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π» Share Like RT posts during #MEAwarenessHour in 10 hours timeπ»
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Talking all things #MyalgicEncephalomyelitis
Great thread from @ThereForME_UK interviewing new Chair #ForwardME
Carolyn
https://t.co/ZXIJMqOdnn
Poster Credit: @AertbyLisa π
π Our #ThereForME blog is back from hiatus!
In today's post, @KarenLHargrave interviews Carolyn Leary, the new chair of Forward ME (a coordinating body for ME orgs).
Carolyn explains how she got into ME advocacy, what you need to know about Forward ME and her future plans.
Can #pwME be assured that the M.E orgs will stand up to the Government on behalf of #pwME who they represent in the face of these cruel, inhumane threatsβ
@MEAssociation @actionforme @MEActNetUK #ForwardME @DoctorsWithME
#MEcfs #LongCovid
https://t.co/7ud0DQ55ts
@Emshoscot @tiredguineapig This is a good summery. They've really pulled their socks up the the last few years and have been involved in all the good stuff happening: @PSPforMECFS , @DecodeMEstudy #ForwardME group, @WorldMEAlliance , and the UK gov plan thingy working groups (brain fog - words gone)
Side project showcase - check out ForwardMe - ForwardMe delivers happiness worldwide - https://t.co/dSRgIdhi6Q @sideprojectors #sideproject #makers #entrepreneur #forwardme
New #Site on our #Gallery : ForwardMe @forwardmeus
by Volkan Haslak
https://t.co/qQJl11k0HW
#shipping #shippingservice #USshipping #Shipanywhere #Ship #ShipInternationally #ShopUSA #USAStores #Shipdirectly #USonlinestores #onlinestores #ForwardMe
Forward ME Group Steering Group minutes 10th August 2022
Please read the minutes via the link below:
https://t.co/oZ5943wn5j
#pwME #MECFS #MyalgicE #ForwardME
Forward ME Meeting Minutes 11.05.22
Read the Forward ME Minutes online here:
https://t.co/iwwBsIn0fL
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #ForwardME #MEAssociation
@BinitaKane @tymestrust I would reach out to #ForwardME and MP Carol Monaghan who is a vice chair alongside Dr William Weir who is an #ME specialist affiliated with @TymesTrust. I would also encourage the family 2 reach out 2 the local #MEAction group in their constituent area if there is one activeππ
@pics_primary 4/4: Thank you to all people with ME who have highlighted any outdated advice being given to people with ME via clinic websites.
#pwME #MECFS #MyalgicE #NICEguideline #ForwardME #HealthcareProfessionals #MedTwitter
@MEAssociation @actionforme @MEActNetUK
@DoctorsWithME @tymestrust @PhysiosForME
#ForwardME
Could you all give #pwME your feedback & comments on the excellent plan @ValeriEliotSmit lays out here please.
@carolbinks Thankyou #ForwardME.
#PwME are being discriminated against by every measure & it must end.
PLEASE Contact your MP re the #NICE Guideline delay?
#ME is a debilitating condition which can impact quality of life, greater than other illnesses like MS & Cancer
Approx 265000 people in the UK have ME including children&young people
#ME #ForwardME @tymestrust @MEAssociation
1/3 Contact your MP about the NICE Guideline delay
The ME Association is a member of the steering group at Forward-ME.
In the last week, we have been considering ways we can respond to the delay to publish the NICE guideline for ME/CFS.
#ForwardME a group of #ME #MECFS charities, professional bodies & services have released the following statement expressing their concern 3/
"No minority party should be able to undermine the careful scientific consensus established by the NICE committee."
Read our full joint Forward ME response to #MECFS guideline delay at https://t.co/9iJzYQ98iw
We're working together to get this out as widely as possible.
Statement: Countess of Mar on Doctors with M.E.
"In the 25 years that I have been working with people with ME the one wish that unites them all is that they should be listened to and believed..."
#ForwardME #News #DwMe #MECFS
https://t.co/2AY0Kc9q54
@MEFoggyDog This is a really well considered podcast, thanks for using your precious energy to share your thoughts. @actionforme @MEAssociation @MEActNetUK #ForwardME please have a listen.
π΄UPDATE: Read our letter with #ForwardME to @thesundaytimes about the harmful & unsubstantiated opinions of psychiatrist Jeremy Devine in its 'Why is Britain now the capital of #LongCovid?' article.
https://t.co/v4L9IMpB1e
@clanman3 @MEAssociation @MEActNetUK @Invest_in_ME @tymestrust Several M.E. charities/groups are part of #ForwardME. It's met once under its new Chair & is working out priorities. We will ensure all your views are represented in this. We agree collaboration to raise public awareness is critical, please see this blog: https://t.co/9oJz2OQZJ9
2/2 After many years of dedicated service, the Countess of Mar is stepping down and will be replaced by Andrew Morris as Chair (see biography, statement and minutes below) with immediate effect.
https://t.co/813HcQ3Uqi
#ForwardME #pwME #MECFS
Forward ME Headlines
Margaret Mar decides that the time has come to step aside from the chairmanship of the Group.
Read more here: https://t.co/ONhW90abqc
#pwME #MECFS #ForwardME
@Huisarts_Vink @jessikafe @Kdcfsme @MECFSNews @Healthy_Control @_Lucibee @davidtuller1 @AnilvanderZee @newhealthpsych @StenHelmfrid @TomKindlon @keithgeraghty @HRA_Latest @matt_westmore Whichever way the NICE decision goes on 21st April I think we may see more people giving accounts of recovery with GET and CBT.
Has #ForwardME or any other major group ever argued they are harmful for everyone?
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