A patient ran podcast about the issues that ICU patients go through. With guests from both staff and ex patients to talk about Life in ICU from both sides
Don’t know where to find the podcast, wondering where you can listen? https://t.co/rLjgGyPOB4
That will show you every platform it’s on and take you to every episode published, so if you want to keep up here is your one stop shop.
@AmerDelirium@smith_pedsmd@minipixie26 Congrats to @minipixie26 it’s a bitter sweet award given the reason it was formed. I didn’t know Jim well and I don’t have any stories with him but he has a lot of stories being a leader and inspiration to people in the delirium world. There will be an absence we’ll do our best
@A_MacLullich it might be better to ask: how are you feeling today then do you feel safe here. Or even better perhaps ask them what’s been going on since the last time you spoke to them. I feel do you feel safe here has a leading context that might have someone think they should be unsafe
@A_MacLullich it might be better to ask: how are you feeling today then do you feel safe here. Or even better perhaps ask them what’s been going on since the last time you spoke to them. I feel do you feel safe here has a leading context that might have someone think they should be unsafe
@A_MacLullich I would argue you could go beyond that to move yourself into the patients in-group and gain trust by adding , “what can I do to help you feel safer here?”
@icurehab@ICUsteps@DrMeganHoseyPhD@DrMeganHoseyPhD is a great ICU psychologist who puts the patients needs first, her work on reducing mental health issues post icu is so important. She is a great speaker and person, I have no doubt this would have been a great session
@RanaAwdish The interaction between Dr & Patient must 1st be the meeting of humans, an understanding that each person has had a unique path that neither will understand fully until they have communicated for awhile. The best dr’s who have looked after me saw me the person before me the case
Hi everyone I know I’m not posting much these days but 2025 has been really rough early in the year my ITP meds stopped working so I had long battle to get it under control. I was admitted for it first time in over decade. Been struggling with depression and now I have 1/
Kidney stones including one trapped in my ureter but because my neutrophils are low no surgery just placed stents and wait3-6 weeks to then remove all the stones in one procedure. I’m just very sore at the moment and very tired, life has got pretty rough these days
@ProfJuneAndrews@A_MacLullich I’m curious why do you think the A’s won’t help? Knowing the causes of delirium means you can treat the causes of delirium pain infection etc but if you don’t know you won’t. I talk about my icu and other delirium experiences to nurses so they know how serious it is
I am tired of having to deal with infections and platelet count at potentially life threatening level and had hoped I’d get support from the uni. All the continual assessment stuff I was supported great when I had issues and really disappointed by the uni’s response @minipixie26
My platelet count is 2 today so I’m fearing another hospital admission for my ITP, I failed my @OpenUniversity module (right to resubmit but capped despite my special circumstances submission about my serious health issues leading up to ema submission.) I’m trying to work on it
@A_MacLullich I’m not sure about that other than some of it might not be seen as care. There are certainly a lot of nursss and doctors I’ve been under who do a few of them as a default
https://t.co/IV59t5Lp0F
thats the link to the full poem I'd love to hear any thoughts on it and just discuss how chronic illness can be really hard to cope with long term :)
My platelet count is 1 this week (we want to keep it between 100-120 normal being (150-400) so I decided to write a poem to show the emotions being this low as under ten there is a risk of brain bleeds if you get hit on the head so it is hard right now. Link in reply