SpectrumWorld.io

Helping aging caregivers of autistic & developmentally disabled adults answer: Who will love my child after I’m gone? Where will they live?

[SpectrumWorld.io @SpectrumWrldDAO]

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[Paul Whiteley @PaulWhiteleyPhD]

Diagnosing autism in adult forensic settings https://t.co/rDDKmiBo1c Increasingly important. Often missed out of the 'missed diagnosis' discussions because of the CJS implications and because "autistic individuals are over-represented within prisons and secure hospitals."

[SpectrumWorld.io @SpectrumWrldDAO]

There’s a question most of us don’t say out loud.

But it’s there… in the quiet moments.

Late at night.
In the car.
At the dinner table.

What will happen to my child after I’m gone?

If that question has ever crossed your mind, you’re not alone.

[NCSA @NCSAutismOrg]

Drowning is the leading cause of death for children with autism — here's how one mom keeps her family safe https://t.co/k0eWJWyjpZ

[SpectrumWorld.io @SpectrumWrldDAO]

Adult Autism Care - You Have Permission to Change the System https://t.co/DdRzsiMsPW via @YouTube

[SpectrumWorld.io @SpectrumWrldDAO]

Why Building a Support Team Feels So Hard https://t.co/RF9LOeNqbp via @YouTube

[J͟a͟son @jayhood73]

Autism

[SpectrumWorld.io @SpectrumWrldDAO]

Adults with Autism: Learning to Create New Systems of Care https://t.co/kV3I8Q2Wxu via @YouTube

[SpectrumWorld.io @SpectrumWrldDAO]

A System of Care: Starting at the Beginning https://t.co/VXBb68QbdE via @YouTube

[Jill Escher @JillEscher]

The @NRO and @AdamOmaryPhD insist autism rates are not truly rising- that we’re just over-diagnosing. But literally every system serving cases *limited to developmental disability level autism* (substantial impairment across multiple domains) has SKYROCKETED. California’s DDS data by birth year is a prime example. 🤦🏻🤦🏻🤦🏻 The data-free denialism from both the neurodiversity left and the “it’s all fraud” right perpetuates our navel-gazing stagnation and helps absolutely no one.
Autism is not caused by vaccines. But other vectors (ahem certain heritable parental exposures ahem ahem) may help explain this dire epidemic. Figuring this out should be Job One, not this dumdum denialist myth peddling.

[Jill Escher @JillEscher]

No, autism overdiagnosis is not a national scandal. In fact we are more likely *under-diagnosing” autism, by as much as 25%, according to a large NJ study. Notice that the @NRO article gets a lot of data wrong (CDC has found severe autism has *increased* over time!!! as any dumdumhead knows) and can’t back up its headline with actual data. 😡😡😡

[SpectrumWorld.io @SpectrumWrldDAO]

I just sent "How support begins to take shape" to my 236+ subscribers. Be sure to get on my list to get the next one straight to your inbox.
https://t.co/sBt7Isjgcy via @kit

[Paul Whiteley @PaulWhiteleyPhD]

Sensitivity and Specificity of Common Autism Diagnostic Instruments for Early School-Aged Children https://t.co/UeYnwaHeKa ADOS still the gold standard, closely followed by ADI-R. Fantastic stats on sensitivity and specificity. Don't listen to anyone who says otherwise!

[NCSA @NCSAutismOrg]

Nonverbal, autistic 4-year-old found dead in pool after massive community search, Louisville police say

https://t.co/Jz7Cms25Iu

[SpectrumWorld.io @SpectrumWrldDAO]

What Is SpectrumWorld? (And Why I’m Building It) https://t.co/MzTTB2DMxF via @YouTube

[katie wright @katiewr31413491]

The #Neurodiversity crowd, @IMFAR @NIH @CDCgov have silenced #ProfoundAutism long enough. Siblings are often traumatized by the screaming, self injurious behavior, the hospital visits, isolation from larger family & community. @SecKennedy @IACC_Autism @FogelSylvia @MAHA_Institute @ProfoundAutism @JillEscher

[Lera 🐈‍⬛ @LeraZabalueva97]

GM🤍 First, coffee, then a quick check @Reelsio 😌💅🏻
Wish me luck 🍀

[SpectrumWorld.io @SpectrumWrldDAO]

You Are the System (How to get a new one) https://t.co/FOPBM3RXIK via @YouTube

[SpectrumWorld.io @SpectrumWrldDAO]

Caregiver Reality: Never a Day Off https://t.co/mKtjTSh942 via @YouTube

[Paul Whiteley @PaulWhiteleyPhD]

We Promised Parents a Miracle Autism Treatment. Then We Took It Away https://t.co/aaeufdw4J2 Detailed article. Mentions Dr Frye's research, folate receptor autoantibodies and how plural autisms means the need to 'focus on best responders' and why.

[SpectrumWorld.io @SpectrumWrldDAO]

Autism Care: What's Your Timeframe https://t.co/jgwUC1JIfo via @YouTube