Top Tweets for #MEinterventions
@postersandme @keithgeraghty Energy management is Activity Management rebranded as Pacing #MEinterventions
Note analeptic anaerobic energy management by @4Workwell is not mentioned by name or pacing .
Nor is #2dayCPET mentioned in identifying PEM in making diagnosis and contraindicated aerobic exertion
@SianGotME @carolbinks @NICEComms NICE had made #opinionNotEvidencebased recommendations for #MEinterventions for over a decade using Delphi consensus methodology in the absence of evidence . I written about it here . Stakeholders need 2 object 2 Delphi consensus methodology https://t.co/kfxALJHxSw
@LizMEActGA @CDCgov @davidtuller1 @twoShaws NICE or rather the royal collage collaborations it commissions to develop guidelines , has recommended #opinionNotevidencebased #MEinterventions for over a decade #MEAwarenessHour https://t.co/kfxALJHxSw
@TweetTipsforME @chronicinclude @drill_uk Analeptic Energy management & not Activity Management ?
AM has no evidence & was recommended in NICE 2007 due 2 similarities with GET .Also an umbrella term 4 #MEinterventions .
Acquired metabolic dysfunction
Cellular not hysteria
This ๐ 'sleep hygiene' can be as damaging as GET. It left my daughter bed-bound, in agony and with much worse sleep problems! There is zero evidence it helps anyone with ME sleep disruption.
#pacetrial โmisleading research at heart of disability cuts โ
#OpinionNotEvidenceBased & contraindicated behavioural rehabilitation , #MEinterventions , guidelines & services , expanding to other patient groups
#meded #GPnews #paediatric #meded
https://t.co/GjeZa4dVzD
#ICC4ME
2012
NICE + collage collabs it commissions, have been recommending #opinionNotEvidencedBased #MEinterventions for over a decade
reduce costs #IAPTLTCMUS
#GPnews #MECFS
https://t.co/G0tpHrnA6G
@JoanMcParland Solution :
๐ recognise #systemicFailureINHealthcare to safeguard patients + reduce institutionalisation + uphold human rights
1. Guidelines + services are
#opinionNOTevidenceBased
#MEinterventions with no evidence safety or benefit [1/2]
https://t.co/kfxALJHxSw
![consent_patient's tweet photo. @JoanMcParland Solution :
๐ recognise #systemicFailureINHealthcare to safeguard patients + reduce institutionalisation + uphold human rights
1. Guidelines + services are
#opinionNOTevidenceBased
#MEinterventions with no evidence safety or benefit [1/2]
https://t.co/kfxALJHxSw https://t.co/ar8PWxCcwN](https://pbs.twimg.com/media/EOI-fW9XsAALQpb.png)
@keithgeraghty Activity management as an #MEinterventions is stated in NICE Guidelines 2007 as having similarities with GET . Recommedations by guideline development group was thus made based on this , + has no definition or evidence bace Pacing isnt synonymous with activity management #MECFS
#MECFS behavioural studies + patient and partner /family ect behavioural education being done very concerning . Have a look at the databace . Pacing studies using synonyms like activity management which shares more similarities with GET #MEinterventions
https://t.co/bxnl60DlF9
@keithgeraghty pacing definition and what it consists of seems to be merged more and more with GET #MEinterventions
@TomKindlon @4WorkWell Pacing Definition + content increasingly merged with GET (gradual increases in intensity + duration of AEROBIC exercise INDEPENDENT of symptoms THEORETICAL baseline )+ Activity Management ( gradual increases in ALL activity types including exercise ) #MECFS #MEinterventions
@TomKindlon @4WorkWell Pacing Definition + content increasingly merged with GET (gradual increases in intensity + duration of AEROBIC exercise INDEPENDENT of symptoms THEORETICAL baseline )+ Activity Management ( gradual increases in ALL activity types including exercise ) #MECFS #MEinterventions
https://t.co/PRn2VYdEyt
โPEM occurs in response 2 over-exertionโ
โ cardiovascular, pulmonary, + metabolic states underlying PEM. โ
#MECFS #GPnews #2dayCPET
#stopHarmingME with aerobic rehabilation + #opinionNOTEvidencebased Guidelines + #MEinterventions
#iatrogenicPEM
2007 guideline on #MECFS extrapolated #opinionNotEvidenceBased recommedations + #MEinterventions with no evidence eg activity management [ gradual increases in all activity, GET for #kidsWithME and #SevereME ] , a significant % of the population #GPnews https://t.co/yOxVXdfzBn
![consent_patient's tweet photo. 2007 guideline on #MECFS extrapolated #opinionNotEvidenceBased recommedations + #MEinterventions with no evidence eg activity management [ gradual increases in all activity, GET for #kidsWithME and #SevereME ] , a significant % of the population #GPnews https://t.co/yOxVXdfzBn https://t.co/JvdKdWSWuJ](https://pbs.twimg.com/media/EDca3j6WsAAd59W.jpg)
#MEinterventions paper on coenzyme Q10 depletion and symptom severity is also within the research literature . https://t.co/rjG1zQP1bS
@MotionWorksPT @daisy_court75 You will not correct any of these aspects using traditional psychotherapy/CBT or the likes of anti-depressant medications.
Plasma coenzyme Q10 specifically has been shown to play a role in the pathophysiology of ME/CFS & symptoms such as chronic fatigue, autonomic dysfunction.
No objective mechanism how behavioural #MEinterventions believed 2 benefit patients #MECFS Methods utilising aerobic rehabilitation proven contraindicated + worsen #2dayCPET #workwellFoundation #occupationaltherapy #physiotherapy #socialworker #GPnews #standupforGigi
@MarilynGavrano5 @StenHelmfrid Itโs biopsychosocial pragmatic approach that is based on beliefs . #MEisNOTdeconditioing, doesnโt address underlying disease process ,#opinionNoTEvidenceBased recommend + guides on aerobic rehabiltation which is contraindicated #2dayCPET #IatrogenicPEM #stopHarmingME #MECFS #ME
@RemediesPodcast @YouTube Based on #opinionNotEvidenceBased #MEinterventions . Use the hashtags 2 see many donโt have research ๐activity management , GET 4 #kidswithME + #severeME including housebound Notorious #PaceTrial was done 4 safety. Contraindicated ! #2dayCPET #GPnews #MEDED
#LearnAboutMECFS
patients are also within their rights to record consultations https://t.co/b4g8Mq5xH4
#mecfs #ME #kidswithME #severeME #pwme
#GPnews
#StopHarmingME #LearnAboutMECFS #opinionNotEvidenceBased guidelines + #MEinterventions
@BlackDressDay1 @consent_patient @TinaRodwell1 @thegodofpleasur @wigglethemouse @emmajoy6 @LouCorsius @CatEye0611 Montgomery Case, Drs must make patients aware of treatment risk. The yellow card scheme needs to include CBT/GET and patients should be pressing Dr for information.
Why have the beliefs of biopsychosocial academics about
all chronic ill patients been accepted as objective scientific fact? Why is med community supporting #OpinionNotEvidenceBased guides + contraindicated #MEinterventions ?
#systemicFailureInHealthcare
#GPnews
#MEdEd
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