Massachusetts ME/CFS & FM Association

To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.

[ME/CFS San Diego @MECFSSD]

Annual @MassMECFS Meeting: 10/18, 1–3 PM ET Zoom, Medicaid medical-frailty exemptions & Hidden Disabilities Sunflower. Recorded. https://t.co/R5KOhBdFto

[ME/CFS San Diego @MECFSSD]

@fidjissimo @Forbes & @ChronicleBioAI : AI startup for ME/CFS, POTS & LC aiming to identify subtypes & match patients to potential treatments. https://t.co/XLULrrCRDa (paywalled)

[Massachusetts ME/CFS & FM Association @MassMECFS]

2/2. This Zoom presentation will be recorded for later viewing.

Full details here: https://t.co/P4MDZGz8i1

#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability

[Massachusetts ME/CFS & FM Association @MassMECFS]

1/2 We are excited to announce Being Seen, our Annual Meeting featuring Therese Russo, Advocacy Manager at #MEAction @meactnet and Lynn Smith, U.S. Regional Director of Hidden Disabilities Sunflower @sunflowerlanyardscheme

All are welcome!

[Open Medicine Foundation @OpenMedF]

The 2026 Stanford Community Symposium recordings are now on YouTube.

Every talk is now online, including Danielle Meadows, PhD, OMF's VP of Research Programs and Operations, on the clinical trial landscape in ME/CFS and Long COVID.

▶️ https://t.co/sLNzeIFBFJ

[Massachusetts ME/CFS & FM Association @MassMECFS]

The weather was perfect, the team was awesome! This is the 3rd year MassME participated in this event, & for the 3rd time was one of the strongest fundraisers.
Thanks to all team members & all who donated to support MassME.
Together, we are stronger!
https://t.co/PBfAIQHgqM

[Dr. Daniel Loy @loy_daniel_de]

1/4 Das Narrativ von den "aggressiven", "vorwürflichen" oder sonst schwierigen #MECFS-Betroffenen ist besonders toxisch, weil es eine subtile Legitimierungsfunktion für fortdauernde Nichtversorgung und sogar für Schädigungen durch Fehlbehandlungen dieser Patientengruppe erfüllt.

[ME/CFS San Diego @MECFSSD]

PRIME International ME/CFS Research Symposium (Free Hybrid), Edinburgh: Sept. 28–29, with online attendance. Includes launch of the International Genetic Epidemiology of ME/CFS Consortium and presentations from early-career researchers and PPI Hub. https://t.co/yHO3rhh96C

[Billy Hanlon @bhanlon15]

The Guardian: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'

By George Monbiot

https://t.co/sBDL2klVww

[Massachusetts ME/CFS & FM Association @MassMECFS]

There is a lot going on, read the latest:

https://t.co/mtCiqykARy

#massmecfs #chronicfatigue #longcovid #fibromyalgia #MECFS

[Massachusetts ME/CFS & FM Association @MassMECFS]

2/2 We'll hear experienced support group leaders/facilitators about experiences they have had & why they are enthusiastic about what they do. Please join us All welcome to this free program.

https://t.co/aD4Dl5oxfn

#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia

[Massachusetts ME/CFS & FM Association @MassMECFS]

1/2 Sunday Conversations "Insights and Inspiration from Support Group Leaders"
September 20, 2026, 4:00pm ET on Zoom 

How can a support group help you and what can you expect if you join one?

[Massachusetts ME/CFS & FM Association @MassMECFS]

We put our news together in a simple format.
Read at your own pace when you have the spoons. 🥄

https://t.co/et6cYgsSWZ

#massmecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Pacing #Spoonie #InvisibleIllness #LongCOVID #fibromyalgia

[Massachusetts ME/CFS & FM Association @MassMECFS]

Unfortunately for many, it's every day.

[Massachusetts ME/CFS & FM Association @MassMECFS]

It’s hot out there! But managing temperature is a daily challenge all year long for many with ME/CFS, Long COVID, and dysautonomias.

Join us for this free community conversation.

https://t.co/XYIhPhIODL

#massmecfs #chronicfatigue #longcovid #MyalgicEncephalomyelitis

[Massachusetts ME/CFS & FM Association @MassMECFS]

Gen Z, Millennials, we are holding space for you.

https://t.co/pI5PC56B3I

#massmecfs #MECFS #fibromyalgia #longcovid #dysautonomia #pots #chronicfatigue

[ME/CFS San Diego @MECFSSD]

Two @PlzSolveCFS funded studies: point to GI dysfunction as a key driver of ME/CFS. https://t.co/lOwrsCCVRe links gut microbiome changes to neurocognitive symptoms. https://t.co/Y64wao8VnX identifies GI symptoms as a core feature tied to inflammation.

[Solve ME/CFS Initiative @PlzSolveCFS]

We filed our public comment this week on the federal regulatory guidance that will shape how research gets funded and managed.
1/5

[Massachusetts ME/CFS & FM Association @MassMECFS]

Our newsletter is jam packed this month - catch up on the latest!

https://t.co/mtCiqykARy

#massmecfs #MECFS #fibromyalgia #chronicillness #chronicfatigue #longcovid #pots #chroniclyme #dysautonomia

[Bateman Horne Center @BatemanHorne]

HELP THAT DOESN'T WAIT: https://t.co/ELumfPv7tJ

Crashes don't wait. Neither should guidance.

Our free ME/CFS Crash Survival Guide provids practical tools for patients, caregivers & clinicians.

Resources: https://t.co/zrYIcXRMhg