ARCH Commons

The Accessible Research Commons for Health

[Ken Mandl @mandl]

.@US_FDA : Mobile health apps "offer unique opportunities such as addressing malfunctions quickly and efficiently through software updates to minimize adverse events."

So we must call for transparent reporting on performance of mobile apps. https://t.co/Oc7Vs7SyBi @SGottliebFDA

[Isaac Kohane @zakkohane]

Announcement by ⁦@avillach⁩ of new integrated #i2b2/TranSMART platform and #opensource codebase

[Ken Mandl @mandl]

Very fun to see the @SMARTHealthIT logo up on the stage at the Apple #WWDC18

Great use by Apple of an open #API for substitutable apps that connect to EHRs.

[Isaac Kohane @zakkohane]

Get updates on a national network of health systems making diagnoses on the previously #undiagnosed with #genomics and #deepPhenotyping @StanfordMed @harvardmed @VUMChealth @Baylor @DukeMedSchool https://t.co/qO47wKiSup https://t.co/XrtM07tt5G https://t.co/s3SMCMoVbK

[Ken Mandl @mandl]

Another audaciously progressive proposal from Ioannidis: drop the threshold for statistical significance from 0.05 to 0.005. https://t.co/ky0Sv5C8Vu @JAMA_current

[Ken Mandl @mandl]

This year’s A.M. Turing Award, the highest honor in computer science. https://t.co/DUsQXHpMhE

[Ken Mandl @mandl]

This de-complicates “ETL” and enables “push button population health.” Bulk data export from EHRs into a flat FHIR file. https://t.co/k5o8o9nlTy

[Ken Mandl @mandl]

Populations of patients with common disease phenotypes include patients with rare diseases.

Terrific example of what can be accomplished with large-scale bio banking + sequence + EHR data.

https://t.co/IfJFdnucdT

@jdnashville @sciencemagazine

[Atul Gawande @Atul_Gawande]

Massachusetts statewide poll on #opioidcrisis: most know someone who has been addicted, and 1 in 4 know someone who died of an opioid overdose. https://t.co/SHsuGYBrkK

[Jeffrey Flier @jflier]

Unfortunately, due to prevailing academic incentives, most spend effort on grant funded analysis to produce statistically significant observations on past history, rather than serving as real problem solving agents of change. https://t.co/PCpmFVBhrF

[PCORnetwork @PCORnetwork]

Today 10:30 AM: Jeffrey Klan of #PCORnet partner @archcommons on #dataset sharing technologies: https://t.co/T09bYRnFFW #TBICRI18

[David Arterburn, MD, MPH @davearterburn]

Our first PCORnet Bariatric Study paper is out & launches a series of publications from @PCORnetwork aimed to compare the long-term effectiveness & safety of gastric bypass, sleeve gastrectomy, & gastric band in 65,093 adults & 777 adolescents in the US https://t.co/rH2NJdKOrL

[UDN @UDNconnect]

How the Undiagnosed Diseases Network helped solve my daughter’s medical mystery (via @TexasChildrens blog) https://t.co/3fwFE3y4vg #CACNA1A

[Ken Mandl @mandl]

Evolution of diagnosis: Calling for a new compact between pts and the health system, so captured data and biospecimen byproducts of the delivery system can be aggregated and linked to build a clinical information commons (CIC) https://t.co/2kG8tYqNCS @JAMA_current @Bos_CHIP

[Ken Mandl @mandl]

I don't think most of the public understands just what a tough disease hemophilia is. Amazing to think that a cure is within reach. https://t.co/y7jzmim6L2

[Ken Mandl @mandl]

Apple "has said it is more secretive than the Central Intelligence Agency, but doctors and researchers want transparency around studies and devices—such as the publication of data in peer-reviewed medical journals." https://t.co/5RYBazj91U @WSJ

[Ken Mandl @mandl]

Linnaeus invented the index card for his taxonomy. Who knew? https://t.co/qvwSKtusNf @tothelastpage

[Ken Mandl @mandl]

.@SCILHS is now @archcommons The Accessible Research Commons for Health!!

Follow us there and watch our welcome video by the great @wondros https://t.co/fQ5f6aNljK

We are a patient-driven data research network across 10 health systems (soon 11).

[Jason Bobe @jasonbobe]

some drugs are safe but have "financial toxicity" for patients @gary_lyman @fredhutch #PM17HMS