Top Tweets for #CFHero
💔 RIP Julian Benson (1971–2025)
A dancer, warrior & Ireland’s own Captain Sparkle. From DWTS to Tranquility House, he turned struggle into service.
“I wanted a home with a hug.”
He gave Ireland just that.
May his sparkle light the skies. ✨
#JulianBenson #CFHero
"A vivid, heartbreaking, and celebratory portrait of a heroic young woman." - Boston Globe
Time to spread the word... SALT IN MY SOUL is now playing in LA and NYC!
🎬 On digital Tuesday January 25th.
More info: https://t.co/m8ESSKCArD #CysticFibrosis
A two for one! Check out our blog and our podcast about Kim Bowman and her son Brett. #cfhero https://t.co/wj2kQaYzp5

She'll never needs medals or cups to make me proud..but this is very special 😍 #U12 #CountyChampions #Abbeydorney #CFhero

If you told me a few years ago that Hanna would be playing in a football COUNTY FINAL next week I probably wouldn't have dreamt it!! But she is....and we cannot wait 🖤💛 #proudmammy #nolimits #CFhero

JOIN OUR VIRTUAL CONFERENCE AWARDS CELEBRATION AND HONOR THESE CF HEROES!
Please join us Sat. July 31 at 5:30pm PT to honor these CF heroes, followed by a celebratory dance party!
REGISTER (FREE): https://t.co/a3ssURDxuT
#cysticfibrosis #NationalCFEducationConference #CFhero

In honor of #CFAwarenessMonth I am including this throw back video of @NIHDirector At the Fifth international pontifical conference Dr. Tanzi mentioned this performance. Our #CFhero can sing (as we know from CF conferences)! https://t.co/XMCGNTbtYD
Mobilní aplikace pro mladé pacienty s cystickou fibrozou #cfhero je vítězem první české 🏆Digi@Med Award od @Roche . Máme obrovskou radost! Projekt pomáhá už 150 pacientům a na jeho začátku stál i náš inkubátor Laboratoř Nadace Vodafone. Gratulace @MarekVosecky 👏
@keff85 @atpok @agilek @bechyne @keff85 HMW používáme tak, že přesně reflektují problémy (!) a potřeby cílovky, které vychází z výzkumu (!)
"HMW notify users about deals" mi nezní jako skutečný problém zákazníka, ale spíš zpětná obhajoba featury, kterou jsem vymyslel :)
Pár z #cfhero (měli jsme jich asi 30)

Great podcast at the @CF_Foundation #NACFC with Dr. Francis Collins! #CFHero @7BOOMERESIASON @jcahillYCF @LetsRockCF @engagecf #CFRI
CF dream: it came true. A drug for my daughters: Trikafta. It could help 90 percent of the CF population. On my CF path I met Dr. Collins 30 years ago, before I even had kids born with CF. My podcast with him. https://t.co/6KySRqOQmO

@ChrisMRiches @NHSEngland @VertexPharma @Daily_Express @cftrust @MattHancock @sarahwollaston @MotherhoodvsCF Absolutely right Chris and proud that you are the only national newspaper journalist to cover this crucial development today in the Express #CFhero
One of the most interesting talks I’ve heard at @uxcampeurope #uxce19
.
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Thanks @faxecz for all the interesting insights!
#uxdesign #DesignTalks #DesignBetter #designforpeople #cfhero

The sessions about creating #CFhero by @faxecz on @uxcampeurope #uxce19 was the best one in my eyes ❤️ Thank you for what you do 👍

Na záčátku byl nápad odhodlaného tatínka malé pacientky. Podpořili jsme ho Laboratoří a Rokem jinak. Dnes díky appce #CFHero inhaluje přes 150 nemocných s nevyléčitelnou cystickou fibrózou. Jak?
Poslechněte si rozhovor @CRoPardubice https://t.co/Y07raRqvml #Technologiepomahaji

@KToogie @luke_7 -aw sweetie. Such a cute doggie. 💕💕😍😍 🐶 🐶 🐾 🐾 Here is our little lady Lexi. She has given my @jess_cranfield so much joy since she got really poorly 2 1/2 years ago #cfhero #therapyDog #LoyalDogLove #soCute #lexi

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