Top Tweets for #learnaboutMECFS
‘Voices from the Shadows will literally save lives and spare much unnecessary suffering and bring much-needed understanding about the reality of #ME. This documentary urgently needs a way to be seen by the masses. Please go to https://t.co/AbxH4mgKqW for more information.’
“CFS skeletal muscle cells are unable to utilise glucose to the same extent as healthy control cells.“
#meded #gpnews
https://t.co/R8er8z8GDz
#mecfs
#learnaboutMECFS
@Hemmeli__ Workwell Foundation videos on harmful graded exercise therapy and objectively testable (2dayCPET ) physiological NOT behavioural post exertional malaise https://t.co/pCrmbLuImZ
#MECFS
#stopGET
#LearnAboutMECFS
#GPNews #MEDED
#MEawarenessHour
#ME #MECFS ME CFS #CFSME #CFS
#GPnews #Paediatric #MEDED #GPcpd #LearnAboutMECFS
No persecution of patients in Iceland , yet about 1 a month in U.K.
Parliamentary debate 1in5 families wrongly accused of factitiouse induced illness https://t.co/tH39J90zyv
@RemediesPodcast @YouTube Based on #opinionNotEvidenceBased #MEinterventions . Use the hashtags 2 see many don’t have research 👉activity management , GET 4 #kidswithME + #severeME including housebound Notorious #PaceTrial was done 4 safety. Contraindicated ! #2dayCPET #GPnews #MEDED
#LearnAboutMECFS
patients are also within their rights to record consultations https://t.co/b4g8Mq5xH4
#mecfs #ME #kidswithME #severeME #pwme
#GPnews
#StopHarmingME #LearnAboutMECFS #opinionNotEvidenceBased guidelines + #MEinterventions
@BlackDressDay1 @consent_patient @TinaRodwell1 @thegodofpleasur @wigglethemouse @emmajoy6 @LouCorsius @CatEye0611 Montgomery Case, Drs must make patients aware of treatment risk. The yellow card scheme needs to include CBT/GET and patients should be pressing Dr for information.
Why did physicians not look at the actual research then they would see it was pseudoscience
#MUSnonsence
https://t.co/s35kuXcyWB
#GPnews
#Paediatrics #MedTwitter #Meded #LearnAboutMECFS
Metabolism of moderately ill response to strain of reading a book , equivalent to response of a healthy person’s body to strenuous workout .
#pem #postexertionalMalaise
#LearnAboutMECFS
#stopharmingME
#ME #mecfs #kidswithME
"The body and metabolism of a moderately ill #PwME responds to the strains of reading a book the same way as a healthy person body would respond to a real tough workout session." ❗️ says @KatarinaLien A physician and researcher trying to unravel #PEM 👇🏼 #MECFS
@postersandme @Severe_ME @TinaRodwell1 @RogerBourlet @tymestrust @JaneCColby @AndyH___ @MyhillNews @keithgeraghty @newhealthpsych @agirlandme #OpinionNOTevidenceBased
Aquired , metabolic , multisystemic , chronic ,with impaired energy metabolism
#ME
#mecfs
#kidswithME
#2dayCPET
#ICPET
#metabolicTrap
#mitochondria #mitochondrialdysfuction #stopHarmingME
#GPs #GPnews #Paediatrics #Meded #LearnAboutMECFS
@SoniaMonette @Dr_M_Guthridge #ICC #internationalConsensusCriteriaME (2012) mentions areas hypoperfusion differentiating #mecfs patients from depression #learnAboutMECFS #ME #pwme #kidswithME https://t.co/G0tpHrnA6G #GPnews #paediatrics #learnaboutME #MedEd
#GPnews #paediatrics
#LearnAboutMECFS #postExertionalMalaise #MedEd
#StopharmingME
#OpinonNotEvidenceBased Guidelines . Evidence gaps #MEinterventions https://t.co/50RbVyXo4R
@SSRI_Injured @recover2renew @postersandme @suejonessays @StefBenstead @Georgeberger @alyne_duthie @benzosarebad @RacistToriesOUT @simonjduffy @blueannoyed @keithgeraghty @Butterworthy @DPAC_Bristol @Pegasus3737 @blacktriangle1 @johnpringdns @CMonaghanSNP @NickyMorgan01 @newhealthpsych @RemediesPodcast @Meg_HillierMP @davidtuller1 @KeelaToo @Shrink_at_Large @PsychSocChange @thestonebird @Debbie_abrahams @CBTWatch @Mad_In_America @CEP_UK @ReadReadj @truthaboutbigc #LearnAboutMEcFS
#ME #MECFS #pwme #kidswithME https://t.co/eS0BYPM7u1
1) There’s a new study on 2-day exercise testing in ME/CFS.
The Australian authors found a significant reduction in workload at ventilatory threshold (a proxy for the aerobic threshold) in 16 ME/CFS patients compared to healthy controls.
Open Access at: https://t.co/PeElU7Q0BV
#GPnews
#Paediatrics #socialwork #occupationaltherapy #physiotherapy
#StopHarmingME #LearnAboutMECFS #MEcfs is not behavioural deconditioning , activity avoidance or MUS
To reiterate my commitment to these points & to highlight that I read Dr Unger's message after registering (Medscape). Link to resources. Video is same as text. Thank you Dr Unger. "ME is a biological condition" BOOM! 💥Not news. Time for treatment & discoveries. @CIHR_IRSC
I've just finished this. I'll be recommending to @IrishMECFSAssoc medical education subcommittee we use this for some of our #MedEd initiatives this year alongside more standard medical material. Some doctors might be more willing to listen to her as she's an MD.
#MEcfs #CFS
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