Emily Chatelet Brossard

Research Analyst, Patient Advocacy for ME/CFS and related Cluster Illnesses, Biochemistry Research, ME/CFS Protocols Project

[Saganism @Saganismm]

“The measure of your education is that you acquire some idea of the extent of your ignorance.”

— Christopher Hitchens

[🕸️Dr.T, PhD @chydorina]

No wonder right? These clumps in the blood must be doing something!

Fibrinaloid microclots (amyloid, fibrinolysis-resistant fibrin(ogen) fragments) seen during flow cytometry in healthy normals, #MECFS, and #LongCovid

Flow Clotometry: Measuring Amyloid Microclots in ME/CFS, Long COVID, and Healthy Samples with Imaging Flow Cytometry (2024)

[Emily Chatelet Brossard @EmilyCBrossard]

@scott_scientist Audio problem here too till I expanded the window and saw "start listening."

[Emily Chatelet Brossard @EmilyCBrossard]

@Naomi_D_Harvey Not buying this, yet. Did anyone find any numbers that show the actual percentage of SARS2 virus reduction in this in vitro study? Lots of graphs, need numbers. Also concerned authors' research foundation is too connected to Big Pharma, w/ the goal of selling more antihistamines.

[Emily Chatelet Brossard @EmilyCBrossard]

WOW.

[Biomedics MECFS @BiomedicsMECFS]

Unbelievable.
Stanford Medical's Dr. Anna Lembke on
Chronic Pain:
"This probably a spiritual problem. We can't help your pain. Don't go see a doctor."

@StanfordMed @MedBoardOfCA @DMHC @CMSGov @OpenMedF @dysclinic @NYTHealth

#MECFS #POTS #ehlers #MCAS
https://t.co/0y6xAqNoey

[Emily Chatelet Brossard @EmilyCBrossard]

@JanetDafoe She sensed his gentle presence.
Perhaps saw a comrade in his grey hair.

[Emily Chatelet Brossard @EmilyCBrossard]

@OtrPat @dr_todd Viruses, too, poke holes in the intestinal lining, allowing bacteria to leak out, but viruses also poke holes in the Blood Brain Barrier, allowing gut bacteria, other viruses, + even white blood cells to enter the brain. Not pretty.

#MCAS #MECFS #pwME #LongCovid

[Emily Chatelet Brossard @EmilyCBrossard]

@SallyDillehay @dr_todd Hematologist or immunologist.

You'll need to screen the physician for current expertise in Mast Cell Spectrum Disorders, so ask abt conferences, seminars, current CME credits,
in MCAD in the last year.

BTW, the testing listed is tricky and not the current way to test for MCAD.

[Emily Chatelet Brossard @EmilyCBrossard]

@PJPrydderch @ruminatiins You can get one of those new overnight EEG elastic headband sleep monitors that has an attached SpO2 "watch" from your doctor. You just wear it on your forehead for 3 nights in a row, and upload the data via a USB-c cable. Easy.

[Emily Chatelet Brossard @EmilyCBrossard]

@PJPrydderch @ruminatiins In addition to RLS, also consider periodic limb movement disorder (PLMD).

It seems at night the brain sends out these crazy nerve signals. I think the leg jerks might be a symptom of small fiber neuropathy or some sort of demyelination of the nerves in the legs.

[Emily Chatelet Brossard @EmilyCBrossard]

@WildNycgirl Does Sub-q IG make IVIG much more accessible and affordable for patients? Doctors say so.

Is the effect on the body much more tolerable?
Lauren Stiles of @Dysautonomia Intl thinks so.

Listen:
https://t.co/4HBdNKRIPW

#POTS #MECFS #LongCovid #pwME

[Emily Chatelet Brossard @EmilyCBrossard]

.
Astonishingly good interview with @LaurenStiles
of @Dysautonomia International and @CortJohnson on #POTS, #LongCovid, #MECFS, #Sjogren 's, the idiocy of RECOVER (@SecBecerra, @POTUS), gaslighting, testing, and more.

Gritty, human, easy to listen to.
https://t.co/EB1zcD0ECo

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

As neurologists, we should be talking about this non-stop, but all I hear on this topic from major neurology organizations is a whole lot of nothing...

#BrainHealth #Covid #NeuroTwitter

[Frau𝕏ausNRW 🍋 @FrauXausNRW]

Organizing the #UniteToFight2024 conference has been a challenging yet incredibly rewarding journey. Our amazing team of 5 individuals affected by #LongCovid & #MECFS poured their hearts and souls into the preparation, despite experiencing #PEM (Post-Exertional Malaise) throughout the three months leading up to the event. The stress and hustle were palpable, but so were the moments of sheer joy and excitement as we saw our vision coming to life.

There was a lingering fear that things might go awry, but the unwavering support of our wonderful community kept us going. And when the day finally arrived yesterday and we welcomed over 35 of the world's most renowned scientists to share their insights and knowledge, it felt like a dream come true. Their brilliant presentations not only enriched the conference but also validated all the hard work and dedication that went into making this project a reality.

I hope we were able to build bridges through the conference that we so urgently need!

#UniteToFight2024 #LongCovid #MECFS

Thank you so much !!!

@Karl_Lauterbach @MarieThereseBka @ChantalBritt @edyong209 @mvankerkhove @senatorjordon @stankutcher @daltmann10 @johanvawe @c_scheibenbogen @robwust @resiapretorius @ProfSchieffer @ANKoppes @oonagh_cousins @WailofaTale @v_puntmann @microbeminded2 @weselymd @virusesimmunity @RonDavis @tessfalor @isabelramirezrd @sunsopeningband @drMark_Faghy

[PolyBio @polybioRF]

Wanted to highlight that our Symposium this Friday has a Q&A at the end of each hour. So come ask questions about the projects & trials discussed!

Schedule & registration here: https://t.co/wtzR0d16Zk

[Emily Chatelet Brossard @EmilyCBrossard]

.
Everytime I listen to Amy Proal PhD of @polybioRF speak on #LongCOVID + #MECFS, as I did today at #UnitetoFight2024, I'm struck by her clear grasp of *current* science, energy +brilliance.

FUND HER, @POTUS @SecBecerra @HHSGov
She should direct US viral illness programs.

[Emily Chatelet Brossard @EmilyCBrossard]

David Putrino @PutrinoLab knocked it out of the park today at the #UnitetoFight2024 Conference.

His talk was dynamic, scientifically advanced, and — most important — provided a path forward to make fast progress, instead of @CDCgov's harmfully slow approach.

#LongCOVID #MECFS

[Mady Hornig, MA, MD @mhornig]

We not only need docs to register ICD10 codes of U09.9 to document #LongCOVID, we must equip them with the tools to make the diagnosis in the first place. (Same for #MECFS recognition and registration of its newer G93.32 ICD code).

[Emily Chatelet Brossard @EmilyCBrossard]

I admire Jarred Younger greatly.

Whoever wrote this headlines for his Youtube video is overpromising. Not only that, it uses sensational "sales pitch" language.

Please keep the language scientific.
Hype destroys credibility.

@UNeurobiology
@UABNews

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

‼️ “The NIH study shows how much is altered in these individuals, with respect to pathophysiology,” Dr. Blitshteyn added. “Based on their data, #MECFS is clearly a CNS disorder, and fatigue is defined by autonomic dysfunction unrelated to psychological or psychiatric causes.”