Mary Garrido

Wife, mother, teacher, ME/CFS fighter and STILL I RISE

[Mary Garrido @3boyzzforme]

Check out @NotTheWhiskey's WHEN FORCE MEETS FATE: A Memoir of Strength on @inkshares: https://t.co/9cLHoZ8aQA undefined. Please read this link. Let’s help get this book published!

[Mary Garrido @3boyzzforme]

@EdEllisonMD @cnnhealth @ToddSachsMD @NancyGinMD @RSnipesMD @DrFrankFlowers1 @72andSunny @umiamimedicine @RichLouv I love to walk, too! Unfortunately, #MECFS has taken that joy from me. I’ve been sick for 5+ years. #KaiserPermanente has only 1 Dr in the entire network who is knowledgeable and trying to help us. WHEN will #kaiser do more? @PermanenteDocs @NancyGinMD @DrRichardIsaacs

[Janet Dafoe @JanetDafoe]

Nanoneedle update: What’s in the blood? I posted on Phoenix Rising https://t.co/IyGHJUn78j

[Mary Garrido @3boyzzforme]

@JanetDafoe I’m sending all the love I have to Ron and everyone working on this💙

[Mary Garrido @3boyzzforme]

@KPMemberService Thank you I will do so

[Mary Garrido @3boyzzforme]

@KPMemberService Thank you Jon @KPMemberService. Is there a particular person I should CC? Someone who can truly take action to help me? Because past experiences with @KPMemberService have gotten me nowhere. @PermanenteDocs @NancyGinMD @DrRichardIsaacs

[Mary Garrido @3boyzzforme]

@PermanenteDocs @NancyGinMD @KPMemberService I will try contacting member services again. I will read this tweet to them. Maybe this time I will be able to break through the wall that keeps patients from certain physicians.

[Mary Garrido @3boyzzforme]

@PermanenteDocs @DrRichardIsaacs @KPMemberService I will try again. I will read this tweet to the member services rep. Maybe it will help me to break down the wall that is between patients and certain physicians.

[Mary Garrido @3boyzzforme]

@PermanenteDocs @NancyGinMD @KPMemberService @PermanenteDocs thank you for the suggestion. I have spoken with member services. They are not able to help me contact any physician who is not on my personal kp provider list. How else can I speak to @NancyGinMD?

[Mary Garrido @3boyzzforme]

@PermanenteDocs @DrRichardIsaacs @KPMemberService @PermanenteDocs @DrRichardIsaacs Thank you for the recommendation. I have spoken to member services multiple times and they are not able to help me contact physicians who are not on my personal kp provider list. I get the run around.

[Mary Garrido @3boyzzforme]

@DrRichardIsaacs I agree with you. I would like to discuss the lack of appropriate medical treatment I am experiencing and brainstorm solutions to the problems. How and when can I speak to you?

[PermanenteDoctors @PermanenteDocs]

Permanente Federation co-CEO @DrRichardIsaacs on why we need physician leaders to help transform health care in America. #PermMedLeads

[Mary Garrido @3boyzzforme]

@NancyGinMD @PermanenteDocs @aboutKP @EdEllisonMD I would like the opportunity to speak to Dr Gin as she seems like a knowledgeable and compassionate physician. How and when can I speak with her?

[PermanenteDoctors @PermanenteDocs]

Learn more about our Chief Quality Officer @NancyGinMD and what drives her passion for high-quality care for patients. https://t.co/YZ9r8elNsD #PermMedQuality

[Mary Garrido @3boyzzforme]

@NancyGinMD @PermanenteDocs @aboutKP @NancyGinMD this is a very good article and you seem like a wonderful, dedicated physician. I would like the opportunity to speak with you about the lack of appropriate medical treatment I am experiencing. How and when is best to contact you? Thank you.

[Kaiser ME Neglect @KaiserMEneglect]

@LizSzabo @BrossardEmily @LKee_1111 @3boyzzforme @kpthrive @cmgrant @choucair @DrRichardIsaacs @jenbrea @AtomicWife @MEActNet @By_CJewett @lauriemcginley2 @lizhamel @larry_levitt @daniellegrilli @OpenMedF @CADMHC @CMSGov @GavinNewsom @TheEDSociety @latimeshealth @BatemanHorne @ngklimas @KHNews @KFF Hey, Liz, it's an easy mistake to make.

Maybe you should cover the story--that approximately 100,000 severely ill Kaiser Permanente patients who have myalgic encephalomyelitis/chronic fatigue syndrome are receiving no care from Kaiser.

Prisoners of war get better medical care.

[Mary Garrido @3boyzzforme]

@DrRichardIsaacs @aboutKP @DrRichardIsaacs I would like to talk to you and find a way to provide me with appropriate medical treatment for my dx disease. I am available to talk anytime because I am unable to work or take care of my family/home. Anytime. #callme

[Kaiser ME Neglect @KaiserMEneglect]

@PermanenteDocs @EdEllisonMD But YOU DON'T DO THIS, Dr. Ellison. Stop misinforming people.

You DO NOT provide medical care for the 100,000 severely ill Kaiser patients who have myalgic encephalomyelitis/chronic fatigue syndrome.

Prisoners of war get better medical care.

@TJCommission @OIGatHHS @CADMHC @AP

[Mary Garrido @3boyzzforme]

What about #ME? WHEN will #KaiserPermanente do the right thing for PeME? @NancyGinMD @cmgrant @PermanenteDocs @EdEllisonMD @NIHDirector @choucair @aboutKP @KPCommHealth @kpthrive I and others have been denied access to specialists who can help us. WHEN?

[Mary Garrido @3boyzzforme]

@cmgrant @EdEllisonMD This is a joke, right? #KaiserPermanente ignores patients with #ME/CFS, denies out of network referrals to specialists in this disease, has one Dr even remotely interested- who is retiring soon- WHEN will #Kaiser do right by PwME? @PermanenteDocs @EdEllisonMD