Top Tweets for #solveMECFS
Buried Alive by Government “Experts” — Bridget O'Shea @Bridget_OShea may your words of advocacy & activism live on #mecfs #mecfsawareness #millionsmissing #solvemecfs https://t.co/Ygqshdw1a9
🚨Our $50K matching gift challenge ends Monday, June 30! Your support makes Advocacy Week possible & sustains the fight for people with ME/CFS patients. 💙
Please give now & double your impact:
https://t.co/O2zgiH3Pkv
#SolveMECFS #MEForward
We are the #millionsmissing . You do not see us or hear us. Suffering in silence & the dark, we are easy to ignore. More than anything I want ppl to know I am still a person & desire only to participate in my own life. #SolveMECFS
"I hope to walk again
Hope to spend quality family time
Hope for an active life
Hope to feel joy again
There is a cure out there. It just needs to be found!" - Carson
👉 Share your story: https://t.co/TITuQG1rwA
#pwme #neisvoid #millionsmissing #longcovid
Wir bräuchten auch mal eine Art #IceBucketChallenge für #MECFS.
Wer hat eine kreative Idee? Und v.a. wie schafft man es, dass sie viral geht? 🙈
#MECFS #NieWiederUnsichtbar #MillionsMissing #NotRecovered #ChronicIllness #MEawareness #pwME #endMECFS #treatMECFS #solveMECFS
Kommt leider zu spät. Meine Freundin ist 07/2019 plötzlich an #ALS erkrankt & 02/2022 verstorben 😢
Ich hoffe, dass das Medikament vielen Menschen helfen kann!! 🙏
Heilung gibt es leider auch 8 Jahre nach der #IceBucketChallenge noch nicht.
1/4
#AmyotropheLateralsklerose
🔬 Die Deutsche Gesellschaft für ME/CFS fördert ab sofort in ihrem Forschungsprogramm kleinere explorative Studien.
Außerdem wird innerhalb der Open-Access-Förderung die Veröffentlichung von Open-Access-Publikationen unterstützt.
#MECFS (1/3)
One of the very few silver linings of the #pandemic is that there is now a lot more of us in #medicine and #science who are on the right side of #medicine and #science. #MECFS #Dysautonomia #POTS #LongCovid #SolveMECFS
Sorry, that was the wrong link 🙈 But also interesting so I won't delete it.
Here is what I actually wanted to post:
https://t.co/XNnuYQp77M
#MillionsMissing #BC007 #endMECFS #solveMECFS #treatMECFS #MEresearch #longhaulers #MEawareness
1/2 In consultation with @Dr_B_Hohberger, we would like to inform you after the events of the last few days and weeks #bc007mess:
Together with the University of Erlangen and the policy-makers (Bavarian Parliament), we are actively working towards…
Und wieder einmal zeigt sich, dass versch. ME/CFS-Subgruppen identifiziert werden müssen.
Man darf wohl nicht nach dem einen Biomarker suchen.
Nur so lassen sich dann auch gezielte klinische Studien mit Medikamenten aussagekräftig durchführen.
#solveMECFS #Grundlagenforschung
THANK YOU for your support! We've reached more than 500 signatures in such a short time. You're amazing!💙
I hope our concerns will be heared.
#MillionsMissing #BC007 #fundraisingBC007MEcfs #pwME #pwLC #TreatLongCovid #TreatMECFS #SolveMECFS #endMECFS #MEawareness #longhaulers
The English version of our #OpenLetter is now online.
We very much hope that we will soon have certainty about when and how the #MEcfs study with #bc007 can take place.
We thank everyone for your great support.
➡️ https://t.co/zNjeL7s2JH
Yesterday I said it would be nice if we had 100 signatures. Now there are 178 & more and more are being added. You are awesome! 😃
#FundraisingBC007MEcfs #MillionsMissing #longhaulers #endMECFS #SolveMECFS #NichtGenesen #WirSindMECFS #MECFS #LongCovid #PostCovid #NEISvoid
We've already got 78 signatures who support our open letter to the German Ministry of Health and Ministry of Education & Research regarding #BC007 studies. Thanks a lot! 💙
⬇️ You can still sign until tomorrow (Mo) evening. ✍
#MillionsMissing #MECFS #LongCovid #PostCovid
We fundraised severely ill from our beds (!) & Bavarian parliament also gave funds. @MECfsFundraiser
BOTH #LongCovid AND #MECFS need studies & treatments ASAP. We're all in this together🌎
#MillionsMissing #NieWiederUnsichtbar #TreatLongCovid #TreatMECFS #endMECFS #solveMECFS
Is this a poem? A TED talk? A prayer? IDK - wanted to share my love with my #pwME before the end of this #MEAwareness month - #solveMECFS and make life for the #millionsMissing just a tinge more hopeful, #LearnFromME this year so that we all move forward together. #mecfs
Ist 2022 das Jahr, in dem wir endlich menschenwürdige medizinische Versorgung erhalten werden?
#MECFS wird von @WHO seit 1969 als neurologische Erkrankung klassifiziert & doch werden wir weiterhin ignoriert & stigmatisiert.
4/4
#endMECFS #solveMECFS #TreatLongCovid #MedTwitter
almost slept through CFS/ME Awareness Day! 😳 #MECFS #MillionsMissing #SolveMECFS #spoonies #HighRiskCovid19 #chronicillness #CFS
#EndMECFS #chronicfatigue #spoonie #chronicillnesswarrior #invisibleillness #CFSME #butyoudontlooksick #sickandtiredofbeingsickandtired #MEawareness
If many people all around the world each donate a little amount, it would make a huge difference for millions of people with #MECFS & #LongCovid! 🌍
3/3
#NichtGenesen #WirSindMECFS #endMECFS #solveMECFS #NieWiederUnsichtbar #PCFS #Fundraising #Donation #ChronicPain #NEISvoid
Sometimes with #MECFS I wonder how long I can continue. How long I can keep fighting. How long I can continue to endure the absolute torture of this illness, the lack of medical or societal care, the lack of treatment. Year after year
It is relentless, & devastating, and silent.
Even if you can't donate, please share the fundraiser so that it reaches as many people as possible. Hopefully also people outside the #MECFS #LongCovid bubble.
https://t.co/Kc28b9lOSv
#MEawarenessHour #MedTwitter #LongCovidKids #longhaulers #pwME #pwLC #endMECFS #SolveMECFS
@loy_daniel_de @Bundestag Mega Ergebnis! Ich bin immer noch beeindruckt. Hat viel Kraft gekostet, euch sicher noch viel mehr. Aber ich hoffe, es wird sich lohnen ✊
#NieWiederUnsichtbar
#endMECFS #solveMECFS #MECFS
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