Top Tweets for #rarederm
Thank you to everyone who took part in #RareDiseaseDay 2026 💜
By sharing your story, posting, or standing in solidarity, you helped break stigma and amplify the #MySkinisRare Campaign & our #RareDERM voice.
More people are learning & supporting because of you!
On #RareDiseaseDay, we stand with 6.8M people living with 800+ rare skin diseases. Many face delayed diagnosis & limited care.
Join our #MySkinIsRare campaign to raise awareness, amplify #RareDERM voices & drive change worldwide.
– Jennifer Austin, GlobalSkin CEO
#GlobalSkin
🌍 On #RareDiseaseDay 2026, we raise awareness and honor those living with rare dermatological diseases.
In 2025, the World Health Assembly recognized skin diseases as a global public health priority.
Share your story: https://t.co/UD7JZ0ulwF
#RareDERM #MySkinIsRare
Mi piel es rara.
Y eso no la hace menos valiosa.
Las enfermedades dermatológicas poco frecuentes, como algunas formas graves de psoriasis, requieren información, empatía y atención especializada.
#EnfermedadesRaras #RareDiseaseDay #RareDERM #Fundapso
💜 This #RareDiseaseDay (Feb 28, 2026), share your story of living with a rare skin condition. Your experience helps raise awareness, build understanding, and support others who may feel alone.
Submit: https://t.co/UD7JZ0ulwF
Share & repost!
#RareDerm #MySkinIsRare
You don’t need a rare skin disease to care or raise awareness. 💜 This #RareDiseaseDay, your support matters. Share posts, learn about rare skin conditions, or join local events. Together we strengthen #RareDERM 🤝 🔗 https://t.co/UD7JZ0ulwF
💜 This #RareDiseaseDay (Feb 28, 2026), we amplify voices of people with rare skin diseases. Global milestone: the WHA named skin diseases a public health priority - calling for better diagnosis, treatment & less stigma. Share your story: https://t.co/UD7JZ0ulwF #RareDERM
Jennifer Austin sharing some takeaways on the Atopic Eczema Community Forum.
#GSChampion2025 #GlobalSkin #RareDerm #AtopicEczema #Conference #Dermatology #Prague
Jennifer Austin sharing some updates on the WHA Skin Health Resolution and Rare Disease Resolution.
#GSChampion2025 #GlobalSkin #RareDerm #AtopicEczema #Conference #Dermatology #Prague
Tonya Winders, President of Global Allergy & Airways Patient Platform, sharing some works for atopic eczema and urticaria.
#GSChampion2025 #GlobalSkin #RareDerm #AtopicEczema #Conference #Dermatology #Prague
Tammi Shipowick Hoyt and Visnja Zaborski Breton, Program Manager and Director of Public Affairs of GlobalSkin, sharing some updates and resources for atopic eczema.
#GSChampion2025 #GlobalSkin #RareDerm #AtopicEczema #Conference #Dermatology #Prague
We are hosting the #RareDERM Forum in Prague led by Led by Matt Bolz-Johnson — uniting patient leaders representing Rare Dermatological Diseases to identify gaps & opportunities, set advocacy priorities, and emphasize mental health support. #GSChampion2025 #GlobalSkin
🌍 Today, on #RareDiseaseDay 2025, we stand together to raise awareness, share stories, support research & education and honor those living with rare dermatological diseases. Every story is a testament to resilience, courage, and hope. 💜 https://t.co/43wA7MaPYg
#RareDERM
Maria souffre du #lupus, diagnostiqué début 2024 après 4 ans d'errance médicale. Nous appelons à un accès aux diagnostics, traitements, soins et opportunités pour tous. #RareDERM #MySkinIsRare #Lupus @LutteLupus #RareDisease
Savez-vous que 300millions de personnes vivent avec une maladie rare dans le Monde, cela équivaut a la population du 3eme plus grand pays du Monde #RareDiseaseDay #RareDERM #MySkinIsRare
Hoy es el #DíaDeLasEnfermedadesRaras. Como miembro de @IADPO Fundapso lucha por un mundo donde las personas que viven con enfermedades dermatológicas raras lleven vidas saludables y plenas. #RareDERM #MySkinIsRare
GlobalSkin Members shared their experiences with living w/ a rare derm disease. We received stories from all over the 🌍. 💜 We'll be sharing small snippets & full stories will be on our site on #RareDiseaseDay - 28.02.2025 https://t.co/43wA7MaPYg
#RareDerm #MySkinIsRare
Our skin is rare, we have #ichthyosis. For millions living with a rare dermatological disease is a reality. But our skin, though different, is still beautiful and worthy of understanding.
As Rare Disease Day approaches, let’s shine a light for #RareDiseaseDay #RareDerm
YOUR STORY MATTERS! ✨ Whether you’re living with a rare dermatological disease or supporting a loved one, we want to hear from you. Let’s raise awareness and strengthen the #RareDERM community together! 💜📝 Submit your story by TOMORROW: https://t.co/43wA7MaPYg #RareDiseaseDay
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