Physios For ME

A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME

[Physios For ME @PhysiosForME]

We've added more information about our new book to our website, including answers to some frequently asked questions

👇👇

https://t.co/bOxfSIS2fR

[Physios For ME @PhysiosForME]

@MEFoggyDog Bones respond to weight-bearing activities - but what those could be is of course so individual to you and your ME, we couldn't recommend anything generic.

Have you had a bone density scan and asked for medical advice on other measures to help with bone protection?

[Physios For ME @PhysiosForME]

It's our seven year anniversary 🎉🎊💪

We reflect on the last twelve months and offer a sneak peak of the next in our newest blog post

https://t.co/qJkVQvFVPD

[Physios For ME @PhysiosForME]

@sunsopeningband @thecsp 😁🤗

[Physios For ME @PhysiosForME]

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!)
https://t.co/CUyrkLSv1Q

[Physios For ME @PhysiosForME]

Publishing an article like this has been one of our goals since we first formed as a group, so we are delighted to have an article published in a publication with such reach, and that the @thecsp have taken this matter with the seriousness it deserves.

https://t.co/Y3nR3NQwwa

[Physios For ME @PhysiosForME]

The article is called:

"Do no harm: supporting people with ME/CFS.
How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? "

[Dr Nicola Clague-Baker @ClagueNjc36]

1. Training of #hcps

People with #ME/CFS and #longcovid I need your thoughts and ideas please.

I would like to develop simulation training for all #hcps. We now use a lot of simulation which means that we can simulate severe #ME and #longcovid in a hospital setting.

[Physios For ME @PhysiosForME]

@lammas_leaves @seanstidston @subversivepsych Not sure what REF stands for?

There are ways physiotherapists can assist that have nothing to do with exercise, but not sure if this is what's referenced.

[Physios For ME @PhysiosForME]

@NobleRingleader @SabineHermisson We can't provide individual advice as depends on the person.

In general, long rolled towels, V-pillows etc can provide support if tolerated.

There are "sleep systems" for people needing 24hour postural support. Link for example not endorsement.

https://t.co/48ZOZA2Hgy

[Physios For ME @PhysiosForME]

Q for #pwME who have given birth (while diagnosed with ME).

Which kind of birth (vaginal birth or C-section) would be most tolerable for pwME? (As tolerable as these things can be!!)

[Amanda Bennett @AmandaB55744931]

Social Prescriber just sent me a list of activities. They really don’t understand:
- adapted cycling
- ME in-person support group (2hr sessions)
- living well sessions (2.5hrs a week)

Have replied to explain I have about 30 mins usable energy per day, mostly for food prep.

[Madeleine ThriftVIP® @ThriftVIP]

@PhysiosForME @ClagueNjc36

I finally did it! A year in the making since my proposal last year. I’m now gearing up for the free public taster on 22nd April then the 1st nominal fee session (£3) starts in May. Please let anyone able to attend in the sunderland area. Thank you 🙏🏼

[Tom Kindlon @TomKindlon]

Natalie Hilliard @Hilliard_Nat on Physiotherapy for ME

https://t.co/u9BvyCyfAS

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME @PhysiosForME @ChronicLiving1

[Dr Nicola Clague-Baker @ClagueNjc36]

One last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @PhysiosForME

https://t.co/J0GgdTDtOi

[Dr Michelle Bull 💙 @MichelleBull4]

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme @MEAssociation
@LC_Physio @LongCovidKids

[Physios For ME @PhysiosForME]

https://t.co/iBqIVWReqt

[Physios For ME @PhysiosForME]

This is where in-patient physiotherapists could really be advocates and lead in promoting safe care for people with severe ME.

Setting up suitable environments, guidelines on safe handling - it's all in our skillset if we have the knowledge

@thecsp

[Henry Anderson @macanders]

My relative w severeME is having a predictably awful time in hospital. She is not believed about her own illness. Family advocate but we can only be there during visiting hours.

[Physios For ME @PhysiosForME]

Progress report on our vagus nerve stimulation trial led by @ClagueNjc36 and @karenphysiocouk

[ME Association @MEAssociation]

Vagus nerve stimulation trial: update 

A feasibility trial looking at “transcutaneous auricular vagus nerve stimulation” (taVNS) in people with ME/CFS has now completed data collection. 

Read the full progress report on the blog: https://t.co/Xmwovu4L8z

#MECFS #pwME #Research #VagusNerve #MyalgicEncephalomyelitis

[Physios For ME @PhysiosForME]

@macanders @TanteRos Hope they did take note. Do encourage them to get in touch if they need further guidance. Should be taking note of a person's previous abilities rather than attempting a blanket approach

[Physios For ME @PhysiosForME]

Quick catch up today to plan a new project 🙌😁