@PPIEglobal #GlobalHealthDialogue #PPIE

Creator FRSA. Frm MacArthur Fellow; VR Fellow KCL; @CombatAmrOrg @AgeofthePhage @WAI_WomenAid @PidaRipley
#WorldPhageWeek -see linked websites.

[@PPIEglobal #GlobalHealthDialogue #PPIE @PPIEglobal]

Poor quality medical records are dangerous re #patientsafety! #LongCovid is a major public health issue that is under-reported, under-counted, under-recognized and under-treated. #cardiotwitter #medtwitter #PPIE #PPI

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Working today due to an overflow of patients and here is a very important case:
👉 49-year-old old previously healthy man who ends up with #NSTEMI. Cardiac cath is negative, he is discharged on a beta blocker only.
👉 Following this event, he developed daily symptoms of headache, paresthesia, presyncope, dyspnea and fatigue.
👉 I asked him if he had Covid in the weeks preceding this: sure enough he did - about 12 weeks before the heart attack.
👉 I reviewed all medical records, including from a university hospital in the South ➡️ no mention of #COVID_19 or post-Covid conditions anywhere.
👉 Treatment of this patient did not include any management of #LongCovid and post-Covid cardiovascular conditions.

What do we learn from this case?
🫀 Cardiovascular, autonomic and neurologic manifestations of #Covid are widespread and are often not recognized or coded as such ➡️ will not be tracked in the electronic medical records.
🧠 People are having heart attacks, strokes and blood clots at a young age, which are not counted as post-Covid sequelae ➡️ thus, the real incidence and prevalence of Long Covid and post-Covid conditions are largely underestimated.
💊 Patients are not started on aspirin because "there is no blockage in the arteries," but many patients are in hypercoagulable state (his d-dimer on admission was high) ➡️ at least a daily aspirin might be beneficial
‼️ #LongCovid is a major public health issue that is under-reported, under-counted, under-recognized and under-treated.

#MedTwitter #CardioTwitter #NeuroTwitter

[@PPIEglobal #GlobalHealthDialogue #PPIE @PPIEglobal]

... slowly, the evidence is building. Meanwhile many are struggling to cope with dramatic changes to their health.
Thinking and praying for of ALL #LongCovid struggling survivors this morning. @PidaRipley @WAI_WomenAid

[Billy Hanlon @bhanlon15]

Imperial College of London: 'Long COVID leaves telltale traces in the blood'

'People with long COVID have distinct patterns of inflammation detectable in the blood, which could potentially be targeted with immune therapies.'

https://t.co/mzTtNKQO1S

[@PPIEglobal #GlobalHealthDialogue #PPIE @PPIEglobal]

... an evolving area - so essential to have serious guidance from @NIHRinvolvement #PPIE #PPI

[NIHR Involvement @NIHRinvolvement]

How do we define the impact of public involvement in research? How can we monitor it, evaluate it and learn from it?

Take a look at our new topic page on Learning for Involvement to learn more:
https://t.co/lzIlcUumCj

[Evidence Synthesis Ireland @EvidSynIRL]

We co-developed a series of 4 short (<3min) videos that explain the key steps in a systematic review, to a public/patient audience, HCPs & students

You can view them for free, here:
https://t.co/YfkDtu6ZxG

[NIHR Involvement @NIHRinvolvement]

Public contributors are often actively engaged in the early stages of research, yet overlooked when it comes to disseminating & implementing findings.

Our Collection makes the case for working with members of the public at every stage of research: https://t.co/BVpKuN7v5e

[Jaspreet Sohal 🐝🧣 @jassij1984]

Well done to this coroner for issuing the prevention of future deaths report to @NHSEngland⁩ rather than the Trust. The lack of psychiatric beds is a national scandal that hardly anyone is talking about. https://t.co/JbzFwB7ZnH

[✨ Donna Hall ✨ @ProfDonnaHall]

Cuts to prevention like child & family support, domestic violence, homelessness will only increase demand in both short & long term. The real cost lies in the gaps between services, repeated assessment, referrals & system reactivity. Massive change needed! https://t.co/CaxDggoVG8

[Thyroid Federation @ThyroidFed]

In children and adolescents, consequences of undertreatment or no #treatment of #hypothyroidism in children are poor growth and development, poor performance at school. These may be reversible in children and adolescents if hypothyroidism is treated early with #levothyroxine.

[Keele University Impact Accelerator Unit @KeeleIAU]

We're delighted to see the publication of this impact report from Versus Arthritis, highlighting the work of the Primary Care Centre here at Keele University and featuring how the Impact Accelerator Unit works towards closing the gap between research and patient benefit 👇👇

[Elisabetta Biasin @bisilisib]

Thanks to @BruiningNico and Robert van den Boon for the opportunity to contribute. The article is available in the European Heart Journal - Digital Health (@ESC_Journals x @OUPAcademic), OA, at this link: https://t.co/g8v6Gup489

[Mind @MindCharity]

It’s not always obvious if someone is struggling with their mental health.
Be kind - you never know what’s going on in someone’s life.

And share this post to help us raise awareness 💙

[TheUrologyFoundation @TUF_tweets]

Do you experience UTIs? We want to hear from you! We're exploring the future of #urinarytractinfection research and we'd love you to help us shape the future of #UTI care. It could be that you attend a meeting or share your views by phone/email #urology #patientexperience

[Linda Hunter Retired Nurse, MScN, PhD (C) @lhunter1310]

With Alt text added! Please share!

[Dr. Ashley Gluchowski, CSEP-CEP, CSPS @STRONGERwithAGE]

🤷🏻‍♀️🤷🏻‍♀️🤷🏻‍♀️Why do we need a strength training awareness day?

Myself and the strength training academic giants before me have found that -

1. The general public are mostly unaware of strength guidelines and what ‘counts’ as strength training (our science communication needs to improve in this area, @jacksonfyfe has a newsletter and @mackinprof is prolific on social media to help in this area)

2. Some exercise instructors are also unaware of guidelines and how important progressive strength training is for all ages and abilities (@BexTownley and @LaterLifeTrain are working on it)

3. Not all health care professionals feel confident or comfortable discussing the benefits of strength with patients (clinical exercise physiologists @csep_scpe @ClinExPhysUK @CEPAupdates could play a BIG role here)

4. There is room for improvement in the implementation, sustainability, and scale of evidence-based progressive strength training in community settings (projects @STARTwSTRENGTH and @STRONGERaHOME are looking to help here!)

#STAD2024

Together, we are all #StrongEnough to make a change 💪🏻💪🏻💪🏻

[The RCN @theRCN]

On national TV, the Prime Minister claimed to have 'resolved' the nursing pay dispute.

This is untrue.

We remain in a formal trade dispute and the government is late with its award for this year.

A letter from @patcullen9 to PM @RishiSunak. 👇

[Project Endo @projectendo]

Over 90% of #women diagnosed with endometriosis actually present with #GIsymptoms as their initial symptoms.

Bloating is the most common presenting symptom, and is typically reported by 83% of women with #endometriosis.

[@PPIEglobal #GlobalHealthDialogue #PPIE @PPIEglobal]

I think citizens ought to be very concerned over the appointment to NHSE Board of Mark Bailie (-career of senior leadership in banking, financial & digital services) who worked alongside the NHS on setting up NHS TEST and TRACE during the pandemic! A £37 billion dodgy disaster.

[alf collins @alf_collins]

How can this be right? NHSE Board is full of bankers and people with a secondary care background. No patient rep, no primary care rep, no social scientist, no anthropologist etc etc. Leadership body for most expensive public service deserves much much more balance.

[Linda Hunter Retired Nurse, MScN, PhD (C) @lhunter1310]

https://t.co/1RYdrRHjDR
Please join us at the next Webinar series!! Should be excellent!!
@wecantrain you might be interested in this too 👇

[David Fajgenbaum, MD @DavidFajgenbaum]

ChatGPT just made a diagnosis that 17 doctors over 3 years couldn't make!

A tired mom with a child with a rare disease started entering his symptoms into ChatGPT, which gave a diagnosis for this patient.

She took that information to a neurosurgeon who confirmed the correct diagnosis. This shows the power and the potential of AI, but of course there's still so much work that needs to be done.

These exact algorithms are being utilized by @EveryCure to unlock the full potential of existing medicines, to find treatments for diseases that don't have any.

What do you think are some potential upsides and risks of using generative AI in medicine? #MedTwitter

[Improve Thyroid Treatment @campaign_itt]

What a sad loss for thyroid patients.
As well as doing desperately needed research, John Midgley shared his wisdom amongst Thyroid UK Health Unlocked community. He helped them understand their condition and treatment, put them on a path to better health, when the NHS didn't help