Kennedy's Cause

501(c)(3) non-profit. raising funds & awareness for Lymphatic/Vascular Malformation. inner beauty is all that truly matters. motto- be kind. be proud. SHINE

[LGD Alliance Europe @LGDA_EU]

@KimSteeleMD @LGDAlliance @LymphaticNet @KennedysCause @CLOVESSyndrome @GoPI3Ks @WonderFILsmiles @projectfava @_allstripes @KimSteeleMD Great idea to get educated. EU doctors and scientists of the VASCA working group also have written a formal statement on vaccinations https://t.co/PapLDn95gL @vascern @LGDAlliance @LymphaticNet @CLOVESSyndrome @GoPI3Ks @WonderFILsmiles @projectfava

[KDelmar @ajerzygrl]

@JohnsCrazySocks Lymphatic Awareness Socks , lymphatic malformation... check out Kennedy’s Cause @KennedysCause , this cause is doing great things!

[Nemours Children's Health @Nemours]

Halloween is on at a Nemours/Alfred I. duPont Hospital for Children! Each day this week our patients were treated to special #SpookySeason programming on our CCTV network and in-room visits with lots of #Halloween surprises.

[Zac’s Attack for a Cure @zacs_attack]

Show me the tally board Ed! Add another big donation, bringing the total to $920 donated to @LymphaticNet !!! Let’s gooooo!!! #lymphaticmalformation #attackthecure

[Changing Faces @FaceEquality]

We stand in solidarity with @littlelizziev. Using an image of someone with a visible difference for a ‘FaceTime prank’ on TikTok is never okay. We urge @tiktok_uk to uphold their community rules. Difference should be celebrated. https://t.co/EgxXPISFwA

[Nemours Children's Health @Nemours]

Our Child Life department is hosting virtual Summer Camp this week filled with activities for inpatients to stream on their TVs. Today was 'Around the World Day' filled with making crafts from different countries, making banana sushi, and learning the #Hula. #CampWeBelong2020

[CLOVES Syndrome Community @CLOVESSyndrome]

Today August 3rd is #CLOVESAwarenessDay
Please like and share our posts to help us raise awareness for research, support and education.
#PIK3CAOvergrowthSpectrum #ResearchIsKey

[CLOVES Syndrome Community @CLOVESSyndrome]

"I want doctors and researchers to know that side effects of medications can impact my quality of life, just as much as my rare disease does."

#CLOVESAwarenessDay #ResearchIsKey #ILoveSomeoneWithCLOVES #RareAsOne

[Nemours Children's Health @Nemours]

It’s Opening Day! Did you know Nemours is the Official Children’s Health System of the Philadelphia Phillies? Tune in to Nemours Opening Day, today, July 24th, with our @Phillies taking on the Miami Marlins. You might even see some #HealthCareHeroes in the stands! 😉 ⚾

[Zac’s Attack for a Cure @zacs_attack]

To commemorate this new (and odd) start to the baseball season, Here are some cool pics with @JoseAltuve27 and @KMillar15 - now if they would just do my podcast to talk charities and baseball! ;) Let’s PLAY BALL! #lymphaticmalformation #COVID19 #Astros #gotheem #intentionaltalk

[Boston Children's @BostonChildrens]

Boston Children's Vascular Anomalies Center was recently named a Comprehensive Center of Excellence in the Treatment of Lymphatic Diseases. Learn more: https://t.co/7oxWSGiXoi

[RJ Palacio @RJPalacio]

People asking on Twitter if anyone actually knows someone who's had COVID is infuriating. For the record: two friends have lost their dads; one lost her mom; about 12 people I know have been sick, inc 3 hospitalized and 3 who still have no sense of smell after 60+days. #wearamask

[Dr. Vin Gupta @VinGuptaMD]

When “experts” say that #COVID19 doesn’t exist on surfaces so don’t worry so much about hand hygiene, or when ⁦@VP⁩ says ppl like me have overblown this crisis, ignore them. I’m about to place a large needle into a 30 year old with covid on life support. We are all at risk.

[Nemours Children's Health @Nemours]

Love + Care = Happiness ❤️

[RJ Palacio @RJPalacio]

Kindness is wearing a mask. Choose kind, people.

[Boston Children's @BostonChildrens]

As we continue to address the #COVID19 pandemic and begin to move forward, tune in to a special message from our CEO, Sandra L. Fenwick. Learn more about our plans to keep you and your family safe, while providing the same exceptional care you expect: https://t.co/VaNYaIL3Lx

[Rare Diseases Clinical Research Network @rarediseasesnet]

#RareDisease patients & caregivers needed! Please respond from home to a 20-minute online research survey about how the #coronavirus pandemic is impacting you. Complete this survey from @NIH-funded @rarediseasesnet or learn more at https://t.co/Xt7j22Tu6H @ncats_nih_gov #COVID19

[Taizo Nakano @NucleatedRBC]

Exciting announcement by editor-in-chief Dr. Richter, @DrPedsoto, of the new "Journal of Vascular Anomalies" during Day 2 of the @ISSVA1992 #VascularAnomalies Virtual Workshop. #JOVA, the new home for #RareDisease

[Zac’s Attack for a Cure @zacs_attack]

Today, May 15th, is Lymphatic Malformation Awareness Day. Please join me in being an advocate for awareness and research. #lymphaticmalformation #attackthecure

[Kennedy's Cause @KennedysCause]

https://t.co/yJ9E5ZnAps @KKHubbaBubba