Please -everyone! Since #Refsum is essentially a genetically linked metabolic disorder with some telltale anatomical anomalies, early diagnosis and reduction of phytanic acid in one's diet can slow the course of neurological decline. The first step is awareness and diagnosis.
Support Refsum Awareness Week @ DARE Fest 2023
Research = Knowledge = Better Living
Online activities June 10-18.
Patient Stories, Refsum Diet Challenge and educational videos from medical experts.
Learn More & Register: https://t.co/yDNthOPJj4
#CureRefsum#RareDisease
https://t.co/yDNthOPJj4
Register for #DAREFest 2023 and make a difference for people like Sharon who is legally blind because of not receiving an accurate diagnosis for 40 years! She discusses how Global DARE Foundation is making a difference.
#refsum https://t.co/v96Krmb8yA
@GlobalDAREFound@CNIB@RNIB@rarediseaseday@RareDiseases Agreed! Since #Refsum is essentially a genetically linked metabolic disorder with some telltale anatomical anomalies, early diagnosis and reduction of phytanic acid in one's diet can significantly slow the course of neurological decline. The first step is awareness and diagnosis.
An early diagnosis can make a huge difference for folks with this rare disease. The Global DARE Foundation is funding research to
make lives better for those with Refsum.
Register for DARE Fest 2023 today and help us reach our goal of $35,000!
https://t.co/yDNthOPJj4
#DareFest
Start the summer with impact: DARE Fest 2023 – June 10-18!
https://t.co/yDNthOPJj4
Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life.
Early diagnosis and diet improve lives!
#DareFest2023#refsum#RareDisease
Refsum is one of 7000 rare diseases. Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Learn about how we are making a difference in improving the quality of life of people with Refsum by enabling earlier diagnosis & more: https://t.co/vuQnr4Tazm
#RareDiseaseDay
#RDiscovery has added three leading titles from The New England Journal of Medicine (@NEJM) Group to its content repository. NEJM abstracts dating back ten years are now available to users of the R Discovery app: https://t.co/bpuCEJRR4E
#medtwitter#AcademicTwitter
Thanks for the outpouring of curiosity... my LinkedIn post has been viewed over 3,300 times.
Brian has now offered a 10% discount code (DRPP10) to those who have viewed my post and wish a similar tour. Mention the code while booking through https://t.co/w4NWLEB6j3.
Well, I just got home from a wonderful Sunday morning biking and kayaking with Brian and his wife -- Delaware River Pedal & Paddle (https://t.co/OFxSoHyaxU).
See https://t.co/hrdP0ZEUlv for an extended commentary on my outing!
#Cycling#Kayaking#GetActive#DelawareRiver
In addition to the #SSP2021 China session, be sure to download the @ImpactSci whitepaper on China:
"Navigating China's Academic and Research Landscape -- A Guide for Academic Publishers and Societies"
Download here: https://t.co/dN4WBHFi5j
#Publishing#China@Cactusglobal
A statement from Lauren Kane (@lauren_publish), President of SSP (@ScholarlyPub) regarding today's #SSP2021 China session:
"We are honored to have Dr. LYU of CAST contribute to the SSP meeting - thanks to you @samulack and all who helped put this stellar session together."
The "big unveil" is approaching... now I'm starting to get nervous!
Join our #SSP2021 session on China, with very special guest Dr. Zhaoping LYU, Executive Secretary of CAST.
Registration: https://t.co/V3CMApKhUh
#China#Publishing#Future#OpenAccess#SSP2021@Cactusglobal
BREAKING NEWS: It is confirmed... The China Association for Science and Technology (CAST) will have very special presence during our upcoming session at the @ScholarlyPub 43rd Annual Meeting!
Registration: https://t.co/V3CMApKhUh
#China#Publishing#Future#OpenAccess#SSP2021
"The Changing Nature of Research Impact in a Digital World"
...the newest of whitepapers released by Impact Science (a CACTUS Solution).
Download it here: https://t.co/OcXm3ZqkgG
#DigitizeYourResearch and get the recognition it deserves!
#AcademicChatter#PhDlife#Publishing
Persistent identifiers are the key to the "plumbing" of scholarly publishing! They are key to discoverability.
#NISOPlus21 Session: Identifiers, Metadata, and Connections
#Publishing@ImpactSci