Tracey Pearce

[Vertex Save Us @VertexSaveUs]

We are advocating for #CysticFibrosis patients EVERYWHERE, including the UK, where @VertexPharma’s prices are causing anxiety for many CF families.

Our petition has surged and we will ensure that Vertex hears ALL your voices, loud & clear.
Please sign:

https://t.co/PGx7P7uZYQ

[Josh Llewellyn-Jones OBE @JoshLJ24]

I’ll be live on BBC Wales News tonight at 6.30 talking to them about the blow the CF community has had this week 🎥

[BBC Breaking News @BBCBreaking]

"Congratulations Mr President"

Joe Biden sworn in by Supreme Court Chief Justice John Roberts, becoming the 46th president of the United States

https://t.co/hQBfBFbUvQ

[Tracey Pearce @justthetkt]

@vaughangething

[Chris Riches @ChrisMRiches]

The .@Daily_Express proud today to unveil our new #cysticfibrosis #TrikaftaNext campaign - demanding an interim, immediate deal with @VertexPharma when the drug is licensed in the UK next year. Please share if you can. .@MattHancock .@cftrust .@NHSEngland #dailyexpresscrusade4cf

[Tracey Pearce @justthetkt]

@wgmin_health @cftrust

[Strawfie Challenge @strawfie]

Please share this article on all social media and tag @matthancock to #VisitCarlie
https://t.co/PqlKjMmyc4 #cysticfibrosis #OrkambiNow #SaturdayMotivation #CFAwareness #Health #people #patients #KingsHospital

[Josh Llewellyn-Jones OBE @JoshLJ24]

PLEASE RT

Basically, I’m preparing my body and mind for 5 days of what can only be described as hell. My mission is to raise money and more importantly, awareness for CF Warriors all over the world!

https://t.co/zzJWSGWhwK

#CFWarriors #5Days4CF #3Nations5Days #WeFightTogether

[Mike Griffiths @mrmikegriffiths]

Cwmbran's brilliant @ChoirDeaf performing for shoppers at @jlandpartners in Cardiff

[Orkambi Now @OrkambiNow]

#PlanBOnOrkambi #LetThemBreathe

[Josh Llewellyn-Jones OBE @JoshLJ24]

My 2019 challenge has been set and I’m taking things to a whole new level for CF Warriors and Rays Of Sunshine. On Oct 7th, I’ll aim to cover 381 miles in 5 days with no sleep. Time to live outside my comfort zone 💪 #5Days4CF #CFWarriors #RaysOfSunshine

[Cystic Fibrosis Foundation @CF_Foundation]

Today, Vertex released positive Phase 3 clinical trial data for VX-659, one of two next-generation, triple combination #cysticfibrosis modulators currently being tested. #CFresearch https://t.co/tu6RHF86DG

[#UK CF campaigner Sharon @CFno1LeftBehind]

Please help ppl with #CysticFibrosis in the UK #GivingTuesday 👉🏻#SymkeviNow #triplesSoon BUT NOT IN THE UK SO PLS SIGN & SHARE PETITION 👇🏻👇🏻 https://t.co/qglIewYIEL

[#UK CF campaigner Sharon @CFno1LeftBehind]

👉🏻#SymkeviNow #triplesSoon BUT NOT IN THE UK SO PLS SIGN SHARE PETITION 👇🏻👇🏻 https://t.co/qglIewYIEL 👇🏻
https://t.co/gVmFGF7t7x

[Cystic Fibrosis Trust @cftrust]

#AccessToMedicines for #cysticfibrosis

[Ali Dillon 💙 NHS @Alidilly]

Pls put the petition on yr Facebook page @cftrust https://t.co/9moS1myiD5

[Josh Llewellyn-Jones OBE @JoshLJ24]

Thank you so much for everyone’s support! I hope you’ll all remember Nancy’s name. You WILL be seeing her in the Olympics, I have no doubt!

HUGE thanks to @ITVWales @dafyddjonesITV and @AndreaByrneTV for supporting #CFWarriors #MillionKiloMan #CysticFibrosis