Top Tweets for #PersistentLyme
The statistics paint a bleak picture showing the reality for those with #Lyme #ChronicLyme #PersistentLyme #PTL in the UK/Ireland. As you will see, change is desperately needed in recognition and diagnosis of this disease, and in treatment.
"Researchers at MIT are thinking outside the box with a new long Covid, chronic Lyme disease study. Dr. Mikki Tal is heading the MIT MAESTRO research study." #MIT #PersistentLyme
https://t.co/3D3F4C00Tf
Congratulations to #BAL ELA Winner Peter Gwynne @petedoesscience & @TuftsLyme on the new grants to study #Lymedisease!
The researchers hope to gain a better understanding of #persistentLyme & develop better #Lymediagnostics & #Lymetherapeutics.
https://t.co/e09VG79zpv
@LymeBiobank's Dr. Liz Horn will be speaking @theNASEM Infection-associated chronic illness meeting & moderating the panel on patient-driven research. #Registration is free & make sure to check out the virtual component. #PersistentLyme #LongCovid #LymeDisease
Infection-associated chronic illness meeting is 1 week away. #LongCovid + Persistent #Lyme + #MECFS + #MS #Registration is free and there is a virtual component. Really stellar speakers and panels! @theNASEM https://t.co/FBOydyQMpu
Tezted presents #LymePapers! High-quality studies on #lymedisease & #tickbornediseases. Adkison & Embers (2023) discuss possible mechanisms behind #persistentlyme symptoms. #lymeresearch #borrelia #borreliosis #PTLDS #PTLD #tickplex #NotJustLyme https://t.co/5NPucQJ1e2
#BAL is proud to have supported Dr. Tal @ImmunoFever’s research since her Emerging Leader Award in 2018.
Learn more abt her lab's MAESTRO study: https://t.co/NGeZmKrrtW
#Lymediseaseresearch #persistentlyme
.@danaparish interviewed Dr. Liegner for an episode of Ticktective. Frustrated & perplexed by the lack of options for #persistentLyme, Liegner discusses how he came to prescribe disulfiram as an off-label therapeutic for his #Lyme patients. Read more ⬇️
https://t.co/g4dSGh6b0E
Read @danaparish’s recent interview with Bay Area Lyme Science Committee member Dr. Charlotte Mao. They discuss #persistentlymedisease & other #tickborneillnesses that are often misdiagnosed in children.
https://t.co/oDIxHIewwG
#lymedisease #persistentlyme #moldillness
Steps Forward, Systemic Flares, Seizures and Setbacks — A Revolving Door, This Life with Late-Stage, Lyme Neuroborreliosis | A Personal Reflection via @TerryMMayfield
#LymeDisease #ChronicIllness #PersistentLyme #Perseverance #Writing #SharingMyStory https://t.co/B12vsxEAPq
@JohnDCaudwell #longcovid is very similar to #persistentlyme #chroniclyme as many patients also go on to suffer #MECFS therefore this research is relevant to your cause and needs funding. I hope you can help if you haven’t already. TIA! ❤️
We are making huge progress! With your generosity we have gained $40,000 in the last hour! Thank you!
Hopefully not long before we achieve our target. Please share the campaign. #TeamClots #LongCovid
https://t.co/3QF8k9Bu8e
#Lyme #Ticks #LongLyme #LongCovid #longhauler #chronic #PersistentLyme
@aucott_john @JohnsHopkinsSPH @HopkinsMedicine @TuftsLyme @Lyme_X @CDC_eHealth @NIHRresearch @UCSF_ID @LACUSC_ID @BostonChildrens @broadinstitute @Stanford_ID @LymeBiobank @LymeBook
Neurological #LymeDisease symptoms are largely invisible and difficult to quantify.
A plea from @LonnieRhea to the TBDWG, "Don't medically abandon people with neurological Lyme." #InvisibleIllness #InvisibleDisabilitiesWeek https://t.co/Au36CdOVHe
@dianaberrent @danaparish @legalnomads @RoniNYTimes Thank you, thank you! Please know our #Lyme #ChronicLyme #PersistentLyme #LongLyme #TickBorneIllness community stands with you. #JoiningForces
@r_prior @morganstephensa My community empathizes with her, & all COVID Long Haulers, very deeply. Near identical post/para-infectious sequelae aligned with #Lyme #ChronicLyme #PersistentLyme community. For us, reading COVID Long Hauler stories is like being in the Twilight Zone. #JoiningForces
@YoDoctorYo Thank you for acknowledging #Lyme #ChronicLyme #PersistentLyme Decades of folks suffering unnecessarily, science can solve this. Thanks for what you’re doing.
"Tulane University researchers have found that a tick bite can lead to such persistent infections that traditional antibiotics may not ever completely eradicate the disease..."
#PersistentLyme
#IDtwitter
Researchers at Tulane are studying the long-term impacts of Lyme disease and how it can be cured. Read about their discoveries below ⤵ https://t.co/4UwHy3Be0r
@BayAreaLyme @AdvocatLyme @Lymenews @ProjectLyme @Lyme_X I've been existing with what I have called "chronic" Lyme symptoms, for 15 years now. "Persistent Lyme Disease" (PLD) is now my choice of monikers for this devastating, life altering hell. #PersistentLyme #PLD #LymeDiseaseAwarenessMonth
Here is some important information about Persistent Lyme Disease (PLD): https://t.co/XEIzfXkiru #Lyme #PersistentLyme @ilads_lyme @IDSAInfo @HHSGov #TBDWG @Lyme_X @CDC_NCEZID @CDCgov @CAPublicHealth @#TickAct @lyme_action #ticks
We are using the term Persistent Lyme Disease (PLD). Of course many patients with persistent symptoms also have undiagnosed co-infections but evidence shows that Borrelia often persists after standard antibiotic treatment. @ilads_lyme @ImmunoFever @cychiu98 @StanfordMed #ticks
Lyme disease is the most common vector-borne infectious disease in the USA. #Lyme #Babesia #Tick #Covid #longhauler #Chronic #PersistentLyme @ImmunoFever @Lyme_X @cychiu98 @PardisSabeti @broadinstitute @MIT @StanfordMed @drschweig @LymeInnovation
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