Brenda Cruz

Mom of two amazing teens and wife of an ALS warrior. #liveinthemoment

[Brenda Cruz @lneedthesun]

Really hope this generous donation goes to the right places!!!

[Brenda Cruz @lneedthesun]

https://t.co/QxhZ6XuuyX.

[Shah Minokadeh, M.D. @MinoShah]

This is the same procedure for injecting #Nurown for anyone who doesn't know.

Tofersen and Nurown are both delivered by intrathecal injection which usually takes no more than 5 minutes.

Intrathecal injection means into the spinal fluid BELOW the spinal cord.

[Lesha Jett @ImLolly713]

We are connected always 🌹🌙❤️‍🩹
My sister @JamieRoseBerryy should be alive. #ALS, #FDA & the ALSA withheld HOPE. JAMIE ROSE BERRY never gave up but even the strongest Warrior needs a weapon in battle. #NurOwnWorks but the arsenal is behind FDA walls. #diedwaiting 💔🌈 #ENDALS

[Shah Minokadeh, M.D. @MinoShah]

Michael, diagnosed with #ALS at 37 years old, died WITH NO CHANCE OF SURVIVAL.

HOW MANY MORE HAVE TO DIE before @DrCaliff_FDA @FDACBER treats 100% FATAL ALS with the same URGENCY/FLEXIBILITY as cancer treatments?

Congress, DEMAND an #AdComm hearing for safe/effective #Nurown. #NoAdComNoVoice

You are MISTAKEN if you believe HORRIFIC ALS can't happen to you.

@RepAnnaEshoo @michaelcburgess @boblatta @RepMGriffith @RepGusBilirakis @RepBillJohnson @RepRichHudson @RepBuddyCarter @DrNealDunnFL2 @RepDanCrenshaw @RepJohnJoyce @RepHarshbarger @RepMMM @JayObernolte @cathymcmorris @RepSarbanes @RepCardenas @RepRaulRuizMD @RepDebDingell @RepAnnieKuster @RepRobinKelly @RepBarragan @repLBR @RepAngieCraig @RepKimSchrier @RepLoriTrahan @FrankPallone @timkaine @SenatorHassan @SenTinaSmith @BillCassidy @RandPaul @SenatorCollins @SenMullin @lisamurkowski @SenatorBraun @RogerMarshallMD @SenatorRomney
@RepAndyHarrisMD @DickDurbin @SenJohnThune @RepDianaDeGette @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @chairmang

[Lesha Jett @ImLolly713]

#ALS Warriors are some of the strongest people on Earth. But Warriors need a weapon to fight. #NurOwn should be in every ALS Warriors reach! The @US_FDA has the arsenal but are ignoring the war. They think the "knives aren't sharp enough". ANYTHING is better than NOTHING! #ENDALS

[Craig Reagan @CraigReagan2]

.@US_FDA the #ALS community delivered you a petition to grant #NurOwn a transparent and informative AdCom three months ago. While we wait, people have died from this 100% fatal disease. Provide the flexibility & speed you promised for ALS. Schedule. The. AdCom. #NurOwnworks

[Shah Minokadeh, M.D. @MinoShah]

Jennifer died of 100% FATAL #ALS yesterday

CONGRESS, ALS devastation continues EVERY DAY IN EVERY COMMUNITY & the incidence is increasing

Dying ALS NOW & FUTURE DIAGNOSED NEED Congress to DEMAND @DrCaliff_FDA @FDACBER grant an AdComm hearing for safe/effective #NurOwn.
#NoAdComNoVoice

@SenBillCassidy

@SenMullin

@lisamurkowski

@SenatorBraun

@RepGuthrie

@RepLarryBucshon

@RepAnnaEshoo

@michaelcburgess

@boblatta

@RepMGriffith

@RepGusBilirakis

@RepBillJohnson

@RepRichHudson

@RepBuddyCarter

@DrNealDunnFL2

@RepJohnJoyce

@RepHarshbarger

@RepMMM

@JayObernolte

@cathymcmorris

@RepSarbanes

@RepCardenas

@RepRaulRuizMD

@RepDebDingell

@RepAnnieKuster

@RepRobinKelly

@RepBarragan

@repLBR

@RepAngieCraig

@RepKimSchrier

@RepLoriTrahan

@FrankPallone

@RepJasonCrow

@TeamCalvert

@RepBrianFitz

@RepTerriSewell

@ChrisCoons

@RepAndyHarrisMD

@DickDurbin

@SenJohnThune

@RepDianaDeGette

@RepMikeQuigley

@janschakowsky

@rosadelauro

@RepJohnCurtis

@DorisMatsui

@chairmang

@RepScottPeters

[Brian Wallach @bsw5020]

It’s Friday, and I have amazing news to share about No Ordinary Campaign:

After 3 years of work, @noc_film will have its world premiere at the Chicago Film Festival and then play 2 nights at the Heartland Film Festival!!!

If you have not seen it yet, watch the trailer below👇.

[Brenda Cruz @lneedthesun]

#NewProfilePic

[Brenda Cruz @lneedthesun]

https://t.co/CRKgPjg50K

[Brian Wallach @bsw5020]

When the director of No Ordinary Campaign started working on it, he looked me in the eyes and said, “You will be alive to see it.”

He was right.

And now it’s real. I hope you will check out the new site and share far and wide our story of hope made real.
https://t.co/oXbRTuZAak

[Monticello T&F @MontiTrack]

Congrats to the Monti Track Teams on their home Victories last night over TriValley, SW, Eld, LM/R. Both Teams improve their Record to 5-0! @MontiAthletics @MonticelloCSD @MontiHS_Pride @MiddleRjk

[Sandra Abrevaya @sabrevaya]

Honored to have President Biden share our family's personal story and the story of this patient led movement.

Honored to walk with the bravest souls on earth in this fight to stay alive.

Let this be the first generation of ALS survivors.

#NeverGiveUp

[BrainStorm @BrainstormCell]

President Biden signed #ACTforALS into law. We are thrilled to celebrate this enormous step forward. Congratulations to those waging the fight against #ALS for making today possible. We look forward to swift implementation as we continue working to deliver new treatments. #ENDALS

[Brenda Cruz @lneedthesun]

@SarahNauser Merry Christmas 🎄

[Brenda Cruz @lneedthesun]

One of the most inspiring people I follow. Follow him! He will inspire you too!

[Brian Wallach @bsw5020]

So this is amazing:

A donor to @iamalsorg has just pledged to donate $5,000 (up to $25K) for every 1,000 new followers that follow me in the next 24 hours.

Twitter can you please help this ALS-having, “not today”-believing, “good night moon”-tweeting guy out?

#Grateful

[No More Excuses ALS Watchdogs! @als_now]

1/ It has been just over a year since the data from the Phase 3 trial of the NurOwn trial was labeled a "failure". I was lucky enough to have completed that trial. Patients were disappointed to see the tepid reaction from the #ALS community, despite the anecdotal evidence, plus..

[Michael @mpabull]

So we had 3 house members goes against ALS yesterday…
Who are the 4 Senators to step up and co sponsor and help get this passed!
Social media thank you’s will be plentiful!