Top Tweets for #meactionnetwork
アメリカの団体 #MEActionNetwork は、 ME/CFS、Long COVID、その他の障害者コミュニティとして、5月12日午後12時～2時（米国東部時間）ワシントンDCの国会議事堂に隣接するアッパー・セネート・パークで抗議活動を行い、議会にSOSを送ります。その様子はライブ中継するのでどなたでも視聴できます。
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - 2 weeks from today! Join us in DC & online!
We will be sounding an SOS at the nation’s capitol and across social media!
All you need to know can be found here:
https://t.co/W9yQLC78wp
#PwME #MECFS
Join Jaime Seltzer, Scientific Director at MEAction, on May 12th for #MillionsMissing! Find all the details to show up in DC or online here: https://t.co/HlMthAWCs4
@exceedhergrasp1
#DisabilitySOS #SaveOurScience #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis
To my fellow CPPs, Zebras, and Spoonies:
Please join me in supporting the #MEActionNetwork by signing and sharing their petition to demand that the NIH fund the ME/CSF Roadmap. This community is ridiculously undersupported, underfunded, and underresearched and needs our support!
WOW! Since we launched our National Institutes of Health (NIH) letter demanding they fund the ME/CFS Roadmap, over 3000 of you have signed on to show your support!
US signers: https://t.co/nENmHlUbJJ
International signers: https://t.co/36oGi3LeMm
#FundMERoadmap #pwME
without gaslighting and causing further trauma. What would you want clinicians to know? What has been helpful for you and what has NOT been helpful? Thank you for your input. #MECFS #LongCOVID #MEActionNetwork
@Imani_Barbarin They are brutal to you. This is brutal. Have you watched the #MEActionNetwork post demonstration podcast? I can't find it right now so to link. There are women of color educating me and so so so smart about organized efforts. All in podcast are all so polished and funded as well.
#MEAwarenessHour
Become a part of @movie_about_ME!
Tell your story, work on the crew, become a sponsor or producer!
Simply complete the contact form in the link below.
https://t.co/ZLo4rqErof
#MECFS #MillionsMissing #Covid19 #LongCovid #MEActionNetwork #movieaboutME
Become a part of the movie!
Tell your story, work on the crew, become a sponsor.
Simply complete the contact form in the link below.
https://t.co/rgtxtlNFuo
#MECFS #ChronicFatigue #MillionsMissing #Covid19 #LongCovid #MEAction #MEActionNetwork #movieaboutME #pwME
Researchers predict 10-12% of all COVID-19 patients will develop M.E.
A group of us have come together to make an investigative documentary seeking the elusive answers about #MECFS and it’s connection to #LongCovid.
Join us on our journey for answers.
https://t.co/wSk27NyYbM
Become a part of the movie!
Tell your story, work on the crew, become a sponsor.
Simply complete the contact form in the link below.
Hastags...
#MECFS #ChronicFatigue #MillionsMissing #Covid19 #LongCovid #MEAction #MEActionNetwork #movieaboutME
https://t.co/q3NlUzX1Co
"I am not alone. You are not alone. We are not alone. But it hasn't always been this way." We are excited & grateful to have Michelle Pinedo as our #MEAction Board treasurer. Michelle spoke at our 2021 #MillionsMissing Global Event & we know it resonates with so many of us. #pwME
Can anyone tell me if there is a local #MEActionNetwork or similar in Spain. Any options? Also help fundraising for #openmedicinefoundation. #MECFS #pwME #NEISvoid #activismSpain #MillionsMissing
New online survey researching into Chronic Fatigue Syndrome/Myalgic Encephalomyelitis is available to complete from the link below: https://t.co/xtsjZrZejb Thank you to #MEActionNetwork @MEActNet for spreading the word about this survey! #CFS #ME #ChronicFatigueSyndrome
@MEActNet A wonderful initiative. Thank you #MeActionNetwork!
I've written 'Higher Maintenance' in 2016, a simple memoir/self-helpful story for patients, family and friends.
Please visit: https://t.co/Yl9ntEetyr and learn how to become a #DragonTamer ;)
#ME RESEARCH SUMMARY 2019 Revised and compiled by the extraordinary @exceedhergrasp1 of #MEActionNetwork Please #PwME and carers share widely w/ MDs and support @MEActNet w/ a donation, if you can https://t.co/hB2rYb6Yxg
#MEactionNetwork verzorgt vandaag live tweets van de Accelerating Research on ME/CFS conferentie. Zijn jullie er allemaal klaar voor?
Accelerating Research on ME/CFS Meeting at the NIH begins in 30 minutes! The room is at capacity but you can watch on webcast! We will be live-tweeting as well!
#MECFSatNIH19 #pwME #MyalgicE #SciComm #research
Day One: https://t.co/ha1d0Q0h3r
Day Two: https://t.co/d7Dtg38QLO
#MEActionNetwork roept de achterban op om te reageren in een actie om het Congress prioriteit te laten geven aan financiering van research van #ME. Er is 9.9 miljoen nodig om onderzoeksprogramma's uit voeren, artsen op te leiden & lokale overheden beter te laten functioneren.
US Urgent Call to Action! Congressmembers @RepZoeLofgren & @RepAnnaEshoo, are asking for support from fellow House Members for 2 requests that can increase funding for ME! Read all about it & take action today!
#CongressFight4ME #pwME
https://t.co/BiFRUid7M6
A truly outstanding letter. With good advice about how to respond ... or not respond ...to the recent Reuter’s articles #MEActionNetwork have your back.
Fighting for rigorous science & accurate reporting! We encourage the ME Community to share the research focused on epidemiology, etiology, & treatment of ME by all-star scientific teams. See article 4 examples. Use the hashtag #ShareGoodScience!
#pwME
https://t.co/JX1AoBg6k4
On #Afflicted on @netflix
“As for how to respond, we have no one answer”
#MEActionNetwork reflections and some suggestions on the Facebook page👇
#pwme
#ME
#chronicillness
#Fibromyalgia
https://t.co/aOWu4Naj4S
On ME Awareness Day we are missing our friend #MillionsMissing #MEActionNetwork #MillionsMissingGloucester
Today is the #MillionsMissing day of global action, an #MEAwarenessDay sponsored by #MEActionNetwork. It's also #FibromyalgiaAwarenessDay and a day of awareness for other conditions. I just want to send love to everyone participating and to say: I see you.
Change is coming.
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