Top Tweets for #PostInfectiousIllness
🔴 Long COVID did not appear out of nowhere.
For more than a century, medicine has described people who did not fully recover after infections.
Different names.
Different pathogens.
Different eras.
But often the same pattern:
infection
→ partial recovery
→ persistent fatigue, pain, cognitive symptoms, sleep disruption, dysautonomia, gut symptoms or inflammatory disease
Long COVID is new in scale.
But post-infectious illness is not new.
(1/62) 🧵
The grief with chronic illness is weird
because no one died.
But your old life did.
And people expect you to talk about that gently.
Nous avons appris que l'#EM, l'#encéphalomyélitemyalgique avait fait de nouvelles victimes :
Lilian Hein (12.12.1956 - 20.11.2023) et Gabriel Wirnspreger (6.10.1997 - 23.11.2023).
De tout coeur avec leurs proches.
#pwME #MECFS #severeME #PostInfectiousIllness #jedisEM
Nous attendons avec impatience 1 collaboration fructueuse avec l'EFNA & l'OMS pour réduire le fardeau de l'#EMSFC en Europe et au-delà, & pour augmenter l'allocation de ressources à des initiatives telles que le «Groupe européen de recherche sur l'EM» #PostInfectiousIllness
5/5
Ces millions d'oubliés sont symbolisés par les paires de chaussures et les pancartes
#encéphalomyélitemyalgique #EM #pwME #MECFS #postinfectiousillness #chronicillness #handicap #santé #apresJ20 #CovidLong #Rennes #Rennesmaville #rennescity #solidarite #severeME #verysevereME
3/7
To our severe and very severe ME community - we see you today & every day.
#severeMEday #chronicillness #disabilityawareness #MillionsMissing #MECFS #StillSickStillFighting #PostInfectiousIllness #MedEdMatters #ResearchMatters
#LongCovidAwarenessDay
I'm now one of the #MillionsMissing.
I'm #StillSickStillFighting for recognition, research and care for people with #PostInfectiousIllness.
For people with #LongCovid, #MECFS and our many comorbidities.
#pwLC #pwME #StrongerTogether #NEISVoid
#LongCovidAwarenessDay
I live with #LongCovid, #MyalgicEncephalomyelitis & #POTS, all lifelong chronic illnesses.
I advocate for better research & care for all people with #PostInfectiousIllness.
So we may one day get out of our beds & back the lives we so desperately miss.
#LongCovidAwarenessDay we need research leading to effective & safe treatments. LC studies should take in account research on #MEcfs #POTS #MCAS etc... #PostInfectiousIllness is not new. Without treatment more decades will be lost. Let's find a way together #MEAwarenessHour
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