sumit

[sumit @sumitsingh200]

@RailMinIndia, @RailwaySeva @AshwiniVaishnaw
Travelling in Chandigarh express 15011 in B1 coach pnr- 2510946171. Facing lots of major issue. No power in charging port. Ac is not working and facing suffocations. Door is not closing properly. Kindly resolve immedialtely

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@ReheSamay The Indian SMA (Spinal Muscular Atrophy) community demands a public apology from u 4 hurting d sentiments of a parent n child battling this life threatening neuromuscular rare disease @MoHFW_INDIA @MSJEGOI @indSupremeCourt @Teensthack @VikasReports @abhijitmajumder

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@karandi65 We hope 2 see reverse innovation in d R&D landscape dat will benefit d society especially in d healthcare sector, right frm diagnosis 2 drug discovery, treatment n beyond. @IndiaDST @narendramodi @DrJitendraSingh @PrinSciAdvGoI @sen_jonaki @abandopa @Director_IITK @TIGS_India

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

All stakeholders 2gether wid patients 2 improve d lives of those who go thru purgatory while battling the one of d most debilitating, progressive n most 'expensive to manage' diseases ever known, #SpinalMuscularAtrophy

[sumit @sumitsingh200]

मेरा ट्विटर मूल्य है: ₹ 6,284.93

➡️ https://t.co/ccM20PkpnL

[sumit @sumitsingh200]

@AnitaSingh_ 🙏🙏❤️❤️

[sumit @sumitsingh200]

@IntrCity waiting at boarding point for last one and half hour with an infant. Bus has technical issues. Refund denied. No certainty on bus arrival. Highly disappointed. Pathetic service. PNR IC593275874472

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@Live_Hindustan
Pls verify facts b4 publishing serious matters about patients living with life threatening disease like #SpinalMuscularAtrophy
We've so many other SMA patients in India as well as Delhi and not just "9". @ArvindKejriwal
@MP_SanjeevArora

https://t.co/xMHvT8yTkD

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAjourney : Witnessing the remarkable progress of 3-year-old Gouri Lakshmi from Kerala with SMA type 2 is truly inspiring! With the help of Zolgensma, her motor skills have improved, breathing and swallowing difficulties have decreased, she's able to sit unassisted for long time & even stands with AFO and confidently enjoying outdoor play. Sending best wishes to this little princess! 👍💐 #SMAawareness #MedicalMiracles

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 29: #Zolgensma offers hope to those with #SMA, but it's crucial to remember: even if treated, individuals can still carry the SMA gene and pass it to their children. Genetic counseling to ensure screening is essential. Knowledge empowers! 💙 #SMA #Zolgensma #GeneticHealth #BattleAgainstSMA

[sumit @sumitsingh200]

@myvoltas @myvoltas I registered a complaint on 11/08/23 wide ref no. 23081020760. Engineer should have visited within 72 hours. Everyday I am calling the service center and they are telling me that it will be done today but still nobody visited yet.I am going to complain at consumer forum

[sumit @sumitsingh200]

@myvoltas I registered a complaint on 11/08/23 wide ref no. 23081020760. Engineer should have visited within 72 hours. Everyday I am calling the service center and they are telling me that it will be done today but still nobody visited yet.I am going to complain at consumer forum

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 4: SMA is complex, & a multidisciplinary healthcare team plays a vital role in our care. From breathing to mobility,they support us in managing this rare disease. Let's appreciate their dedication! 🤝 #BattleAgainstSMA #RareDisease #TeamApproach #SMAcare

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Grateful to Dr. Mary Iype Ma'am @MaryIype45489 for the insightful article "A Panoramic View of Spinal Muscular Atrophy." Use of simple language allows patients & laymen to understand this complex condition better. Thank you for spreading awareness & empowering us! #SMAAwareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

🚨 Urgent Appeal 🚨
@Sarmisthaprita1 desperately needs #Risdiplam to halt #SMA progression. After tirelessly fundraising for a year, she has exhausted her resources.
Requesting support from the government to continue her treatment #BattleAgainstSMA #SMAwarrior #HealthForAll

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

She is one of the most active #SMArtwarrior who had effectively worked in raising awareness about #SMA and the urgency to make the medicines available for all #SMAwarriors in India.
@pradyutbordoloi @keshab_mahanta @himantabiswa
@AmitabhBora7 @robin_ips
@rocheindia

[Archana Vashist Panda @PandaVashist]

@Sarmisthaprita1 is an asset 2 Assam, pls support her treatment @himantabiswa @keshab_mahanta @nhm_assam @narendramodi @pradyutbordoloi @IndianOilcl @OilIndiaLimited @ONGC_ @cement_cci @bvfclnamrup @IOCL_Assam @h_reep @AssamStories @News18Northeast @ddnews_guwahati @Roche

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@karandi65 @IITKanpur @reliancegroup @paniitindia Congrats n tks @IITKanpur 4 taking interest in much neglected hereditary diseases n yr r&d in #genetherapy. 1st #genetherapy is developed n approved by US FDA 4 #spinalmuscularatrophy by @Novartis. V hope there will b more options n soluns 4 neglected diseases in future 🤞🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Our sincere thanks to the Govt. of Kerala @KeralaHealth @VeenaGeorge03 for this assistance for our #SMA affected warriors to correct the scoliosis at TVM MCH, one of the best hospitals 🙏 This surgery improves the quality of life & functionality of #SMAwarriors ! #gratitude

[. Subhash kumar @Subhash44690696]

@Spanda3000 @Spanda3000 Save the children, Honorable Sir, this is the hope from you and I am sure that you will intervene and will take the matter to our Chief Minister, will understand the pain, we have this hope from you for the sake of humanity.