Heather Marriott

MND Association Lady Edith Wolfson Junior Non-Clinical Fellow @neuroshef 🧠 | All views are my own.
she/they 🌈

[Heather Marriott @HevMarriott]

Really happy to see this paper out just in time for Christmas🌟! We identified and confirmed three biological subgroups of sporadic ALS (neuronal signalling, oxidative stress, neuroinflammation) by analysing brain and blood samples with several machine learning approaches.

[Alfredo Iacoangeli @AlfredoIacoange]

Many congrats to @HevMarriott in our latest work https://t.co/5jJiP3r9MB we derive a robust model to identify ALS molecular subtypes using gene expression, setting potential basis for a personalised approach to ALS research @AmmarAlChalabi @kingsmnd @phidatalab @KCLDriveHealth

[Heather Marriott @HevMarriott]

After a difficult year, I'm happy to share I will remain working with @mndassoc , at SITraN! A huge thank you to my sponsors @J9Kirby , @jennagregory488 and @AhmadAlKhleifat and to everybody at KCL who brought me to where I am today.

[MND Research @mndresearch]

📢New Year, New Non-Clinical Fellowships! 📢

This year, we are welcoming six new #MND #ALS Non-Clinical Fellows to our incredible team of more than 320 scientists involved in research grants funded by #mndassoc.

This is the highest number of Fellowships we have ever awarded in one year!

Meet our new Fellows in our blog👇
https://t.co/OTy6sdH3i9

[MND Research @mndresearch]

Our most read blog in 2025 was from our Back to Basics blog series!

It looked into what DNA is and how it might play a role in #ALS #MND 🧬

Read the blog ⬇️
https://t.co/fZckv8sPE4

[Prof Jenna Gregory @jennagregory488]

🧠New preprint: Neurodegeneration-associated proteinopathies aren't confined to the brain, they can be detected in routine GI biopsies, years before symptom onset. @TatianaLanger @GregoryLab7 @FergalWaldron @Watsoninverness

https://t.co/Dh4i8lQatJ

[David Setters @dsetters]

Unbelievable that @MNDPatients don't automatically qualify for a Covid booster this autumn! We all know where #MND leads. However, some are getting it easily, others with a fight & some are flatly refused. Pls sign this petition & share https://t.co/uo1FUmBFdU
@mndcampaigns

[Jennie Starkey @StarkeyJennie]

Today marks 4yrs since diagnosis & 5 yrs/4mnth since 1st symptom.

This past yr I’ve experienced a winter of back to back viruses, 1 failed drug trial, 1 withdrawal from a drug trial due to adverse reaction & shedding of 1.5 stone in weight
1/ of many (see comments for full post)

[Jon Stone @jonstoneneuro]

New NHS England Neurology Service specification.

✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.

This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/

https://t.co/XvGo0NIryA

[KimH @KH118118]

🎉 Huge news for the #FND community! NHS England’s new adult neurology service specs officially include Functional Neurological Disorder - with specialist clinics, MDT care, mental health support, and access to research now part of the standard pathway.

[UK MND Research Institute @UKMNDRI]

The first treatment for a form of #MND/#ALS has been approved in the UK.

#Tofersen is now authorised for SOD1 MND, demonstrating the potential of gene-targeted therapies.

@UKMNDRI RI partners @sheffielduni & @KingsIoPPN contributed to the trials.

https://t.co/8Xmy3ufcoP

[Louise Marston @MarstonLouise]

Outcomes of specialist physiotherapy for functional motor disorder: the Physio4FMD RCT NIHR report out today https://t.co/wVprkGozrq @GNielsen_Physio @UCL_PCPH @PRIMENT_UCL @jonstoneneuro

[Heather Marriott @HevMarriott]

Hello everyone, I'm swimming to raise money for the MNDA, and donations and words of support are very welcome 😄! This is also a personal challenge as I'm a new swimmer and was recently diagnosed with FND - swimming greatly improves my mobility. https://t.co/9vK2RjM5vY

[Tom Plender @TomPlender]

#FND

[@BrainComms @braincomms]

P A van Eijk et al. report that a trimetazidine trial for ALS showed it was safe and well-tolerated. It reduced oxidative stress markers and resting energy expenditure, suggesting potential for further study. Read at:https://t.co/BJlKR4sHKG @rpavaneijk @Fred_Steyn @AmmarAlChalab

[MND Research @mndresearch]

📣 ICYMI – applications for #MNDEnCouRageUK are now open!

If you are an #MND #ALS early career researcher, join us to network with the MND community, share research and develop new skills.

Places are limited!

Apply today ⬇️
https://t.co/X6Pwv8UZE4

[Lizzie Dellar @LizzieDellar]

Come and work with me! Research position open to work on isolation of #extracellular #vesicles for biomarker discovery in #ALS #MND. See link for more details, and reach out if you have questions. https://t.co/kasvtcyo33

[Heather Marriott @HevMarriott]

Yesterday I officially graduated with a PhD in Clinical Neuroscience from KCL 💻🧬. 2 months ago I didn't think I'd be able to attend the ceremony and walk across the stage, but the incredible support of my family, friends and colleagues made this possible! Onwards and upwards 🎉

[Jon Stone @jonstoneneuro]

Iatrogenic harm in FND – new review article @Brain1878 very much the work of Caoimhe McLoughlin – a short thread. https://t.co/CAH7a1VOjF 1/

[MND Association @mndassoc]

S U C C E S S 👏

We're delighted to share that the National Institute for Health & Care Excellence (NICE) has announced that it has reconsidered its routing decision for Tofersen, an effective drug for SOD1 #MND.

Over 15,000 of you signed our petition.

This is your victory.

[jemeen sreedharan @JemeenSreed]

Indeed this is an awful decision and makes a mockery of all of our science. I’ve signed and have been spreading the word. We have to fight this so we can fight MND

[MND Association @mndassoc]

Right drug. Wrong route to approval.

We are calling on @NICEComms to make an exception to its normal criteria and appraise Tofersen.

Sign and share our petition: https://t.co/ZifWXqYZbE

#PrescribeLife

[Dementia Researcher @demrescommunity]

🎧 New #Podcast! Join @volkmer_anna, @aitanasogorb, and Dr Martyna Matuszyk as they break down the highlights from the #ISFTD24 Conference. Get the latest on fluid biomarkers, therapies, diagnosis, cognitive resilience & more! 🌍🧠

https://t.co/B4hwWfSiaL