Top Tweets for #ExposeMEnow
Time keeps passing by without a clue,
That I’m lying here alone inside this room,
I can’t live my life like others do,
So please stop passing by and get a clue.
=======
#mecfs #chronicillness #pwME #LongCovid
I live with severe ME/CFS — one of the most extreme and medically complex cases known.
I can no longer move, speak, or write without help.
This message was created with AI, because it’s the only way I can communicate.
I’m asking to be seen.
My case deserves visibility — not for pity, but because it shows how devastating ME/CFS can truly be.
Please help me reach visibility
Even who might want to document or study it.
Stefan Arce on google
_stefanarce on instagram
Stefan Arce on Facebook
u/Ill-Cardiologist4064 on Reddit
https://t.co/2EXoGJ6iw4
#MEcfs #SevereME #MillionsMissing #MyalgicEncephalomyelitis #ChronicIllness #DisabilityAwareness
🔁 Every RT helps. Don’t let us stay invisible.
@MEActNet @SolveMECFS @OpenMedicineF @JenniferBrea @MillionsMissin1
@DafoeWhitney
@_diatoma
@JanetDafoe
@BatemanHorne
@IsabelRamirezRD
Please share broadly #MyalgicEncephalomyelitis #MECFS #SevereME #MEKills #ExposeMENow #SevereMEAwareness
#VerySevereME emergency in México 🚨
@stefan_arce has asked we share his posts & asks if @JanetDafoe @LBatemanMD @OpenMedF @WorldMEAlliance can share his story & offer some support. We have NO #ME support or recognition in MX.
#GreatestMEdicalScandal
https://t.co/G5jeThNm0n
Can I get an ETA on most media headlines going from “Mysterious malady isn’t all in your head” to the decades-overdue “The neglect & abuse of #pwME is a global health & human rights scandal”?
#GreatestMEdicalScandal #ExposeMENow #MEKills #MillionsMissing #JohnVsJonVsME #ME
A look into the dire situation of people with #SevereME (in particularly underserved locations but really everywhere in the world).
#MEKills #ExposeMENow
https://t.co/y9IIyssQXi (8/8)
@NichtGenesen @BMG_Bund @ninawarken @bundeskanzler @DoroBaer @BMAS_Bund @BMFSFJ @cducsupm @spdbt_netz @larsklingbeil @BMF_Bund #SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
Por favor apoyen y compartan nuestros llamados, aprendan sobre #ME y especialmente #SevereME (yo solo soy 'moderada'), el 12 de mayo, #WorldMEDay, para pedir apoyo y justicia para las personas con #ME en todo el mundo. @WorldMEAlliance
#GreatestMEdicalScandal #ExposeMENow (6/6)
Please like and share our calls, and learn about #ME and especially #SevereME (I'm only 'moderate'!), on May 12, #WorldMEDay, in calling for support and justice for people with #ME all around the world.
#GreatestMEdicalScandal #ExposeMENow @WorldMEAlliance (6/6)
Nothing is getting my bp up 70/49
No ER helping
Struggling to communicate
Struggling to fundraise or make payments
Disappearing
I'm seeing increasing numbers of posts from people getting distressed by social media chat about #DisabilityBenefits
Step away if you need to.
In the meantime, the most proactive thing to do is fill in the consultation 👇
https://t.co/xzF5rzLEdk
#pwME #MEcfs #DisabilityCuts
When will #ME be the next miracle discovery?
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
Please sign this petition to keep @Nebulow with #VerySevereME from forced psychiatric hospitalization. 🚨🚨🚨
#GreatestMEdicalScandal #MyalgicEncephalomyelitis #SevereME #ExposeMENow
This is abuse. A health and human rights scandal. @TIMEHealth @thesicktimes @mehdirhasan
I HAVE VERY SEVERE #MECFS
I'M BEING THREATENED WITH FORCED PSYCHIATRIC HOSPITALIZATION. SIGN THIS PETITION TO HELP PREVENT IT
https://t.co/myFPXOJnWk
This is happening worldwide #SevereME #LongCovid. Fellow #pwME mobilize to help release individuals from psych wards where rest & low-stimulation needs aren't met, where they're often forced to overexert. People often deteriorate further & still no support #GreatestMEdicalScandal
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