EMECC

European ME Clinicians Council
Bringing European clinicians together to educate, treat and serve people with myalgic encephalomyelitis (ME - also ME/CFS)

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

#BRMEC15 15th International Biomedical Research into ME Colloquium begins
Wonderful line-up of European/international researchers working together to progress research into #MECFS
Happy Young EMERG @YoungEmerg will be handling our social media this week
https://t.co/0WZYr4XsZf

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

WHO Regional Director Europe opened #IIMEC18 affirming-
"ME is a serious, complex, multi-system physical illness,
involving neurological, immune, and metabolic dysfunction"
- Dr Hans Kluge @WHO_Europe
Press release:
https://t.co/3ixBJ1URZJ
#mecfs #WHO #InvestInMEresearch #IIMER

[European ME Research Group (EMERG) @euromeresearch]

Prevalence of EBV, HHV6, HCMV, HAdV, SARS-CoV-2, and Autoantibodies to Type I Interferon in Sputum from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients https://t.co/9q9b2yJn1I #mdpiviruses via @VirusesMDPI #mecfs #research

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Young EMERG workshop 26-27 May 2025
https://t.co/lgEhR6uPhR

We have also announced Young EMERG workshop 2026 - now full two-day workshop
https://t.co/ycTr0IInMu

The future for research into ME
#mecfs #research @YoungEmerg @euromeresearch

[European ME Research Group (EMERG) @euromeresearch]

From EMERG member Professor David Price et al
Identification of soluble biomarkers that associate with distinct manifestations of long COVID
https://t.co/Uc8cJvGOhT
#mecfs #LongCovid #research

[Dra. Eva Martin @SFCencuentro]

Enhorabuena a los compañeros de Islandia de @EMECC1 nueva clínica para pacientes con EM/SFC y Covidpersistente.
Se llamará “Clínica de Akureyri”, en honor a esta ciudad, que hace 75 años sufrió una epidemia de EM/SFC que se conoció como la enf. de Akureyri
https://t.co/kDA8pTsKtu

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

ICELAND Establishes a Clinic for ME Patients
– The AKUREYRI CLINIC

https://t.co/mQmd80uYsG
#mecfs #research @euromeresearch @euromeall #LongCovid #Iceland

[European ME Alliance 🇪🇺 @EUROMEALL]

Many thanks to @Giada_Da_Ros (President CFS/ME Italian Assoc) for helping EMEA in translation of survey flyer into Italian -
https://t.co/N5OTTHC6Sl
A more refined Italian version of press release & EMEA comment soon https://t.co/xOHFKlYxK7

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

During our International ME Conference Week we are arranging the @YoungEmerg workshop for early career researchers
Join the future for research into ME
https://t.co/JRUL2Pim8j
#research #ECR #mecfs #IMECW2024 @euromeresearch @euromeall @EMECC1

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

16th Annual International ME Conference
Registation open for #IIMEC16
https://t.co/6ezpzacQrd

#mecfs #IMECW2024 #BRMEC13 #SPARKME #YEMERG04 #research #cpd #LongCovid #ClinicalTrials

[Young European ME Research Group @YoungEmerg]

"Advancing Research and Treatment: An Overview of Clinical Trials in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Future Perspectives" Our review on clinical trials in ME is published🥳🌟 #MECFS @euromeresearch @EUROMEALL @Invest_in_ME
https://t.co/iJZq8Gw5vA

[European ME Research Group (EMERG) @euromeresearch]

Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://t.co/Mfcr95gwf2 #mdpijcm via @JCM_MDPI
#mecfs @euromeall @YoungEmerg

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

@TheMECFSNet @NIH @9AM The charity is proud to be presenting at this important event today to develop the next generation of young and early career researchers for #MECFS
#research @YoungEmerg @euromeresearch @EMECC1 @EUROMEALL

[European ME Alliance 🇪🇺 @EUROMEALL]

European ME Alliance open statement to WHO Europe for @WHO's Regional Office Committee Meeting for Europe in Kazakhstan
where EMEA received ‘𝗼𝗳𝗳𝗶𝗰𝗶𝗮𝗹 𝗡𝗼𝗻-𝗦𝘁𝗮𝘁𝗲 𝗔𝗰𝘁𝗼𝗿 𝗮𝗰𝗰𝗿𝗲𝗱𝗶𝘁𝗮𝘁𝗶𝗼𝗻’ status https://t.co/HuuPcj7LDP
#mecfs #VoiceforMEinEurope

[European ME Alliance 🇪🇺 @EUROMEALL]

European ME Alliance is proud to announce that it has received ‘𝗼𝗳𝗳𝗶𝗰𝗶𝗮𝗹 𝗡𝗼𝗻-𝗦𝘁𝗮𝘁𝗲 𝗔𝗰𝘁𝗼𝗿 𝗮𝗰𝗰𝗿𝗲𝗱𝗶𝘁𝗮𝘁𝗶𝗼𝗻’ status from @WHO 's Regional Office for Europe
https://t.co/9tXDU2zhs7
including our open statement to WHO Europe
#mecfs
#VoiceforMEinEurope

[European ME Research Group (EMERG) @euromeresearch]

"..used in research settings to assess effect of an intervention in #MECFS patients on FC, Total Score could be an important outcome measure, reducing number of statistical analyses and spurious findings, thereby increasing interpretability of results"
https://t.co/1VP1BZ7Q8N

[European ME Alliance 🇪🇺 @EUROMEALL]

EMEA will be welcoming the latest country to join the Alliance - Lithuania
We hope to be able to help make real progress in understanding and researching the disease there. More details soon.
#mecfs #Lithuania

[Dra. Eva Martin @SFCencuentro]

Anonymous survey, addressed to all ME/CFS patients
To be completed in two minutes
Thank you very much

[European ME Research Group (EMERG) @euromeresearch]

Welcome to new members of the European ME Research Group and Young EMERG - and research update
https://t.co/S7kPxQqyEu
#mecfs #research @YoungEmerg

[Bateman Horne Center @BatemanHorne]

Check out our new 7-part series that validates and sheds light on one of the most ambiguous aspects of #MECFS, post-exertional malaise/post-exertional symptom exacerbation (#PEM/#PESE).

Share it with your medical professionals to help improve health care for #pwME.
@OpenMedF