melinda

My heart leaps up when I behold a rainbow in the sky... published poet/children's author. Navy veteran, #resistance #Rett syndrome parent.

[melinda @melindacapecod]

Oh, what difference can trofinetide make??
2013 NNZ-2566 trial, 1/6 the current dose.

Day 30- 4 days off full meds, 2 days off all meds (I drew the flower)
Day 35 -9 days off full meds, 7 days off all meds
#RettSyndrome #Trofinetide #WaitingforMarch12

[melinda @melindacapecod]

@CGuochao2024 That’s the truly tricky part. How is your research addressing that issue? Neurogene and Taysha are both using a modulation device of some sort, I believe, but they are not activating the silent x.

Also with CRiSPER, would they need to work out every single mutation of Rett?

[melinda @melindacapecod]

@CGuochao2024 Here is my issue with reactivationnof the inactive X- particularly as it relates to MecP2- since the active X does produce some MecP2, wouldn’t the activation of the other x cause, to varying degrees, duplication syndrome?

[melinda @melindacapecod]

@jz_jszgr1 @sarrah_bellus @trudygonzales Nope. Standing up for the Constitution against all foes foreign AND domestic.

[melinda @melindacapecod]

@WilliamBradyCoS @sarrah_bellus @trudygonzales Yes. It is. Take the Irish flag down. You’d be on the side of the British in Ireland’s fight for freedom.

[melinda @melindacapecod]

@ladyinyellow53 @positivemeV @sarrah_bellus Even out of uniform it still counts the same as if in uniform, however no one would have known he was an officer. Man is a hero.

[Sarrah Bellus @sarrah_bellus]

I don't believe people outside of the military understand how significant this is. He is willing to lose his entire future over this. That's bravery like we haven't seen in a long time.
🇺🇸 🇺🇸 🇺🇸 🇺🇸 🇺🇸 🇺🇸 🇺🇸 🇺🇸

[Heatherheather007 @LibertyValkyrie]

A Coast Guard vessel makes contact with Kelsey Pfendler about 500mi off the coast of Hawaii, and the entire ship sings her HAPPY BIRTHDAY, and offers her words of encouragement as she finishes her row.

Pfendler is on track to be the first American Woman to row solo & unsupported from CA to Hawaii.

She’s less than 500mi from her destination, and has been rowing for over 30 days.

She’s gone VIRAL, as she’s posted periodic updates, documenting how she’s surviving in the middle of the ocean, alone.

Loved this very honest moment, of men and women who’ve been as sea for their entire career, saluting this woman’s accomplishments.

[melinda @melindacapecod]

@HunterBiden @joncoopertweets @realDonaldTrump 👊 dude, you’re getting almost as good as @GovPressOffice brutal 👊

[Hunter Biden @HunterBiden]

I am officially nominating Donald J. Trump (@realDonaldTrump) for the Nobel Peace Prize.

No President in History has ended the same war so many times.

Our Dear Leader has ended the war with Iran at least 38 times by CNN’s count.

No President has ever done this before.

And he is nowhere near finished ending it.

It’s a record worthy of the Nobel committee’s recognition. Thank you for your attention to this matter!

[𝕷𝖚𝖈𝖎𝖋𝖊𝖗 @LucifersTweetz]

People don’t hate Trump because they hate their country; they hate Trump because they love their country.

[melinda @melindacapecod]

@WhiteHouse @NateFerrero Do you have any idea how disrespectful it is to grab a flag in this way, dumbass.

[melinda @melindacapecod]

@kenobi_gyn @Hot_Pepper76 Never, ever heard anything like that, and it’s not true- he had legitimate issues that prevented him, unlike Mr. Bone Spurs. 🙄

[melinda @melindacapecod]

@Rowdy2735 @Hot_Pepper76 Robin Williams, bless him, was a big time USO show.

[melinda @melindacapecod]

@ToddLyon8 @Hot_Pepper76 After him, Oscar hosting was never the same :(

[melinda @melindacapecod]

@Hot_Pepper76 The incomparable Bob Hope.

[melinda @melindacapecod]

@Aestheticsn1 2208

[Omar Sakr @omarsakrpoet]

Yesterday I posted on insta about how the only protein my son has eaten in 8mo of cancer and chemo is popcorn chicken from Romans Deli - no other will do - and they responded by saying he could have free unlimited popcorn chicken 😭 complete with a lil laminated card

[Willie Ross Jr. Knee Deep @RossKneeDeep]

By David Abbruzzes:

This Australian's reply to Trump's rant about “NATO not being there for America” is perfect.
"Mate. You run a country with 600,000 homeless people sleeping on the street tonight. A country where 40% of adults can't cover a $400 emergency without borrowing money. A country where insulin costs more than a car payment and people are rationing it to survive. A country where medical debt is the number 1 cause of bankruptcy. A country where women are dying in hospital car parks because doctors are too scared of abortion laws to treat a miscarriage.
You lock up more of your own citizens than any nation on earth. More than China. More than Russia. More than North Korea. The land of the free has 2 million people in cages, and a quarter of them haven't even been convicted of anything. They're just too poor to make bail.
Your life expectancy is going backwards. You're the only developed nation where that's happening. Your infant mortality rate is worse than Cuba's. Your kids do active shooter drills between maths and English while you sell the gunmaker's stock to your mates.
Your minimum wage hasn't moved in 15 years. You've got teachers working 2 jobs and veterans sleeping under bridges and you just spent a trillion dollars flattening a country that didn't attack you.
And you’ve got a convicted felon, adjudicating raping, paedophile protecting, porn star shagging insurrectionist running the biggest dumpster fire war campaign since the Taliban thanked you very much for losing again.
And you're calling Greenland poorly run?
Greenland has universal healthcare. Free education. One of the lowest incarceration rates in the world. Nobody goes bankrupt there because they got sick. Nobody dies in a waiting room because their insurance said no.
'NATO wasn't there when we needed them." When exactly was that, champ? September 11? Because NATO invoked Article 5 for the first and only time in history FOR YOU. Soldiers from dozens of countries deployed, fought, bled, and died in Afghanistan FOR YOU. Australia wasn't even in NATO and we still showed up. For 20 years.
And you pulled out at 2am without telling anyone and left them to deal with the mess.
So maybe before you start calling other countries poorly run, have a look at your own backyard, you spray-tanned aluminium siding salesman. The only thing poorly run in this picture is your f----- mouth."

Very well stated.

[Buzz Patterson @BuzzPatterson]

This little guy survived 6 days trapped in the Venezuelan rubble.❤️

Every life a blessing.🙏🇻🇪

[Maria Shriver @mariashriver]

People are traveling, gathering together, barbecuing, celebrating the 250th anniversary of this nation in various ways. And then we have this…

An American service member using his right to free speech, guaranteed in our nation’s constitution. A right given to all of us every day. Regardless of your political affiliation, read or watch Major Jason Watson’s full statement. It’s powerful. He has served and is serving. He is speaking up and out, and for that he was arrested.

Free speech, freedom of religion, a free press, the freedom to vote for who you choose, the freedom to love who you choose. These are all things we celebrate on our nation’s birthday. They are what makes us a democracy, among many other things. So as you gather, as you grill, as you plan your day, think of Major Watson, think of the freedoms you hold dear, and don’t just celebrate them, but make sure generations to come will have these rights as well! 🇺🇸