Ryan Tofteland

Husband. Father. Fighting ALS one day at a time.

[Ryan Tofteland @ryantofteland]

@ALSA_MNNDSD @PQuinnfortheWin And we’ll see you tomorrow night!

[Ryan Tofteland @ryantofteland]

@jasonbock Thanks Jason!

[Ryan Tofteland @ryantofteland]

I am grateful for the leadership and support @RepDeanPhillips has brought to the fight against ALS. Than you for being one of the #ALSChampions and taking it to the next level by joining the new bipartisan #ALSCaucus. #MN03

[Ryan Tofteland @ryantofteland]

What is ALS? Check out the video.

[I AM ALS @iamalsorg]

After lots of people dumped ice on their heads did you ever find yourself wondering, what the heck is ALS?

We did. And so did most Americans.

So we set out to answer this question in less than 60 seconds.

Watch. Share. Help kick some #ALS.

[ALS TDI @ALSTDI]

Our partners at @Google will be presenting our joint publication “Personalizing ASR for Dysarthric and Accented Speech with Limited Data” at the Interspeech 2019 conference. https://t.co/D98zVg3w3Y This exciting work presents an approach to improve ASR for people with ALS.

[I AM ALS @iamalsorg]

On July 24th, we held a groundbreaking meeting with @US_FDA and @BrainstormCell to discuss the potential breakthrough #ALS treatment, #NurOwn and efforts to speed treatment access to the ALS patient community.

Read more about the meeting results here:

https://t.co/8aMMzOW9zr

[Ryan Tofteland @ryantofteland]

Thank you @SteveGleason. Who else can jump in and sign?

[Steve Gleason - "Live Impossible" @SteveGleason]

If you've been inspired by anything I've done in the past, I urge you to help me/us with this. It's time the @US_FDA delivers on its unmet promise.
I signed. I invite everyone to sign - everyone. Name, email, zip code. Read, sign, retweet. Let's get 10k Signatures by July 18th!

[Ryan Tofteland @ryantofteland]

Signed! Who’s next?

[I AM ALS @iamalsorg]

15 pALS and cALS wrote a letter to the FDA to hold them accountable for the long overdue ALS guidance document.

When we hand deliver this letter we want your name on it. This is all of our fight. Make your voice heard.

Read the letter and sign it here: https://t.co/9Tm8b5QdXj

[Ryan Tofteland @ryantofteland]

@mike_stevie I believe so yes - for the right price.

[Ryan Tofteland @ryantofteland]

@BrandesEric Standard def??? Is that going to cut it? I think I’ve got a 19” CRT tv somewhere if you’d like to borrow. BYO-coax cable.

[Ryan Tofteland @ryantofteland]

In honor of #4 Lou Gehrig's "Luckiest Man" #80YearsAgo, I'm drafting 4 champions to join the fight to #EndALS & join https://t.co/nw5tjgbbp5
1.) @LegacyRetreats
2.) @GingaNinjaKing
3.) @alsnewstoday
4.) @MayoClinicNeuro

After you join, pick your 4 in the #ALSdraft

[I AM ALS @iamalsorg]

Today, as we mark 80 years since Lou Gehrig announced his ALS diagnosis, we have one ask of you: Help us finally end ALS by sharing this video and tagging three of your friends. Ask them to join the fight by signing up: https://t.co/Kk8VD7VWdj

[Ryan Tofteland @ryantofteland]

Thank you @RepDeanPhillips for being an #ALSChampion and defending access to non-invasive ventilators for those with ALS. #MN03

[The ALS Association @alsassociation]

Thank you to the 38 Senators & 178 Representatives defending access to ventilators for people with #ALS! Congrats to all the advocates for mobilizing Congressional support. Did your member of Congress sign the letter? Find out: https://t.co/yKcnZHmqi3
#ALSAdvocacy #ChallengeMe

[Ryan Tofteland @ryantofteland]

@bsw5020 Love this. Thank you!

[Ryan Tofteland @ryantofteland]

Thank you @RepBrianFitz, @KenCalvert, @RepJasonCrow, and @RepTerriSewell for being #ALSChampions.

[I AM ALS @iamalsorg]

Thank you @RepBrianFitz, @KenCalvert, @RepJasonCrow, and @RepTerriSewell
for co-founding the #ALSCaucus: A bipartisan group working to raise awareness about #ALS, think creatively about policy solutions, and accelerate our fight for a cure. You are all #ALSChampions.

[Ezgi Tiryaki @Neuro_Edu_ET]

Lessons for #ALSTrials-this echos insights from Dr. Bedlack’s research @dukealsclinic on barriers for participation and why research offerings are a part of comprehensive care at ALS Centers of Excellence through @ALSA_MNNDSD https://t.co/hyPrIclJcy via @NYTimes

[Ryan Tofteland @ryantofteland]

Thank you @SenTinaSmith for signing on this week to co-sponsor S.578 to waive the 5 month SSDI waiting period for those living with ALS. Together you and @SenAmyKlobuchar are MN’s #ALSChampions in the Senate. #EndALS #ALSAdvocacy

[Ryan Tofteland @ryantofteland]

@jasonbock Is this a tabs vs spaces thread?

[I AM ALS @iamalsorg]

ALS. MS. Parkinson's. Alzheimer's. Huntington's. Frontotemporal Dementia.

They are all linked. They all have no cure.

We can change that. We will change that.

Cure one. Cure all. #CuresForAll

We are the ones we’ve been waiting for.

[Ryan Tofteland @ryantofteland]

Woman wins battle for rare disease council in Minnesota | https://t.co/57RdnwlbCJ https://t.co/R9dbAI4rCh