Top Tweets for #dbgap
Tired of the paperwork to get access to human genomic data from #dbGAP and many other consortia (e.g., #NeMO, #PsychENCODE, #Simons, etc)? I certainly am!
I have a proposal - why we cannot learn from open source licenses and come up with several standard versions of patient consent for research use of data. Labs generating data will work with patients to SELECT proper versions. Then @NIH can establish a process to approve which institutes/PIs have the “certificates” to access ALL data with particular levels of consent.
I guess that will help us avoid months of paperwork to get access to individual datasets?
#HumanGenomicDataSharing
#PatientConsent
#Privacy
NCBI is excited to announce that the #dbGaP beta homepage is now the default design! The classic site will no longer be available after July 30. Learn more about what's new: https://t.co/pKZ71Agvcl
#LongCOVID researchers rejoice!
Data from 92k patient visits from @NIH #RECOVER study now available via #dbGap.
https://t.co/YkNWK66kpt
Does anyone have any tips or experience getting data from dbGaP???
We requested access to a dataset on July 6, and our request has been sat with the Data Access Committee since then, with no response at all to emails asking for an update...
#dbgap #SingleCell #transcriptomics
Check out our latest video! Learn more about the Database of Genotypes and Phenotypes #dbgap, which archives and distributes data and results from studies investigating genotype and phenotype interaction in Humans. Watch here: https://t.co/KxjEDodeV3
New! #dbGaP Subject Sample Telemetry Reports are now available to provide you with more details about your dbGaP submissions. Learn more: https://t.co/kDZKw6u7hT
Feeling frustrated when trying to put together your dbGaP data submission? @StatGenDan and I are excited to announce our new R package, #dbGaPCheckup, which we designed to help YOU with this complex process! 🧵(1/n) #Rstats #Genetics #dbGaP #DataQC #DataSharing #OpenScience
Come check @NCIHTAN on the https://t.co/BRBtDWMUEl! Go to Cancer Data Service Explorer and look for phs002371! Ensure you have #dbgap permission to access controlled data or explore the open access images! Comment below or email us at [email protected] if you have questions!
Nature Paper: Common Data Elements were used to link phenotypic data & identify 521 comparable studies in #dbGaP using @PhenXToolkit, enables cross-study analysis & reduces the burden of retrospective data harmonization https://t.co/g8NSeTLL72
#DCINetwork #CDE #DataLinkage #RWE
As a result of their work in the #BioHackEU21 around data in repositories like @EGAarchive and #dbGaP, they propose a number of recommendations compiled in the FAIR-X principles for sex and gender data annotation.
📺 Watch it live: https://t.co/Ze7qXJphVn
#dbGaP submitters, join us on November 3, 2021 at 12PM US eastern time to learn about improvements to dbGaP submissions and the GaPTools validation tool! https://t.co/iiYCOmq8Rl
AGRN implicated as locus for #Myasthenia Gravis by #GWAS in @NIH #dbGAP & @uk_biobank
New Research by @apostolia_t @konstantinospo7: https://t.co/RErxu1H4Wp
@LifeAtPurdue @Aristoteleio @ConquerMG @myastheniakc @Telethon_France @MyastheniaOrg @myasthenic @myastheniaRM
Also, a bank that has amazing ways to prevent you from withdrawal, and demands you use it in only one way - they actually want you to burn the notes you did not use - I’m speaking about #dbGAP #DataUsageDeterrant
"The number of people that deposit data greatly exceeds the number of people that withdraw data. It's kind of like a bank, where everyone is taught how to deposit money. No one's been taught how to withdraw money."
- @atulbutte (1/4)
Every January my enthusiastic return to work is somewhat ablated by all the #dbgap project renewal requests. Losing hours wrestling with the online system seems to kick-off my January blues!
Found this a bit like chutes & ladders for genomics https://t.co/jUhXuUU7gA The #dbGaP submission process
The EGA has hosted today a talk about #dbGaP data and data processing by @MichaelFeolo. Thank you, Mike! It was such a pleasure! @CRGenomica @NCBI @the_prbb
Researchers and clinicians: get to know GRAF and GRAF-pop in the latest blog post on NCBI Insights. https://t.co/E4JRHxd7gm
GRAF is a downloadable C++ application you can use on your large genomic datasets to find duplicates and closely related samples. #dbGaP #bioinformatics
⚕️ Are you looking for #Testicular #Cancer #Research #Data?
👉🏽 Discover @theNCI’s available #data sets in #dbGaP about #TesticularCancer
🖥️https://t.co/id4WCDAXda
@HubBucket @HubDataScience @HubAnalytics1 @HubAnalysis1
@HubReviewJR @HubDispatch @NCIDataSci #Medical #Research
The #GA4GH2018 @phenopack is a interchange format that sort of sits in between source data formats such as #FHIR and #CDISC on the one hand and databases such as #EGA #dbGaP etc. on the other hand, and is more lightweight designed than e.g. @openEHR or @OHDSI or @i2b2tranSMART.
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