Top Tweets for #EndMECFS
βΎ
Never give up.
Fight, fight, fight! β
End of thread. π Thanks for reading.
#MECFS
#ChronicIllness
#Fibromyalgia
#PTSD
#InvisibleIllness
#NeverGiveUp
#PatientVoices
#ChronicPain
#EndMECFS
#Hope #CharlieKirks
#Japan
A beacon in the night...a voice in the wilderness...a voice of reason among the chaos that is the world of #MECFS.
@DecodeMEstudy FINALLY gave this disease some credibility on a global scale. Time to build on the foundations and #EndMECFS!
(1/2) We have been blown away by the public response to our initial DNA results. Weβve been delighted to be featured in a range of news outlets, radio programs & articles. A huge thanks to those who helped spread the word & have helped us put ME/CFS research into the public eye.
Excellent question! Follow @CortJohnson as he tweets from the Keystone Long Covid Symposium on #MECFS and #LongCovid. Or, check his page and digest it as you are able. Some interesting stuff!
#EndMECFS
#EndLongCovid
Keystone Long COVID POST Acute Infection Syndromes Symposium - Peluso #longCOVID #MECFS - how does such a small microbe produce such long and often devastating results?
DecodeME study on the front page of The Guardian today (lower right corner)
#DecodeME
Alrighty then! Can't wait to hear what @DrMaureenHanson's team comes up with now! Go, Columbia #MECFS (and #LongCovid) CRC!! π¬
π#EndMECFS π#EndLongCovid
@SecKennedy @DrOzCMS @NIHDirector_Jay
@SenCapito Get @WVUMedSchool involved!!!
World ME Day - May 12, 2025
We need good health care, up-to-date medical education and immediate research funding! I have suffered from ME/CFS since 2009.
#StandByMEcfs #StillSickStillFighting
#MEcfs #EndMEcfs #MEAction #MillionsMissing #TeachMETreatME #pwME
I'm going to be thinking about this all day. #EndMECFS
@MaxNits @chydorina I just talked to Ron and Rob about this. Itβs another possible feedback loop that could count for the chronicity of the disease. Theyβre excited to talk to these researchers tomorrow on a zoom call. We are really getting some good collaborations lately!
Are the stars aligning? Prayers being answered?
Aha! moments bearing fruit?
I'd love to be a 'fly on the wall' of that zoom call!!
#EndMECFS π§©π
@MaxNits @chydorina @PhillyPhile215 @atranscendedman @bhanlon15 @RenegadeRes @TomKindlon @NeurologistMom @CureLongCovid @minadjenkins
@MaxNits @chydorina I just talked to Ron and Rob about this. Itβs another possible feedback loop that could count for the chronicity of the disease. Theyβre excited to talk to these researchers tomorrow on a zoom call. We are really getting some good collaborations lately!
@JanetDafoe Happy American Thanksgiving, Dr. Dafoe, Dr. Davis, Whitney, Ashley & family.
Thank you for all of your hard work and dedication to #EndMECFS.
It is a comfort just to know you exist in this world, trying to solve the most difficult problems.
Always wishing the best for you.
Stand By ME/CFS!
Please watch my Stand By ME/CFS video. I have suffered from ME/CFS since 2009. Please lend your voice and support. Become an ally!
With gratitude, Cynthia
#StandByMEcfs #StillSickStillFighting #MillionsMissing #GlobalVoiceForME #EndMEcfs
https://t.co/EqUNU2AFOx
Happy Halloween!
Please sign this open letter from MEAction
so that you aren't haunted by inaction! π»π»π»
Both a U.S. and international link included.
Thanks for signing and sharing!
#StandByMEcf #StillSickStillFighting #GlobalVoiceforME #FundMERoadmap #MillionsMissing #EndMEcfs
We need the 2024 NIH ME/CFS Research Roadmap funded now!
Please sign and share this MEAction open letter.
Both a U.S. and international option in the link:
https://t.co/5WjMNq3YDy
#StandByMEcfs #StillSickStillFighting #GlobalVoiceforME #FundMERoadmap #MillionsMissing #EndMEcfs
Stand By ME/CFS! https://t.co/EqUNU2AFOx
Please watch my Stand By ME/CFS video. I have suffered from ME/CFS since 2009. Please lend your voice and support. Become an ally!
With gratitude, Cynthia
#StandByMEcfs #StillSickStillFighting #MillionsMissing #GlobalVoiceForME #EndMEcfs
You are not forgotten
I see your faces,
I know your names,
I remember your stories.
#StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #EndMEcfs
Stand By ME/CFS! https://t.co/EqUNU2AFOx
Please watch my Stand By ME/CFS video. I have suffered from ME/CFS since 2009. Please lend your voice and support. Become an ally!
With gratitude, Cynthia
#StandByMEcfs #StillSickStillFighting #MillionsMissing #GlobalVoiceForME #EndMEcfs
And they're off! Another exciting day of #mecfs24 has begun!
I have to do 'life stuff' today, so be sure to follow @JanetDafoe's tweets and I'll catch up this evening!! Thanks, Janet!! πππ
#EndMECFS
#CureMECFS
#mecfs24 starting off today with Jonas Bergquist talking about metabolites and tryptophan metabolism using blood based analysis and the great new FUNCAP questionnaire that focuses on PEM.
My heart hurts. A beautiful soul from our community has passed from this life. Sammy @me_and_more_, a person with #SevereME from Australia, created some of the best education & communication around #MyalgicEncephalomyelitis & associated illnesses I have seen.
A real meeting of the minds!!
#MECFS Research Rockstars!! πͺπ
#FundMECFSResearch
#EndMECFS
#MECFSsucks
Sending out our best to all who are attending the #MECFS Collaborative Research Center Working Group Meeting at Stanford Med/SGTC this week including #MEAction's Scientific Director Jaime Seltzer @exceedhergrasp1. The meeting is closed because unpublished data is being presented.
@NIHDirector Bertagnolli...if you don't have time to read the literature...here's a picture.
#MECFS is the #GreatestMEdicalScandal that has left #millionsmissing from their lives and the lives of friends and family. The world would be better with us in it.
#EndMECFS
#GreatestMedicalScandal #MyalgicEncephalomyelitis aka ME/CFS https://t.co/7kXQ4SZUjO & https://t.co/DoGApqsxTV #MECFS #PwME #QoL
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