneedtotalk #chronicUTI
Rise in persistent UTIs could be linked to antibiotics crackdown SPREAD THE WORD PLEASE RETWEET
#chronicuti #UTI #bettertestingforuti @cuticuk @ChronicUTIAus @JamesMaloneLee3 @guardian @BBCNews https://t.co/zbIqMtnKmU
@hannahdev SO grateful to you for covering this - and for doing it so thoroughly #chronicUTI #bettertestingforUTI #weeneedtotalk
Let’s get talking about #chronicUTI #bettertestingforUTI #bettertreatmentforUTI @MattHancock @CMO_England @RCPCHPresident @APPG_WH @NICEComms @RCPLondon @medicalwomenuk @BAUSurology @PHE_uk
@NICEComms @NHSEngland @cuticuk @JamesMaloneLee3 @guardian @BBCNews @HealthwatchE And thank you for the contact details, I will be in touch. Perhaps you would like to contact patients that your guidelines are failing and understand their stories? @NICEGetInvolved #chronicuti #bettertestingforuti
@cuticuk @__justagirl30 @callie_cat2005 @fogerty_kelly @pickets123 @EmmaJac70734987 @REBECCABWHELAN @BarrieEngel @Cecilie1110 @ConfusedBladder Who have i missed off the list? Invite them. Lets bring us all together. Together we are stronger in our fight with both our infections and our fight for better testing and treatment of our chronic uti #chronicuti #bettertestingforuti
Do you recognise yourself in any of our patient stories?
https://t.co/QKlK6Ua3xr
You're not alone. #chronicUTI #bettertestingforUTI
Fantastic news. I hope @NHSEngland @nhsrightcare @NICEComms @guardian @BBCNews @MailOnline read it, take note and TAKE ACTION #chronicuti #bettertestingforuti
I am sitting in a hotel room in the USA ploughing through the writing right now. I have been delayed because I had to learn some new programming languages. I saw my editor two weeks ago and she is expecting my script come December and I think that I may make that date.
@NICEComms @NHSEngland @nhsrightcare what is going to be done about this? Thousands of women are suffering and not getting the treatment they need #chronicuti #bettertestingforuti
The elephant in the room is the fact that the tests used to exclude UTI at the top of the IC algorithm do not exclude UTI. So what are you doing about it?
AMR is a different important concern. You can treat infection whilst respecting AMR. Start by rejecting unvalidated tests.
@LRH33! @JamesMaloneLee3
If U’v been diagnosed with doomed #InterstitialCystitis & you’ve Never been tested for “Embedded” UTI, you’re jumping to hopeless conclusions!
Fellow Patients, Leah ⬇️ is right! We Must respond and share widely!
#BetterTestingForUTI #EmbeddedUTI
@JamesMaloneLee3 @ChronicUTI @ChronicUTIAus @guardian @bladdersupport Fellow patients, we must respond and share widely. I’m lucky enough to be receiving antibiotic treatment under the Pro ML clinic, many are not. #chronicuti #bettertestingforuti
@icnjill @smithlemsford @ChronicUTIAus @JamesMaloneLee3 Jill, Malone-Lee’s work is not a ‘point of view’ it is scientific evidence. Will you commit to including chronic UTI diagnosis and treatment on your IC network website? Thousands of women are not getting ALL the information they need. #chronicuti #bettertestingforuti
@JamesMaloneLee3 @ChronicUTI @ChronicUTIAus @guardian @bladdersupport Fellow patients, we must respond and share widely. I’m lucky enough to be receiving antibiotic treatment under the Pro ML clinic, many are not. #chronicuti #bettertestingforuti
And this intransigence has devastating consequences for patients #chronicUTI #bettertestingforUTI @MattHancock
@JamesMaloneLee3 Our research group with @JamesMaloneLee3 have been publishing on this for the last 15 years. We have faced such hostility, comments like 'we don't believe you' despite our peer reviewed publications. These ingrained biases are difficult to break but 50 years is far too long.
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