Top Tweets for #compassionateUse
📣Publicación borradores @IHIEurope
🗓️Apertura ene/27
🔹IHI Call 14 (single)-> 4 topics #NAMs #PersonalisedHealthTech #PatientCare #ATMPs
🔹IHI Call 15 (two-stage)->2 topics #CompassionateUse, #SurrogateEndpoints
🔗https://t.co/yhh7pyMe1P
@HorizonteEuropa
NeOnc's Most Challenging Test Yet: Compassionate-Use Update Puts NEO100's Potential in Focus
Full Story: https://t.co/MlsZfFhzDN
#wstprnews $NTHI #cancer #CompassionateUse #NTHI #Oncology #UAE #Advertising #Publishing #NASDAQ #Investing
#OCU400 EAP - should not deter, inhibit, or preclude #Ocugen from treating patients, it should ensure they #TreatEveryone
Given that some patients were not followed up following initial trials & EAP communications.
#RightToTry #CompassionateUse #ExpandedAccessProgram
$OCGN
There’s nefarious people working inside #FDA who prevent/block life saving therapeutics being elevated to decision makers/approval.
Protecting #BigPharma 💰💰💰
The #RightToTry #CompassionateUse was/is @POTUS @realDonaldTrump @DrMakaryFDA @VPrasadMDMPH @SecKennedy
$OCGN $IBRX
Heartbreaking & urgent: Dr. Patrick Soon-Shiong reveals two children—an 11-year-old and a 13-year-old with pancreatic cancer—flew to his LA clinic for help after chemo failed. Both passed away while FDA bureaucracy blocked access to Anktiva, a treatment that tripled lung cancer survival from 7 to 21 months in trials.
He's filed 150+ compassionate use requests, received 13,000 desperate patient inquiries, and has White House-level support—yet red tape keeps this life-extending option from Americans, even as Saudi Arabia approved it.
This is life vs. paperwork. Soon-Shiong's relentless fight to get Anktiva to more people deserves real attention.
What do you think about streamlining compassionate access for terminal patients when data shows dramatic survival gains? Thoughts below.
Interested in #CompassionateUse and #PreapprovalAccess to medicines under #FDA review?
Attend #CUPACon 2026, hosted by @nyugrossman, this week Jan 23-24 at @BU_Law in Boston and remotely. RSVP: https://t.co/0bM1YCYoNT
@JoannaGagisNJ @NJSpotlightNews My daughters, Isla & Siena, are fighting a rare disease (FSHD). Treatment exists, but the company refuses them access through compassionate use. more irreversible loss. 💔help us. Their future depends on it.
#FSHD #RareDisease #CompassionateUse
@DrOzCMS @DrOzCMS @US_FDA @AvidityBio
My little girls, Isla & Siena, are losing their ability to walk, run & play because of #FSHD. 💔 There IS hope — AOC 1020 — but they are being denied access. No child should be refused a fighting chance at life. Please stand with us. #CompassionateUse
.@TamaraCTamas1 has built a career around one mission: to connect patients with safe, science-backed regenerative treatments that have the potential to transform lives.
Find her contact info here: https://t.co/N8dwy7bY8n
#transhumanism #regenerativeMedicine #CompassionateUse
@DocumentingATX Cartels and big pharma are winning. #TXlegsucks #forthebribes #notforthepeople #compassionateuse #medical
What if your life depended on a treatment that existed—but you couldn’t access it?
That’s why we created wondrlink — to help patients find investigational options when standard treatments run out.
https://t.co/tMmWAb3NTU
#Cancer #Hope #PatientAccess #CompassionateUse
@OncoAlert #SABCS24 #bcsm #OncTwitter
Finally, if you have Qs about #compassionateuse of investigational agents (not only cancer) because you can’t access #clinicaltrials, the Regan-Udall Expanded Access Navigator is a huge help! Check it out!
https://t.co/ItWXv26ltA
@OncoAlert
Pre-Approval Access to Novel Compounds is an Urgent Priority to Treat People with Strains of #Tuberculosis that are Resistant to Bedaquiline, Linezolid, Clofazimine, and/or the Nitroimidazoles
#CompassionateUse
#Unionconf
https://t.co/SOtAaPJzdd
If you have been a client of Sarrita Adams/Railroad Children, please DM me. You have been defrauded. I have a lawyer and LE contacts ready to help. #California #bayarea #sanfran #Oakland #childhoodillness #chronicillness #terminalillness #FDA #noveltreatment #compassionateuse
We got 71% in Florida for #MMJ partially because folks who believe in #compassionateuse were persuaded to vote in favor of it by at least 12-14%, that’s a whole different ballgame than recreational-those same folks that voted in medical WILL NOT NECESSARILY VOTE YES ON 3.
#NOon3
Are you a #patient🙋♂️, #physician👩⚕️, or member of #biopharma🧑🔬 wanting to learn more about #ExpandedAccess/#CompassionateUse? Save 5/15 on your calendar—more details on this FREE webinar coming soon!
8/ 🛡️ Cannabis & Cancer 🛡️
Chapter 15 opens a dialogue on treating cancer and its symptoms with cannabis. Hear about compassionate care options.
#CancerCare #CompassionateUse #CancerCannabis #CannabisForCancer
CUPA Con https://t.co/CXYmsSYLkV will cover everything Expanded Access (#compassionateuse) including for #psychedelics, xenotransplanted organs, #genetherapies, #celltherapies, & blood products. Keynote from #FDA Commissioner Califf! For #patients & everyone! Register soon!
@VanMetje Echt wat gaaf zeg! @ZiNLActueel en @ZNnieuws lezen jullie ff mee? Zoveel verschil kan dit medicijn maken. #compassionateUse
"For those facing their mortality, #psychedelics offer a new ray of hope and healing." Discover the evolving landscape of #psychedelic treatments for the terminally ill.
#PsychedelicTherapy #EndofLifeCare #CompassionateUse #TerminallyIll
https://t.co/wg7Gvfn9cm
🙌 Congratulations to both @TBPolak, our Director of Real-World Data and Jasmin Schelhaas, Real World Data Associate, on the publication of their newest research paper in Drugs journal 🎉
👉 Check out the research here: https://t.co/1J9iJSF1sC
#RWD #EAP #compassionateuse #data
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