Top Tweets for #Rareconnect
#Rareconnect ofrece un espacio online donde compartir información y conectar con personas afectadas de diferentes enfermedades raras. En el siguiente enlace puedes buscar tu comunidad para unirte a las discusiones
https://t.co/evcrp8mwoA
#EURORDIS
Elif Öz, a 4th year student of @acibademuniv Molecular Biology and Genetics and who is also the vice president of @acunadir19 , translated the website of RareConnect into Turkish.🌟
@rareconnect #RareConnect
Nadir hastalığa sahip bireylerin küresel olarak birbirleriyle bağlantı kurabileceği bir platform olan RareConnect, @acibadem_unv MBG 4. sınıf öğrencilerinden, aynı zamanda @acunadir19 başkan yardı.nı yürüten Elif Öz tarafından Türkçeye çevrildi.🧬✨ #rareconnect @RareConnect
EURORDIS - Nadir Hastalıklar Avrupa ve Care4Rare Kanada ortaklığında geliştirilen, nadir hastalıklara sahip bireyler ve yakınlarına özgü sosyal platform RareConnect artık Türkçe olarak da mevcut 🎉 @RareConnect #RareConnect @NadirHasAg
First week of swim practice completed since surgery to remove some hardware in the right leg. Can’t use her legs while swimming for 3 more weeks but she’s glad to be back in the water! #fibrousdysplasia
#fdysplasia
#rareconnect
#fdssuk
#rarediseases
#fdwarriors
#usaswimming
How rare is rare? A child with a polyostotic bone disease + a competitive swimmer. No other like individuals to which she can relate. However, a huge shoutout to a coach at USA Swimming for helpful guidance. #fdysplasia #usaswimming
#rareconnect
#fdssuk #RareDisease
#fdwarriors
Yesterday, I completed a translation task ("Welcome message to patients" - 195 words) for @eurordis, as a volunteer with @TranslatorsWB
#LanguageMatters #RareDiseases #GeneticDiseases #RareConnect #SocialMedia #OnlineCommunities
@RareConnect
https://t.co/QZHR4nw6iG
The ABDA is proud to support https://t.co/OVMwqTgZzg. If you are looking for extra support and to connect with others battling Behcets Disease join the Rare Connect Community. 💙 #behcetsawarenessmonth #abda #rareconnect #behcets #behcetsdisease #chronicillness #raredisease
Join #RareConnect Trimethylaminuria Community https://t.co/90E35rlXF0 #eurordis #nord #raredisease #rarediseaseday
Six common myths of genetic disorders, thanks @JeansforGenes #RareRevolutionM #CareAboutRare #Unique_Charity #SWAN_UK #M4RareDiseases #RareAdvocates #RareConnect #RareShareOrg #NHSgms
#SpecialNeedsParenting https://t.co/1ei90PU2B2
This is where amazing charities such as @Unique_Charity come in. Medics should engage with and embrace the patient-professional gap such organisations help to bridge. #RareDiseaseDay #RareRevolutionM #CareAboutRare #SWAN_UK #M4RareDiseases #RareAdvocates #RareConnect #NHSgms
"Patients MUST be at the centre of everything we do, we cannot have desperate parents trawling facebook looking for researchers who might know something about their childs rare disease" Baroness Nicola Blackwood at #fog2020 #genomicsfest #genomics
@RareConnect and now @Share4Rare are two amazing tools in linking #RareDiseas families and also bringing them in touch with #Scientists
#Health #Research #Diagnosis #Cures #OrphanDisorders #Genetics #Undiagnosed #RareConnect #Share4Rare #SpaniosGr
Social Media is Linking #RareDisease Families, Bringing Them in Touch with Scientists...
..and Propelling Rare Genetic Research Forward https://t.co/wUQxz6l611 #ITRTG #IoT #SciComm #technology #MedEd #BigData #DataScience #MedTwitter #genomics #RareDiseases #PrecisionMedicine
#Muestra lo especial que eres #ALIANZA MEXICANA DE VON HIPPEL LINDAU #FEMEXER #ALIBER #EURODIS #RARECONNECT #TODOSUNIDOS
#30 DE MARZO 3er ENCUENTRO DE FAMILIAS CON VHL EN MEXICO
We have created a new support group on the @RareConnect platform for those with recurrent viral meningitis (Mollaret's). Go check it out and tell us what you think!
https://t.co/NP6BDthuR2
#RecurrentMeningitis #MollaretsMeningitis #RareConnect
#RareConnect do a wonderful job and we are proud to have an #AcuteNecrotizingEncephalopathy community with them. #ShareYourRare #ANEawareness #patientstories https://t.co/mXlpdI8Efr
#RareDisease patient stories are important, not only to connect with others but to raise awareness of this global health issue.
Visit your @RareConnect community and share your story today! https://t.co/g9KNXBvVUM
#RARECONNECT: A Marcos el diagnóstico de ataxia espinocerebelosa no le frena seguir con su pasión, el ciclismo
#biciterapia #enfermedadesraras @eurordis
https://t.co/kx4Jf0Pevh
@orionbuske @raredisorders Eurordis is proud to team up with Kim Boycot @CHEOhospital + Mike Brukno & @orionbuske at @SickKidsNews sickkids for new #RareConnect
Marta Campabadal present the new platform + new services + new languages + new communities + new look & feel of #rareconnect at #Eurordis
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