Top Tweets for #stopGETnow
It's time to update the treatment guidelines for #MECFS in Australia. Here is yet another fantastic article explaining why GET and CBT should not be used to treat #LongCovid Thank you @NataliaHodgins #stopGETnow #pwME #MillionsMissing #MyalgicEncephalomyelitis #restisbest
Why GET and CBT should not be used to treat #LongCovid #stopGETnow #restisbest #MillionsMissing #pwME #MyalgicEncephalomyelitis
https://t.co/n6CZ2b5vYX
“Professionals” need to listen to their patients. Graded exercise has caused #MECfS to progress and has contributed to deaths. #StopGETNow. It is dangerous. I’m truly scared for those with #LongCovid who know no better and trust their drs #pwME #ChronicIllness
If only I could repeatedly hit like!
#pwME #MyalgicEncephalomyelitis #MillionsMissing #stopGETnow #canyouseeMEnow #restisbest
@nhmrc are you reading this? Australian #MyalgicE patients deserve better! Update your outdated guidelines in Oz!
@MMissingAus @aboutmecfs @EmergeAus
I’d very much like an answer to this question too....
@NICEGetInvolved @NICEComms
#MillionsMissing #StopGETnow
@Laurie_Garrett GBS? You ain't seen nothing yet! Wait until the waves of #CFS #MyalgicE #Fybromyalgia and #autoimmune conditions start reading their ugly heads. Then, maybe #pwME and #MillionsMissing will finally be believed. #COVIDー19 #restisbest #stopGETnow
#meawarenesshour #MEActNetAu
What it feels like to warn people who recover from #Covid_19 about #MEcfs and #postviralfatigue but you know it's wasted #spoons Let them learn the hard way!
#MEAwarenessHour #MyalgicE #MillionsMissing #pwME #spoonies #restisbest #stopGETnow #pacing #MEActNetAu #Unrest
Please RT, we now have > 7775 signatures asking them to STOP HARMING PATIENTS but they choose to ignore us. #MECFS #MyalgicE #StopGETnow #NICEGUIDELINES #DoctorwithME #FIRSTDONOHARM💙 https://t.co/KPHYYV0xbt
Yet again the discredited PACE, GET & CBT advocates are involved in NICE review. How can change happen while they have such a powerful voice. #stopgetnow #endmecfs #timeforunrest
Anyone going to NICE meetings? I will give you the petition letter, signatures (>300 pages) and comments (70> pages). #stopgetnow 💙
@insightSBS Please don't confuse my response with support for #PACEtrial OR #GET . I do not condone these at all, rather I practice #pacing ... big difference. I do what I can when I can without pushing myself beyond my limit! #pwME #MyalgicE #Selfcare #rest #MillionsMissing #stopGETnow
3 hour debate on ME in Parliament on 21st June! Everybody get your MPs to attend!! Just copy this email: #stopGETnow #DoctorwithME #mecfs #MillionsMissing #PACEtrial https://t.co/QBOb3bgecE
Thank you MPs! We need ALL the allies we can get! #DoctorwithME #myalgicencephalomyelitis #stopGETnow #PACEtrial https://t.co/sNcpJcEiFb
Everybody please sign all these petitions and share everywhere!
#DoctorwithME #MillionsMissing #canyouseeMEnow #stopGETnow #PACEtrial
https://t.co/Nw0AfIklft
@MEActNetAu @DrBastianSeidel #stopGETnow when are the medical community in Australia going to be retrained in how to treat patients with #mecfs ? GET and CBT are harmful and lead to worsening symptoms. It is time to listen to the patients #pwME #MyalgicE #MillionsMissing #canyouseeMEnow
#MillionsMissing #mecfs #MyalgicE #stopGETnow #MEAction #timeforunrest Please help if you can! VIROLOGY BLOG'S TRIAL BY ERROR: Reporting on ME/CFS https://t.co/Xc6Vw6KF2A #davidtuller
@elonmusk To the man that can, and does! Here's a challenge for you the cruelty that is Myalgic Encephalomyelitis.. 17 million suffering, no cure, no treatment and no acknowledgement.. Please watch Unrest #MillionsMissing #mecfs #MyalgicE #stopGETnow #MEAction #timeforunrest
Heartbreaking! I am sad and angry watching this, this patient blaming has to stop!!! It is so cruel, it is cruel enough as an adult, but to treat a child in that way is despicable. Please sign & RT #MillionsMissing #mecfs #MyalgicE #stopGETnow #MEAction https://t.co/ykG3julMtq
Please sign this important petition. It can be signed by anyone in any country.
https://t.co/LPeTeM8GGN
It calls on the Scottish government to review the treatment of ME in Scotland with the aim to invest in biomedical research, education and care.
https://t.co/7UG2Nx4S1A
Absolutely heartbreaking! Sign this worldwide petition to bring change sooner! https://t.co/YXxU0X3cMf #stopGETnow #DoctorwithME #pwme #mecfs https://t.co/bS6eFhXBOO
This 21-year-old woman died after suffering with ME for six years.
Her family were told by medics that the condition didn't exist - they hope Merryn's story can inspire a change in treatment. | @MEAssociation
#stopGETnow sign the petition! https://t.co/I7sA3jcPmd
Please sign and RT nearly 5,500 signatures!
NICE: Stop harming ME/CFS patients - take CBT/GET out of ME/CFS guidelines NOW!! - Sign the Petition! https://t.co/F5rNtlJwJG via @UKChange
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