Top Tweets for #PeriodicParalysis
This morning I have had 2 paralysis episodes, leaving me in the unenviable position of not being able to breathe or swallow properly.
It will wear off and I'll hopefully be ok in about an hour, but I'll feel the fallout on my body for days. ππ₯Ί
#periodicparalysis
#persevering
I make coffee for my hubby and I most days. But some days I'm not strong enough to stand on my own to make coffee, so my hubby makes a special trip for it. β€οΈ
#HyperKPP #periodicparalysis #grateful
How many of you know how an aldosteronoma looks? #adrenal #hypertension #hypokalemia #laparoscopicsurgery #periodicparalysis #urooncology
Gorgeous La Mesa morning! It'd be hard to believe #Hilary is just hours away if my head didn't feel like an instapot coming to pressure, mouth/neck weakened from #Electricalinjury now enduring paresis of acquired channelopathies, voiceless. #PeriodicParalysis #TBI #AuditECT #AAC
My Periodic Paralysis Journey https://t.co/RodPFmTpLd #PeriodicParalysis #HyperkalemicPeriodicParalysis #Hyperkalemia
We have 3,000 members sharing their experiences with Periodic Paralysis!
#PPSN #PeriodicParalysis
You are Not Alone!
https://t.co/RAabEiWtTrβ¦
Thanks @neowalksticks for making me dance floor ready. #musculardystrophy #periodicparalysis #babeswithmobilityaids β€οΈπ₯
https://t.co/VkNaOhAvrA
Yet one more reason for me to stay hyper vigilant with masking and misanthropy as avoidance strategies π¦
#HKPP #periodicparalysis
@chronic_realism @GummiPies I'm very sorry you went through that. I'm in the same club - it took *62* years before I was diagnosed with #HKPP #PeriodicParalysis!
For my friends with HypoKPP, part of this article is actually a really good overview of the physiology of rhabdomyolysis which can be caused by hypokalaemia
@realBrianDodge @folkertveenstra @ugottafriend @chronic_realism @PatientWorthy
#periodicparalysis
@jdibon My biggest challenge is also having a rare neuromuscular disorder, #PeriodicParalysis, that causes regularly weak muscles as well as hEDS. Trying to balance those two challenges is an issue. π€
@ccfernandez #SystemicSclerosis & #PeriodicParalysis β¦ have a non-profit working on broad increases in NIH funding (not for any one particular disease). Would love love love your help! Please DM me :)
The Periodic Paralysis Journet: A Rare Patient Story from the PPA Conference last October.
https://t.co/tdCyNClmIr #PeriodicParalysis @hkpp_network
All of the doctors from the conference are lined up to take questions from both the virtual and in-person audience #periodicparalysis #periodicparalysisawareness #raredisease
We are back again this morning at the #PeriodicParalysisAssociation conference. Dr. Rabi Tawil starts the morning with a presentation about Andersen-Tawil syndrome #periodicparalysis #andersentawilsyndrome #ATS
#Retigabine opens the potassium channel and could prevent the loss of force in the muscles in hypokalemic #periodicparalysis #periodicparalysisassociation #periodicparalysisawareness
For anyone who interested in #PeriodicParalysis, the PPA conference is on https://t.co/UQ2SAH8IIb #channelopathies
Service dogs are valuable allies to people living with periodic paralysis #RareDisease #Doggo #PeriodicParalysis
Check out Episode 3 of Ask The Expert from the Periodic Paralysis Association with a focus on genetic research: https://t.co/qkILIdDAiH #PeriodicParalysis #RareDisease https://t.co/YuQXFtD8W8
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