Top Tweets for #PatientKnowledge
“1 of the impt issues..on lived experiences of #LongCOVID is the lack of recognition by some #researchers of the contributions made from the very beginning by #patients and researchers with the condition": https://t.co/f5DMuRxYp1 by @DALupton #COVID19 #PatientKnowledge
in case you or someone you know may need:
here is the link to the patient navigator program offered by the Provincial Cancer Care Program in #NewfoundlandAndLabrador
https://t.co/jmzeSb2yMC
#cancer #NLCancer #PatientKnowledge
Ending the day with paternalism in medicine and how digital health can/need/must address this and listen to patient experiences to build valued engagement, knowledge and learning health systems. Really enjoyable @chapmanbe 👏🩻👩💻 #DHIS2022 #digitalhealth #patientknowledge

Check out this article, published by the @EMA_News, about the added value of #patients’& carers’ contribution in the development of recommendations provided by the authority to #medicine developers.
🔎https://t.co/CMnQTa20sw
#patientadvocacy #patientknowledge #betterpatientcare

Now you can read about the research project on Long Covid and patient knowledge, Jesper Petersson, @DorisLinnea and myself will start up next year! https://t.co/RsesW5Ncl0. @forteforskning #LongCovid #patientknowledge
#CDC, #USA:
Guidelines for Pharmacologic treatment of patients with #COVID19 based on disease severity:
https://t.co/f9igCca4hI
#PatientKnowledge #PatientSelfAdvocacy #PatientSelfCare

Couldn’t agree more: ask patients rather than assuming they don’t understand their own health. Pain medication helps, & chronic pain is not one thing - it changes, can be acute, severe, background, overwhelming, & more #patientknowledge #healthaccess
@MikScarlet "Limited evidence for effectiveness" why not try asking us?
The only things that help me even halfway function are cocodamol, tramadol, pregabalin, and cannabis. I've always been very careful with taking prescribed meds. This leaves me with no choice but to break the law.
@SolidFooting The best medical people I’ve met who learn of my #RareDisease are the ones who admit they don’t know much or indeed anything about it, and take the time to listen and learn.
2/2 Started in #TallaghtUniversityHospital but since has moved to the #community and is wonderfully driven and supported by the wonderful staff in Fettercairn Health Center. #patientengagement #patientknowledge #community @CatherineDarker
When it gets cold during winter, dry eye symptoms can get worse and worse. Be sure to share these helpful and easy tips that could make the winter months easier for anyone with DED. #PatientKnowledge
https://t.co/9aMZDRdc9a
#Ophthalmology #Optometry #Lumenis #dryeye

#Glaucoma doesn’t have a cure but there are plenty of ways to stay healthy and happy with it, especially with a team! Keep your friends, family, and doctors informed about your ongoing treatment and what works best for you.
#Ophthalmology #Vision #Optometry #Patientknowledge

Inspiring infographic! Patients spend a great deal of time in #selfcare outside of the healthcare system. Healthcare needs to recognize #patientwork, and #patientknowledge and #patientexpertise that goes into it!
1 vs 8,765 https://t.co/vH8rLR8Nii via @SaraRiggare

Patients, tell your stories! Stories are integral to moving the science of patient safety forward! #tellyourstory #medicalerror #patientsafety #storytelling #patientknowledge
The currency of science and the value of stories! We need stories coupled with research to tackle the complexity of medical error! Check out my new blog post!#storiesandresearch #wickedproblems #medicalerror #qualresearch #humanfactors https://t.co/umxgCaVFgh via @kevinmd
You are what you eat and that certainly is true with #dryeye as well. Flax oil and other omega-3 fatty oils in your diet have shown to help soothe dry eye pain. #PatientKnowledge
#Ophthalmology #Vision #Optometry #Lumenis

Newly diagnosed with #glaucoma? You should be spending plenty of time with your #ophthalmologist. Getting eye pressure checked weekly and then monthly will help make sure it’s under control and you’re comfortable. #PatientKnowledge
#Ophthalmology #Vision #Optometry #Lumenis

One of the issues with #dryeye is that oils in your eye can harden and cause even more pain. A good way to treat that is with a warm (but not too hot!) towel held over the eyes for anywhere from 30 seconds to 4 minutes. #PatientKnowledge
#Ophthalmology #Optometry #Lumenis

Starting off my Monday at the #NORDSummit! Very important discussion happening now..Dr.Christoper Austin @ncats_nih_gov leading panel on "how patients are helping drive research & drug development". #NORDSummit #rarediseases #patientknowledge #patientfocused #patientperspectice

'What small choices can we, as individuals, make to improve #healthcare' asks @DonaldLepp at #QISymposium #patientknowledge #PatientExperience #cdnhealth.
*Everyone* has a role to play in modelling behavior & creating conditions where people feel able to advocate for themselves.
The power of patient to patient care.
This CAN BE DONE in health care settings. An example @UMontreal #patientpartner program. Every day this is happening informally in our hospitals. Imagine if we harnessed the #patientexperience #patientknowledge
Patient empowerment.
Sometimes the most effective members of the care team are former patients says @SusannahFox. Here's how @DrSarahWakeman @MGHMedicine @CenteringHealth @Bakallmyer @alzassociation #DanaFarber and @RushMedical tap the power of patient-to-patient care. https://t.co/EgXQoUqGFS
Video: Using @Twitter to become a #PatientAdvocate, with @MyelomaTeacher of @PatientPower: https://t.co/qQ70pRQakb @TheEBMT #EBMT18 #Myeloma #MultipleMyeloma #MMsm #PatientAdvocacy #PatientEducation #SocialMedia #DiseaseUnderstandng #PatientKnowledge #PatientVoice
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