Top Tweets for #KnowYourCancer
Questions about how you recognize symptoms of #metastatic #breastcancer (aka stage 4, secondaries)? Check out these great infographics. 👇👇 Wonderful practical help from @abcdiagnosis #patientadvocacy #listen2patients #lobular #ductal #knowyourcancer
Secondaries On The 2nd.
We want you to know about the signs and symptoms of #MetastaticBreastCancer so we are sharing our infographics that highlight what you should be aware of if you have had a primary breast cancer diagnosis.
These infographics are signposted by NHS England and used worldwide. They are translated into 11 languages.
We know that it can be hard to even think about a recurrence and MBC, but knowledge is power, and if you have any of these symptoms please speak to your medical team. Advocating for yourself is the most important thing you can do for yourself.
As we are focusing on awareness one of METUPUK's key aims, we'd be interested to start seeing your stories on how your #secondarybreastcancer was diagnosed and what signs you think people ought to be looking for.
Use the hashtag #2ndsonthe2nd and we'll share your posts.
Here's the link to the infographics https://t.co/WzL75TOpDk
#WhoReallyCares #BreastCancerAwarenessMonth #BCAM #costofliving #severitymodifier #METUPUK #DarkerPink #BusyLivingWithMets #IAmThe31 #waitingroomfeet #BreastCancer #BreastCancerCommunity #BreastCancerJourney #BreastCancerSupport #DyingForACure #EarlyDetectionSavesLives #MetastaticBreastCancerAwareness #SecondaryBreastCancer #SecondarySisters #Stage4NeedsMore #StageIVNeedsMore #AdvancedBreastCancer
“Mammography is a health care intervention that does not work 4 #lobularcancer — full stop. It’s a completely diff disease that requires diff approaches in early detection, treatment & follow-up.”
- Dr. Christiane Kuhl @ProfKuhl #breastcancer imaging expert #knowyourcancer @bcsm
Many similar stories 4 those of us w/hard-2-image #lobular #breastcancer
* Doctors▶️please please please #listen2patients
* Patients▶️definitely #knowyourcancer & know that your #advocacymatters. If yr doc won't listen 2U when u know something's off, ▶️find one who will!◀️
#BCAM
When the backache began in January 2023, Ceirios went straight to her GP and flagged that she had had primary breast cancer. Luckily she was aware of the red flag symptoms of #MetastaticBreastCancer thanks to our infographics. Yet it still took over six months to get a MBC diagnosis...
Read Ceirios's blog https://t.co/wZmA1wx1eC
#WhoReallyCares #BreastCancerAwarenessMonth #BCAM #costofliving #severitymodifier #METUPUK #DarkerPink #BusyLivingWithMets #IAmThe31 #waitingroomfeet #BreastCancer #BreastCancerCommunity #BreastCancerJourney #BreastCancerSupport #DyingForACure #EarlyDetectionSavesLives #MetastaticBreastCancerAwareness #SecondaryBreastCancer #SecondarySisters #Stage4NeedsMore #StageIVNeedsMore #AdvancedBreastCancer
"Happy" World Lymphedema Awareness Day!
Who's dealing w/this side effect from #cancer surgery?
#knowyoursideeffects #knowyourcancer
#knowyourrisk #bcsm @thankscancer @OncoAlert
https://t.co/Sn2Wi0no0B
Thx 4 drilling down into oddball #lobular #breastcancer subtypes #knowledgeispower #knowyourcancer #not1disease
Also good 2 know #nolumplobular is often hidden by #densebreast tissue. Despite what anyone says, #knowyourdensity #lobmob @LobularBCUK @BreastDense @LobularIreland
There are 2 rarer forms of LCIS - pleomorphic and florid that are treated like DCIS. This is a pretty niche part of #breastcancer but if you have it, it’s hard to find any info
@LobularBCUK @LobularIreland @Tickoffcancer @bccww
Thinking about my #MetastaticBreastCancer buddies today. We've come a long way, but we're still not there.
#stage4needsmore #MetastaticBreastCancerAwarenessDay #MBC #knowyourcancer
#research #bcsm #BCAM
@metavivor @TPollastro @mbcalliance
https://t.co/oUFccLniyD
So fun to meet and talk #science with Manisha Bahl y'day. Thanks so much @GRASPtweets for creating more opportunities for #cancer patients to connect with cancer researchers. #patientengagement #bettertogether #knowyourcancer @ThanksCancer
Our Oct. 5 #ILCSymposium Virtual Poster Walkthrough will be led by some of the leaders in breast cancer treatment and research including Manisha Bahl, MD, MPH, FSBI of @MGHImaging. Registration details coming.
Great pic😊 Horrible sitch😠
So many of us were assured yr after yr that our mamms were clear, that we had nothing to worry about. Then suddenly, we're stage 3 or stage 4, i.e. #metastatic #lobular #breastcancer. Mamms aren't perfect.
#KnowYourCancer #KnowYourDensity #TellWomen
Eventually diagnosed with Invasive Lobular Cancer on 18th December 2016 after many years of 'Clear" Mammograms and queried palpable mass. I had Dense Breasts masking a 7cm #Lobular Tumor for 6-8 years
Please ask about your #BreastDensity @BreastCancerIre
Great find! #KnowYourCancer
https://t.co/byXyNfi7ec Lobular vs Ductal Breast Cancer: Distinctions in Management By Caroline Helwick July 10, 2023 A good overview of differences between lobular and ductal bc. #lobularbc #lobularBCA
Curious about mutations that can drive #cancer? We're well beyond #BRCA these days. #KnowYourCancer #KnowledgeIsPower #bcsm #pcsm #crcsm #gyncasm #lcsm
https://t.co/GpnD4EerWm
Thanks for raising this important point, @lobbccanada #Lobular #ILC #breastcancer is also harder to see w/mamms cuz it's strands, not a solid lump. And yes, dense breast tissue can hide it. #BCAM #lobmob #nolumplobular #knowyourcancer @LPseattle @LobularBCA
@DrPaulaGordon Also important to know that all bc does not present as a lump. Lobular bc most often doesn't and is masked by dense breast tissue.
@CancerCanuck @ThanksCancer Absolutely not. That's why I wrote this. It's about #metastatic #breastcancer but the same confusion about early versus late stage applies to any #cancer.
#knowyourcancer #stage4needsmore #stillnotcured
https://t.co/oUFccLniyD
Thanks @Liz_ORiordan for specifically pointing to #lobular #breastcancer's weird metastatic pattern in this great PSA for those who've gone through early-stage treatment and may not realize that #BC can come back even years later (like 20-30!). #KnowledgeIsPower #KnowYourCancer
Did you know that #breastcancer can come back 20 years later? It’s really important that you know what to look out for and what to do if you’re worried.
👇watch for more info x
@LPseattle @BCRFcure @SusanGKomen @elbcc @NoStomach4Cancr I figured the additional primary was a reference to #CDH1 mutation since that can drive both #lobularBC and #stomachcancer.
#knowyourcancer #knowyoursubtype #getgenetictesting #lobmob #bcsm #asco22 #oncoalert
Got #lobular? Then you won't want to miss this discussion on #metastatic lobular #breastcancer & how it can spread a bit differently than ductal #BC. #knowyourcancer #knowledgeispower
March 29 | Register at the link below👇👇
(1 of 2) On March 29, LBCA Scientific Advisory Board Chair @Otto_DFCI discusses treatment and research for people living with #metastatic #lobular #breastcancer. Exec Director @lbhutcheson moderates. Register here: https://t.co/TgZjUAJueg
Any #TNBC peeps out there? Check out this new paper on the #triplenegative #breastcancer treatment landscape. #bcsm #knowyourcancer
📢Proud to present our manuscript 'Treatment landscape of triple-negative breast cancer — expanded options, evolving needs' which has just been published with @SpringerNature in @NatRevClinOncol
If you are intrested read here: https://t.co/pxmnyjVNvj
#bcsm #TNBC
@OncoAlert
Talk to your doctor about the challenges in imaging in Metastatic #Lobular Breast Cancer and your specific sites of metastasis. Visit https://t.co/gmGbSkmBOD to learn more about Invasive Lobular Carcinoma (ILC) imaging. #bcsm #HereAllYear
Always good to see new research in #lobular #breastcancer, even when I only understand 1/20th of it. THANKS @mjsikora and all of the wonderful researchers out there making #ILC research a priority! #lobmob #LBCA @LobularBCA #bcsm #knowyourcancer #knowledgeispower @oesterreichs
First signs of testicular cancer include an enlarged testicle or a small lump around the region. This can be felt as a
certain area of hardness.
The lump, enlargement or hardness can also be accompanied with pain or tenderness.
#TesticularCancer #OpenUp #KnowYourCancer
Bless you, Siobhan!
So appreciate your help as we serve folks blindsided by a #lobularBC Dx, often due to #densebreasts which mamms don't read well.
Also 'zany' #ILC often doesn't make a lump so it's usually Dx'd late.😨
#knowyourcancer #lobmob
Much more info @LobularBCA 👈
Almost 4,000 have joined this #ILC community giving support and educating about Lobular https://t.co/9PYCYJA57K
I'm delighted to pay it forward by helping @double_whammied
@LobularBCA @LobularIreland @oesterreichs @Adrianvlee @IPPOSI @BCResearchIre @bccww
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