Top Tweets for #FundSickleCell
Why is #SickleCell underfunded despite being the most common genetic blood disorder๐ค? There should be equity in research funding โ๏ธ.
What does health equity mean to you?
#HealthInequity #fairandimpartial #CloseTheGap #FundSickleCell #Suppportmatters #EqualityvsEquity
Today is Day 1 of the SCD Policy Forum. We start at 11AM ET to learn about the federal priorities for the sickle cell disease community and prepare for Day 2's Virtual Hill Day. Stay hydrated and see you soon! #SCDPolicyForum #FundSickleCell #SickCells #SC3
Happy Monday! We are pleased to announce a robust lineup of speakers for the 2024 SCD Policy Forum. See you tomorrow! #SCDPolicyForum #FundSickleCell #SickCells #SC3
Learn more about the forum: https://t.co/mRIYRzJAC9
The #SickleCellCare Expansion Act introduces legislation to strengthen the medical workforce that treats #sicklecelldisease (SCD) and provides funding for services to improve the quality of life for the increasing number of adult patients living with the disease. #fundsicklecell
โFar too often, people living with #sicklecelldisease face systemic barriers to accessing the care they need to live full, healthy lives,โ- Sen Booker. Learn more about the #SickleCellCare Expansion Act reintroduced by
@ChrisVanHollen, @SenBooker, and @RepBarbaraLee. #sicklecell
#SickleCellWarriors are more than just a number. Thank you @FundSickleCell!โค๏ธ๐ค
#FSCDR
#SickleCell
#FundSickleCell
#InternationalDayofPersonswithDisabilities
Tomorrow, Dec. 3, is #InternationalDayofPersonswithDisabilities. Over 100,000 Americans are affected by SCD, but many are unaware because it is not a visible disability. Warriors are not invisible to us at FSCDR. They are more than a number to us.
Check out this op-ed written by our friends at @scdaaorg and long-time SCD champion @DrGiroir #sicklecell #policy #fundsicklecell
โCongress has three opportunities right now to address SCD,โ states a recent op-ed Washington Informer co-written by SCDAA President and CEO Regina Hartfield and pediatrician Brett Giroir, M.D. Read more. https://t.co/0PE8ARZQsY
PLEASE Urge your Congress to advance the Sickle Cell Comprehensive Care Act #HR6216/S3389!
#fundsicklecell
#sicklecelldisease
We are happy to announce our 2022 Ambassador Policy Forum & Hill Day were a success! 72 #bipartisan Hill meetings in the #House and #Senate, 53 total advocates, and coverage in 20 states. Thank you, everyone! https://t.co/PkuHx8UYaf #sicklecell #sicklecelldisease #fundsicklecell
Thank you Devin @repcleaver for taking the time to meet with us today and discuss the legislation to help improve the lives of sickle cell disease patients.
#sicklecelldisease #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell #SickCells
Thank you Caitlin @RoyBlunt for taking the time to meet with us today and discuss the legislation to help improve the lives of sickle cell disease patients.
#sicklecelldisease. #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell #SickCells
Thank you Tyler @SenHawleyPress for taking the time to meet with us today and discuss the legislation to help improve the lives of sickle cell disease patients.
#sicklecelldisease #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell #SickCells
Thank you @ChrisVanHollen for meeting with us today to talk about important legislation and funding to improve the lives of those living with #sicklecelldisease. #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell
Thank you Antonia from @LeaderHoyer's office for meeting with us to talk about important steps needed to improve the lives of #sicklecelldisease patients on our Hill day. https://t.co/DlYiSXEVgI
#SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell @SickCells
#PolicyForum2022 was much more than I expected. Once I started I wasn't as nervous & it went by fast! I met some really great people who really listened to my story.๐ #Grateful 2 @SickCells for preparing me & to Kevin Wake for being a BIG part of our team of 2!
#FundSickleCell
Thank you to Stetson from the office of @RepTroyNehls for meeting with us today to talk about important priorities for improving the lives of those living with #sicklecelldisease. #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell
Thank you, Devin Kelsey of @repcleaver's office, for meeting with me and Kevin Wake today to talk about important steps needed to improve the lives of those living with #sicklecelldisease.
#SCDadvocates #PolicyForum2022 #SCDPolicy2022 #FundSicklecell
https://t.co/NwgxQMzcAh
Thank You Tyler Fagan from
@SenHawleyPress, for meeting with me & Kevin Wake today to talk about important steps needed to improve the lives of those living with #sicklecelldisease.
@SickCells
#SCDadvocates #PolicyForum2022 #SCDPolicy2022 #FundSickleCell
https://t.co/F9yeS1PzXp
Thank you @repstephenlynch for meeting with me today to talk about important steps needed to improve the lives of those living with #sicklecelldisease. #SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell @SickCells
Thank you @ChrisVanHollen for meeting with me today to talk about important steps needed to improve the lives of those living with #sicklecelldisease. https://t.co/U17vv6McPr
#SCDadvocates #PolicyForum2022 #SCDPolicy2022 #fundsicklecell
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