@ ELIXIR, KCL, HDRUK, NHS & WHO. Working towards FAIR & secure research access to biological & health data; Advocate of openness, innovation & access for all
🙌 A case study from @PathOS_EU project has demonstrated the value and impact of @uniprot, the universal protein resource. 💪 Findings of this case study strengthen the case for sustainable funding for 🌍 global #openscience resources.
Read the news: https://t.co/BJ2VnzA16n
Recent policy changes have led to disruptions to the support of internationally shared #opendata infrastructures.
ELIXIR’s position paper recommends: 🌍 Europe invest in open data as a critical enabler of innovation 👉 https://t.co/0RDiMtS9kB
#OpenScience#Science4EU
Congratulations to @profadmorris, Director of @HDR_UK, on his election as President of the UK Academy of Medical Sciences @acmedsci https://t.co/xKvcYtb4n3 https://t.co/4nCtQ2XSpD
Honoured to be appointed Director of @ELIXIREurope - the European life sciences data infrastructure. Looking forward to joining the vibrant community that has been built up during @NBlomberg leadership #ELIXIR#ESFRI
📣 The ELIXIR Board has appointed Tim Hubbard as the next ELIXIR Director. Tim brings a wealth of scientific, technical and management experience and will take up his position in March 2024.
Read the news 👉 https://t.co/4mR5Xe051Y
We are excited to invite you to our annual #HDRUKConf24 on 5 and 6 March 2024 in Leeds. 🎉
This free two-day, hybrid event will celebrate progress and bring people together to accelerate the trustworthy use of health data for public benefit.
Register: https://t.co/mCizSs4eI6
Great opportunity to join Dept of Medical and Molecular Genetics at @KingsCollegeLon - right in the centre of London, on the Guy's Campus next to the Shard and London Bridge!
🚨🧬 Job alert!!! 🧬🚨
Lecturer/Senior Lecturer in the Dept of Medical and Molecular Genetics @KCLBMBioscience
A great opportunity to work alongside many thriving research groups focussing on the genetic mechanisms of disease in the heart of London! https://t.co/fv16ErQPYw
Great first meeting of @WHO Technical Advisory Group on Genomics (TAG-G) https://t.co/FpOdrCPMd4 created following WHO Science Council report on accelerating access to genomics for global health https://t.co/Q4mivoLxeO #WHO75
Another fantastic session wrapping up at the Digital Maturity Forum: ‘Intelligent Clinical Decision Support: Pharmacogenetics and Genomics as a Digital Service’. What key points did you take away from this discussion?
@M_YousafAhmad, @VickyChaplin3, @timjph, @VidehaSharma
Great opportunity to oversea the development of the largest of the new NHS Sub-National Secure Data Environments, to securely support research and direct healthcare improvements - last chance to apply, shortlisting soon! #datasaveslives#snsde#nhstransform
Now recruiting: Managing Director for London SDE
As the capital develops one of the world’s largest Real World Evidence assets, the London SDE is recruiting a Managing Director to oversee its development.
Find out more: https://t.co/lprSx2hCJH
#RWE
Still plenty to do interpreting whole genomes for rare disease as I discuss. Want to contribute to @CAGInews, Genome Interpretation equivalent of the #CASP competition? Looking for Postdoc Fellow to design challenges using the @GenomicsEngland data and TRE https://t.co/bWRTEuKZeP
My take on wider impact of health data infrastructure designed to support care and research, built to support @GenomicsEngland and others over the last 10 years and now adopted by @NHSEngland@NHSTransform - privacy via data access not data distribution #NHS75#ourDNAdecade
My take on wider impact of health data infrastructure designed to support care and research, built to support @GenomicsEngland and others over the last 10 years and now adopted by @NHSEngland@NHSTransform - privacy via data access not data distribution #NHS75#ourDNAdecade
As the NHS marks its 75th anniversary, and @GenomicsEngland turns 10, @timjph explores how the convergence of genomics, medicine, research and infrastructure is framing a data driven future for healthcare! 💙
#NHS75#ourDNAdecade
https://t.co/ZM9ENmVKBg
A recognised strength of the 100,000 genomes project has been the strong ethics and oversight mechanisms, including the permanently established participant panel https://t.co/t0XcM91prK - @genomicsengland is now looking for members and chairs of two key oversight committees
Two of our vital advisory committees are getting a refresh and seeking new members and chairs 👉 https://t.co/acLoZGaDD2
As a member, you'll help us grapple with some of the complexities of working at the interface between clinical care and advancing genomic research.
@NHSEngland & @HDR_UK Alliance are doing a joint survey to understand UK adoption of the #OMOP Common Data Model (CDM) for NHS data and inform future plans. Help us to understand how we can improve the use of health data for R&D:
https://t.co/3VFHGHyuAZ
One year on from announcement of NHS policy of supporting health data research via access to Secure Data Environments (SDEs), a.k.a. Trusted Research Environments (TREs) #UnderstandingPatientData on where we are we now: https://t.co/cO71Ko8tGl via @Patient_Data
The Genomics England Research Summit is back!🧬 In person, in London, on 19 September. Register early to secure your seat and hear the latest in cancer and rare disease genomics - https://t.co/NDvbJN2kLZ
#GERS2023
The successful projects are being paired with policy analysts working in @DHSCgovuk, @ONS, and @UKHSA to ensure that the results benefit both patients and NHS staff through their rapid influence on healthcare policy.