@chydorina Last question, my IgE is 30x the max limit. Is that something that would exacerbate MCAS? My immunologist says it is just normal allergies and does not acknowledge MCAS
@tinkerbell_ish Sure, what I meant is that from my consultation. It seemed like he was convinced it's primarily endothelial damage and that's what he's focused on treating via removing the clots to help it heal up. He put me on triple anticoagulant therapy. I never had PEM or POTS though
@tinkerbell_ish Yes, I've been to over 50 doctors here in the EU and so far he's been the only one that has some idea of what's going on. He's more of a vascular specialist and I don't know that he's too willing to entertain ideas of viral persistence etc. If there are clots, he'll find em
@tinkerbell_ish Dr Laubscher in South Africa may be able to help. I know it's far but he really is a vascular specialist and knows a lot about LC, endothelium disorders etc
@ahandvanish@ElianaUku@ar_pnw https://t.co/pf9qAF5KUL
Would recommend taking a look at this. I actually have it at home, just don't trust the supplier enough to take it.
@chydorina @ales_frost @remissionbiome@rhymeswithvery Makes sense! If you don’t mind another question, did you guys manage to test for microclots? Flew down to South Africa to get this tested and I had quite a few. If yes, would be interesting to compare a before and after.
@chydorina@rhymeswithvery@remissionbiome Big fan of what you guys are doing! But to answer your question with a question, why did you decide on making this research public before having any conclusive results?