Neha Sharma

[Sandeep Verma (स्वर) @Sandeep_1966]

Concerted efforts needed starting from carrier testing for spinal muscular atrophy to new approaches for drugs and biologics for this rare genetic disorder. Meeting organised by Prof @sen_jonaki w/ @ICMRDELHI and @curesmaindia has strengthened our resolve for viable solutions.

[Archana Vashist Panda @PandaVashist]

Thx @KolanuSailesh @VenkyMama @vboyanapalli @Nawazuddin_S @arya_offl @ShraddhaSrinath 4 highlighting #SpinalMuscularAtrophy in yr movie #Saindhav. U fulfilled yr promise 2 #SMA community during #Run4SMA Marathon in Aug 23'. V hope it'll help spread #SMA Awareness 🤞.

[Alpana Sharma @alpanaS16]

@cherylmollan @BBCIndia @BBCWorld @BBCBreaking thanks 4 coverin our story of struggle. We @curesmaindia hv been requestin @PMOIndia @narendramodi @MoHFW_INDIA @mansukhmandviya to save precious lives. Where u live sudnt determine if u live #BattleAgaistSMA
https://t.co/opOpXLRwqF

[Alpana Sharma @alpanaS16]

Thanks @dhawan_himanshi 4 highlightin d struggles of Rare Disease Parents We can’t give up - Our Battle Against these Gruesome Disease is ongoing as Children r being denied of Fundamental Right To Live @PMOIndia @narendramodi @MoHFW_INDIA @mansukhmandviya https://t.co/FHFASFwqIn

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 25: Continuing our journey through #SMA rehabilitation, today's fact sheet focuses on the crucial role of orthosis. These supportive devices play a vital role in enhancing mobility and improving the quality of life for individuals with SMA. Let's delve into the significance of orthosis in SMA care. 💪🦿 #SMARehab #OrthosisMatters
#SMAawareness
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 22: Today's factsheet focuses on a few good exercises empowering #SMA individuals on rehabilitative care goals include enhancing mobility, improving quality of life, managing muscle strength, and fostering independence. These exercises are to be followed only after taking advice from your doctor. Join us in this journey of empowerment! 💪🌟 #SMAawareness
#BattleAgainstSMA #RehabilitationGoals

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 19: Understanding the connection between #SMA & Constipation.
Have you ever wondered about the link between SMA and the common occurrence of constipation? 🤔 Delve into our post to uncover insights and discover effective strategies to alleviate this concern. Let's spread awareness and knowledge far and wide!
#SMAawareness
#BattleAgainstSMA
#HealthInsights #LearningTogether #SpreadKnowledge

[Prakash W. Kamat @PrakashWKamatPK]

Goa has 10 SMA cases as per Goa SMA Chapter, @curesmaindia. Mind U,awareness about SMA is v. low. There could be more cases. We need to use every such opportunity to spread that awareness @MSJEGOI @discommgoa @subhashgoa @GoaHemophilia @premroopalva @Hemophiliahfi @goadisability

[Sunil @Negi1Chand]

@Subhash44690696 @OfficeOf_MM @mansukhmandviya @SanjayAzadSln @curesmaindia @VTankha @DrFauziaKhanNCP @ICMRDELHI @DrTedros @PMOIndia @India_NHRC @hanumanbeniwal @nsitharaman @mansukhmandviya

सर आपके भी बच्चे होंगे क्या बच्चों को जीने का अधिकार ही नहीं है इन बच्चों की दुआएं ले इन बच्चों की बद्दुआ ना ले सरकारों के पा��� पैसों की कमी नहीं है करना नहीं चाहते हैं जिस कंपनी में यह दवाइयां बनती है उन कंपनियों से बात करनी चाहिए
😭😭😭

[. Subhash kumar @Subhash44690696]

@OfficeOf_MM @mansukhmandviya Respected
sir @mansukhmandviya ji👏
today 2 children of spinal muscular atrophy are no more among us. Parents are unable to save their children due to expensive medicines, will the government save SMA children?
#SpinalMuscularAtrophy
#WHO75 #HealthForAll 🙏

[Neha Sharma @Neha7989]

@narendramodi Sir apne 'Beti Bachao Beti Padhao' ka b bola tha , usko bhool gye kya ap?

[Neha Sharma @Neha7989]

@PMOIndia @narendramodi please sir keep up your words 'Beti Bachao Beti Padhao', help Anaahita live.

[Neha Sharma @Neha7989]

@PMOIndia sir please save panipat ki beti Anaahita who is only 3.5 months old from the same place you gave slogan 'beti bacha beti padhao' Anaahita is diagnosed with SMA and needs Zolengsma if her life is to be saved.

[Neha Sharma @Neha7989]

Beti bachao Beti Padhao*

[Neha Sharma @Neha7989]

@PMOIndia sir please save panipat ki beti Anaahita who is only 3.5 months old from the same place you gave slogan 'beti bacha beti padhao' Anaahita is diagnosed with SMA and needs Zolengsma if her life is to be saved.

[Neha Sharma @Neha7989]

@ABPNews

[Neha Sharma @Neha7989]

@ajtak @ndtv @ZeeNews @IndiaToday @indiatvnews

[Neha Sharma @Neha7989]

@IN_WNC
@NAVYESM
@indiannavy @IndiannavyMedia

[Neha Sharma @Neha7989]

A humble appeal to Indian Armed force to save my daughter. When no one in country helps, I have faith that that armed forces will 🙏🏻 @westerncomd_IA @IaSouthern
@NorthernComd_IA
@easterncomd
@ChinarcorpsIA
@LestWeForgetIN
@artrac_ia
@IAF_MCC
@adgpi
https://t.co/sTHFTX0C6N

[Neha Sharma @Neha7989]

As the mother of Anaahita I am requesting to save the life of the girl child of this country.

[Neha Sharma @Neha7989]

@SonuSood @SoodFoundation Sir my daughter is also diagnosed with SMA and she is only 3 months old. Please help me to save my daughter