European ME Clinicians Council
Bringing European clinicians together to educate, treat and serve people with myalgic encephalomyelitis (ME - also ME/CFS)
#BRMEC15 15th International Biomedical Research into ME Colloquium begins
Wonderful line-up of European/international researchers working together to progress research into #MECFS
Happy Young EMERG @YoungEmerg will be handling our social media this week
https://t.co/0WZYr4XsZf
WHO Regional Director Europe opened #IIMEC18 affirming-
"ME is a serious, complex, multi-system physical illness,
involving neurological, immune, and metabolic dysfunction"
- Dr Hans Kluge @WHO_Europe
Press release:
https://t.co/3ixBJ1URZJ
#mecfs#WHO#InvestInMEresearch#IIMER
Prevalence of EBV, HHV6, HCMV, HAdV, SARS-CoV-2, and Autoantibodies to Type I Interferon in Sputum from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients https://t.co/9q9b2yJn1I #mdpiviruses via @VirusesMDPI#mecfs#research
Young EMERG workshop 26-27 May 2025
https://t.co/lgEhR6uPhR
We have also announced Young EMERG workshop 2026 - now full two-day workshop
https://t.co/ycTr0IInMu
The future for research into ME
#mecfs#research@YoungEmerg@euromeresearch
From EMERG member Professor David Price et al
Identification of soluble biomarkers that associate with distinct manifestations of long COVID
https://t.co/Uc8cJvGOhT
#mecfs#LongCovid#research
Enhorabuena a los compaรฑeros de Islandia de @EMECC1 nueva clรญnica para pacientes con EM/SFC y Covidpersistente.
Se llamarรก โClรญnica de Akureyriโ, en honor a esta ciudad, que hace 75 aรฑos sufriรณ una epidemia de EM/SFC que se conociรณ como la enf. de Akureyri
https://t.co/kDA8pTsKtu
Many thanks to @Giada_Da_Ros (President CFS/ME Italian Assoc) for helping EMEA in translation of survey flyer into Italian -
https://t.co/N5OTTHC6Sl
A more refined Italian version of press release & EMEA comment soon https://t.co/xOHFKlYxK7
"Advancing Research and Treatment: An Overview of Clinical Trials in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Future Perspectives" Our review on clinical trials in ME is published๐ฅณ๐ #MECFS@euromeresearch@EUROMEALL@Invest_in_ME
https://t.co/iJZq8Gw5vA
European ME Alliance open statement to WHO Europe for @WHO's Regional Office Committee Meeting for Europe in Kazakhstan
where EMEA received โ๐ผ๐ณ๐ณ๐ถ๐ฐ๐ถ๐ฎ๐น ๐ก๐ผ๐ป-๐ฆ๐๐ฎ๐๐ฒ ๐๐ฐ๐๐ผ๐ฟ ๐ฎ๐ฐ๐ฐ๐ฟ๐ฒ๐ฑ๐ถ๐๐ฎ๐๐ถ๐ผ๐ปโ status https://t.co/HuuPcj7LDP
#mecfs#VoiceforMEinEurope
European ME Alliance is proud to announce that it has received โ๐ผ๐ณ๐ณ๐ถ๐ฐ๐ถ๐ฎ๐น ๐ก๐ผ๐ป-๐ฆ๐๐ฎ๐๐ฒ ๐๐ฐ๐๐ผ๐ฟ ๐ฎ๐ฐ๐ฐ๐ฟ๐ฒ๐ฑ๐ถ๐๐ฎ๐๐ถ๐ผ๐ปโ status from @WHO 's Regional Office for Europe
https://t.co/9tXDU2zhs7
including our open statement to WHO Europe
#mecfs#VoiceforMEinEurope
"..used in research settings to assess effect of an intervention in #MECFS patients on FC, Total Score could be an important outcome measure, reducing number of statistical analyses and spurious findings, thereby increasing interpretability of results"
https://t.co/1VP1BZ7Q8N
EMEA will be welcoming the latest country to join the Alliance - Lithuania
We hope to be able to help make real progress in understanding and researching the disease there. More details soon.
#mecfs#Lithuania
Check out our new 7-part series that validates and sheds light on one of the most ambiguous aspects of #MECFS, post-exertional malaise/post-exertional symptom exacerbation (#PEM/#PESE).
Share it with your medical professionals to help improve health care for #pwME.
@OpenMedF