Top Tweets for #opinionNotevidencebased
Biomedical not behavioural
Contraindicated #gradedexercisetherapy and specialist CBT to challenge illness beliefs is #opinionNOTevidenceBased medicine with gov inquiry needed into relationships of psycho social researchers with insurance companies and the DWP
#MEDED
#GPnews
@SianGotME @carolbinks @NICEComms NICE had made #opinionNotEvidencebased recommendations for #MEinterventions for over a decade using Delphi consensus methodology in the absence of evidence . I written about it here . Stakeholders need 2 object 2 Delphi consensus methodology https://t.co/kfxALJHxSw
@LizMEActGA @CDCgov @davidtuller1 @twoShaws NICE or rather the royal collage collaborations it commissions to develop guidelines , has recommended #opinionNotevidencebased #MEinterventions for over a decade #MEAwarenessHour https://t.co/kfxALJHxSw
How objective pathological #PEM/PENE is managed as a subjective symptom,2 blame patient & use of #opinionNOTevidenceBased social prescribing, lifestyle advice,self management ,#ECT #CBTtsunami #prescribedharm as benign ,integrative & holistic 2 reduce cost #IatrogenicPEM #MECFS
@Johnnybfireman @davidtuller1 Active /fluctuating active , & passive patients with perpetuating factors . Yet deconditioning theory disproved. MUS/FSS/BDD (not organic) , but also mind real affect on body (no mechanism) , to explain objective metabolic findings #MEcfsContradictions https://t.co/kbhcdzd8pc
How #ethics 2 continue #unethicalStudyOnChildren , maintain inpatient rehab ,behavioural rehab services ,#GPs provide biopsychosocial explanation 4 symptoms & use #opinionNOTevidenceBased guides .Have participants been informed & #GPs obtain informed consent? #MUSviolationsHour
How #ethics 2 continue #unethicalStudyOnChildren , maintain inpatient rehab ,behavioural rehab services ,#GPs providing biopsychosocial explanation 4 symptoms & using #opinionNOTevidenceBased guides .Have participants been informed & #GPnews obtaining informed consent ? #MECFS
And against robust scientific objective measures like the #2dayCPET
Yet #MECFS services continue to harm patients with contraindicated behavioural rehabilitation recommended by #OpinionNOTevidenceBased guidelines
#MUSviolationsHour
#pacetrial “misleading research at heart of disability cuts “
#OpinionNotEvidenceBased & contraindicated behavioural rehabilitation , #MEinterventions , guidelines & services , expanding to other patient groups
#meded #GPnews #paediatric #meded
https://t.co/GjeZa4dVzD
@zeldarizing @JMGayton1 @EDSandUS @Huisarts_Vink @keithgeraghty @CBTWatch @davidtuller1 @BlackshepSusan @DLeeRosa @andydalessio2 @annmarcos1 @drjgomes @mercola @DrEvgenyLegedin @Mad_In_America @DrHoevet @CEP_UK @raphaels7 @vincentninja68 @PGtzsche1 @AllenFrancesMD @ehlersdanlosuk @jimgottstein @ISEPPDirector @BigPhilHickey @DignifiedDemen1 @TinaMinkowitz @MonyaMyms @MITUKteam @MaddockMary @initiallyno @ConnConnection @Altostrata @AilsaRayner @RemediesPodcast @lesmer13 Harmed further not informed of true objectively proven ,nature of their acquired metabolic dysfunction , including cellular studies conducted outside body . Only informed & managed by clinicians trained in mind body illnesse theories #OpinionNotEvidencebased #MUSviolationsHour
@StenHelmfrid #MECFS isn’t a phenomenon , in blood , objective proven PEM . Mind body no mechanism , metabolic dysfunction independent activity & behaviour rehab “specialist “clinics #opinionNotEvidenceBased
Bypassing #GPS & expand inpatient “specialist” & “specialist “ clinics red flag !
@recover2renew @JMGayton1 @REGRET_ie @JennaLuche @JoanMcParland @ChildrensHD @chronicinclude @RemediesPodcast @johnthejack @davidtuller1 @newhealthpsych NICE Guides
👉commission collage collabs 2 develop
👉who recommended contraindicated rehab 4 over decade #opinionNOTevidenceBased
👉 in strategic partnership & Five Year Forward View board 2 deliver #IAPTLTCMUS
#MUSviolationHour
ihttps://www.twitlonger.com/show/n_1sqlvok
@JoanMcParland Solution :
👉 recognise #systemicFailureINHealthcare to safeguard patients + reduce institutionalisation + uphold human rights
1. Guidelines + services are
#opinionNOTevidenceBased
#MEinterventions with no evidence safety or benefit [1/2]
https://t.co/kfxALJHxSw
![consent_patient's tweet photo. @JoanMcParland Solution :
👉 recognise #systemicFailureINHealthcare to safeguard patients + reduce institutionalisation + uphold human rights
1. Guidelines + services are
#opinionNOTevidenceBased
#MEinterventions with no evidence safety or benefit [1/2]
https://t.co/kfxALJHxSw https://t.co/ar8PWxCcwN](https://pbs.twimg.com/media/EOI-fW9XsAALQpb.png)
@TomKindlon @TheOldLostRoad @MEActNetUK @MEActNet @JoanMcParland @MyhillNews Who is accountable for #patientsafety ? NICE considers #GPS responsible for informed consent ? Whilst excluding pathology , aietiology and symptom mechanisms from scope of its guidelines . #GPnews #OpinionNotEvidenceBased guidelines + services #MECFS
#opinionNOTevidencebased recommendations
and contraindicated aerobic + behavioural rehabiltation sleep + rest restriction .
look @ the shocking beliefs about #MECFS in occupational therapists guideline 2006 + their submissions past + present 2 NICE
https://t.co/rqIMHiEXsl
What kind of support do #OccupationalTherapists currently offer to #mecfs patients?
Happy to hear from patients and #Occupationaltherapists to see both sides.
#OT #health
https://t.co/PRn2VYdEyt
“PEM occurs in response 2 over-exertion”
“ cardiovascular, pulmonary, + metabolic states underlying PEM. “
#MECFS #GPnews #2dayCPET
#stopHarmingME with aerobic rehabilation + #opinionNOTEvidencebased Guidelines + #MEinterventions
#iatrogenicPEM
2007 guideline on #MECFS extrapolated #opinionNotEvidenceBased recommedations + #MEinterventions with no evidence eg activity management [ gradual increases in all activity, GET for #kidsWithME and #SevereME ] , a significant % of the population #GPnews https://t.co/yOxVXdfzBn
![consent_patient's tweet photo. 2007 guideline on #MECFS extrapolated #opinionNotEvidenceBased recommedations + #MEinterventions with no evidence eg activity management [ gradual increases in all activity, GET for #kidsWithME and #SevereME ] , a significant % of the population #GPnews https://t.co/yOxVXdfzBn https://t.co/JvdKdWSWuJ](https://pbs.twimg.com/media/EDca3j6WsAAd59W.jpg)
@RemediesPodcast @YouTube Based on #opinionNotEvidenceBased #MEinterventions . Use the hashtags 2 see many don’t have research 👉activity management , GET 4 #kidswithME + #severeME including housebound Notorious #PaceTrial was done 4 safety. Contraindicated ! #2dayCPET #GPnews #MEDED
#LearnAboutMECFS
patients are also within their rights to record consultations https://t.co/b4g8Mq5xH4
#mecfs #ME #kidswithME #severeME #pwme
#GPnews
#StopHarmingME #LearnAboutMECFS #opinionNotEvidenceBased guidelines + #MEinterventions
@BlackDressDay1 @consent_patient @TinaRodwell1 @thegodofpleasur @wigglethemouse @emmajoy6 @LouCorsius @CatEye0611 Montgomery Case, Drs must make patients aware of treatment risk. The yellow card scheme needs to include CBT/GET and patients should be pressing Dr for information.
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