Top Tweets for #MEICP
@swastrosarah Pathophysiology of #PENE aka #PEM is explained in #MEicp p2.
https://t.co/m3G8JDBb8D
My #OccupationalTherapist writes in report that I’m in permanent state of PENE. I’m very severe ME according to ICP. #SevereME
Hope this gives you some idea. 🤞
@JulieHughes2013 Me, too!
In the short space of 2 years, they grew from “never heard of #MyalgicEncephalomyelitis” to experts of #SevereME, #MEicc, and #MEicp.
I’m still tearful with their achievements and hope for the future.
🥇🙏💙🥰🎖️🏆
For those who was diagnosed with #MEicp, the terminology is Post Exertional Neuroimmune Exhaustion (#PENE).
Please follow the flowchart with #PENE as well.
IMHO, this is a useful tool for #OccupationalTherapist and #Physiotherapist. 🙏💙
🎯How different would your healthcare experience be if your providers understood PEM/PESE and its impact on quality of life?
We are working to make #PEM common knowledge👉https://t.co/U8EZfta4eS
#MERC #MedEdMatters #PESE #pwME #LongCOVID #MedTwitter @OpenMedF @amymooney145
@MECentraal Het is daarom ook dat de #MEICP https://t.co/vB0CB9fNB7 & https://t.co/dKfWgrl7Pv erop attenderen dat alle mogelijke bekende ziekten of tekorten eerst bij patiënten moeten worden onderzocht of die de klachten veroorzaakten
Plus daarbij #B12 op correcte wijze testen.
ME International Consensus Primer for Medical Practitioners (ICP)
#MEicp #MEICPrimer #MyalgicEncephalomyelitis #ClinicalPathway #ClinicalGuideline #Healthcare #NeglectedDisease
https://t.co/lu9eET78Pz
"Change will not come quickly just because we teach."
A good clinical guideline is a starting point of their strategy. #MEicp is the base for us. It was created with due diligence, still relevant today. It's no brainer to adopt it for #MyalgicEncephalomyelitis.
#pwME: If you want health and social services to know what their obligations are towards you, be sure to mention @DoctorsWithME's guidance on RIGHTS AND OBLIGATIONS IN #MECFS when the ME/CFS Delivery Plan in the UK is open for wider engagement. #LongCovid https://t.co/qd8yTYRp0l
I believe the result was published already. Bright and caring #research team from #NCNED at @MenziesHealth. @ThapaliyaK @SonyaGradisnik #MyalgicEncephalomyelitis #MEicc #MEICPrimer #MEicp #MRI #neuroscience #Brain
ME Research UK Current Projects - Dr Leighton Barnden is using a 7 Tesla MRI scanner to explore potential pathological changes (structural changes) in the brain and their impact on brain functions in ME/CF - https://t.co/qA32C2WEv1 #MECFS #meresearch
Because @MEAdvocatesIre values #MEicp, I will follow the development of Irish Clinical Guideline for #MyalgicEncephalomyelitis with interest.
News from the HSE re Clinical Guideline for Myalgic Encephalomyelitis (#ME) Ireland
The Chief Clinical Officer is supporting the development of a Clinical Guideline for ME & Development Group has been established to develop the Clinical Guideline
More 👇
https://t.co/qLA0stpwUd
Correct me if I’m wrong. Ataxia can be a neurological symptom or disease of its own right. It is mentioned in #MEicp that one of neurological symptoms of #MyalgicEncephalomyelitis .
#MEicp also moved to the new site. 😎
https://t.co/lu9eESQ5Nz
FYI
It seems @nhmrc's #MyalgicEncephalomyelitis and CFS webpage was updated again. Clinical Guidelines were changed to reference from the download. #MEicc is back on the page again without a link.
Here is the #MEicp link if you are looking for it.
https://t.co/EOiu6ipMQ8
@ElizaCharley @FionaPWME @FairlieHall @FranceyME @jan_nahlinke @dr_kevinlee @nhmrc @australia_call With this update, they removed #MEicp / #MEICprimer.
I’m sorry but this is a bad news for #SevereME. 😢
@jan_nahlinke @FranceyME @dr_kevinlee @nhmrc @clinexcelqld 👍
ME International Consensus Primer for Medical Practitioners (ICP)
https://t.co/EOiu6ipMQ8
#MEicc is the research focus, and #MEicp is for clinical practice.
@FranceyME @jan_nahlinke @dr_kevinlee @nhmrc 6/ My guess is that #NDIA is one of the strange non-medical people forcing the 2002 guideline. Be affirmative on your impairment with #MEicp and your lived experience. the 2002 guideline is no longer on the @NHMRC's website. Practically, it's an outdated document.
@FranceyME @jan_nahlinke @dr_kevinlee @nhmrc 5/ Take #MEicp to the medical consultation, instead of your doctor figuring out what to do with you. Have the discussion as equal humans.
If asked, there are good reasons why you MUST avoid the 2002 guideline.
@TurnItUp4ME @sashanimmo Sasha @sashanimmo is a great advocate
I wish for M.E. Australia as soon as possible a new beginning with the #MEICC & #MEICP so our M.E. friends there can get best #Health help from retrained #Doctors. Much love to all who were and are supportive.
ME International Consensus Primer for Medical Practitioners (ICP) #MEicp #MEICPrimer
https://t.co/EOiu6iGPS8
@renudhinakaran @medischcontact @Begrepenklacht Also the Dutch #MEICP copy @MEcvsVereniging
Or see for more info about ME https://t.co/vB0CB9fNB7 and https://t.co/dKfWgrl7Pv
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