Top Tweets for #MEActNet
Thanks to your efforts we have over 7000 signers! Sign our letter to the NIH telling them to fund the ME/CFS Research Roadmap. We have until November 15th to get as many signers as possible.
US signers: https://t.co/nENmHlUbJJ
International signers: https://t.co/36oGi3LeMm
ME/CFS community: If you're checking out Post, give me a follow and I will follow back: https://t.co/75vGuspYk4
So far, it's very civilized over there!
#MECFS #millionsmissing #MEActNet #NEISVoid #LongCovid
Documenting my #PEM #MECFS #LongCovid #MillionsMissing #StillSickStillFighting #MEActNet #StopRestPace
Like walking thru quicksand. What’s it called when you can’t walk?
Documenting my #PEM #MECFS #LongCovid #MillionsMissing #StillSickStillFighting #MEActNet #StopRestPace
Like walking thru quicksand. What’s it called when you can’t walk?
Civil Disobedience has begun the next stage- lying down and blocking the sidewalk. Right now honestly our #pwME & #LongCovid probably are slightly relieved to lie down but we know the heat is rough! Send your love & SHARE the livestream. #NationalEmergency #CovidIsNotOver
This what a #PEM crash looks like. There are #MillionsMissing #MECFS #LongCovid TY #MEActNet for protesting @WhiteHouse @POTUS #CovidIsNotOver #pwME #StillSickStllFighting
📢We are excited to announce the launch of #MEAction's new official podcast, Chronically Complex! #meactnet's own @exceedhergrasp1 & @StevenMolony will be your hosts. Find it wherever you stream your favorite podcasts!
https://t.co/7MH4Tn3FER
#pwME #podcast #ChronicallyComplex
@GovInslee @PattyMurray @SenatorCantwell Can Washington show some love for ME Awareness Day? https://t.co/Tm4SeNcHHI #millionsmissing #meactnet
Government House is lit blue tonight to raise awareness for the millions of Americans living with Myalgic Encephalomyelitis, also known as chronic fatigue syndrome.
For #pwme #meawarenesshour
#MEactNet has produced a really useful and helpful pacing and management guide;
https://t.co/OEGbZup0OS
@MEActNet @ME_Inactivist Thank you so much #MEActNet for all the awareness. Thank you volunteers for all the great work. In Germany this year we had several media reporting about #MyalgicE in a very constructive way. I am so grateful for that. And to be at #MilllionsMissing in Berlin 2x was overwhelming!
@MEActNetUK @CFS_POTS_Life We don't need new diagnosics criteria for #MyalgicE - especially if they are created by non-ME-Experts!
Please use and share the ICC https://t.co/iOmBvkXh4K
I also ask you #MEActNet to use them, at the moment you promote the #SEID #MECFS criteria, which are not accurate enough!
Thank you so much Jen! ❤❤❤
If anyone wants to join in #MEActNet's #StopRestPace campaign, please go to https://t.co/VmvOtGDnJh.
For those with #LongCovid they have gathered resources for you at https://t.co/JnrPxZGvxz
Thank you so much Jen! ❤❤❤
If anyone wants to join in #MEActNet's #StopRestPace campaign, please go to https://t.co/EyFYRF9ZeJ.
For those with #LongCovid they have gathered resources for you at https://t.co/V074dfwyBZ
#mecfs #meawareness #millionsmissing #pwme #MEActNet #chronicfatiguesyndrome #MyalgicEncephalomyelitis #MyalgicE #Disability #DisabilityRights #ItsNotEnough4ME #CanyouseeMEnow #chronicdiseases
Heute war ein guter Tag für alle ME/CFS-Patienten! 😁
🇪🇺 Heute hat das Europäische Parlament die ➀. ʀᴇꜱᴏʟᴜᴛɪᴏɴ zu ME/CFS verabschiedet! Das @Europarl_DE fordert biomedizinische #MECFS-Forschung, Anerkennung und Aufklärung. #EPlenum
Wir haben alle Infos mit Links in unserem Beitrag zusammengefasst. 👇
https://t.co/iKpIrzUWZ6
#mecfs #MEAwarenessHour #MillionsMissing #PwME #MEActNet #ItsNotEnough4ME #CanYouSeeMENow
When your health and your world are shattered to pieces and its like you have vanished completely....
#mecfs #MillionsMissing #MEAwareness #PwME #MEActNet #BlackLivesMatter #StopRacism @NIHDirector @NINDSdirector @CDCDirector @CDCgov @NHSuk
Wilhelmina Jenkins writes Unseen: Black People Living with ME
https://t.co/fFw4ZapjtK
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