Carolina Sunada

Spanish teacher at RCHS ...go Cougars!! Westside transplant, UCLA alum ...go Bruins!!

[Barack Obama @BarackObama]

Through struggle and discipline, persistence and faith, Dr. Martin Luther King, Jr. helped move this country forward. As we honor his legacy today, let’s remember the lesson he taught us: that even in the face of impossible odds, people who love this country can help change it. In honor of #MLKDay, I hope you’ll do what you can in your community to create a better future for us all.

[Newsweek @Newsweek]

I was in denial that it was anything serious, and yet I wasn't improving no matter how much personal training I did. https://t.co/FH3WHRFpgx

[Carolina Sunada @SraSunada]

At ATL airport going on 3 hours standing in line to speak with a @Delta agent about rebooking after my flight was cancelled.
There are hundreds of people waiting and only a handful of agents.
Do better @Delta. A bottle of water and a granola bar doesn’t compensate for this.

[Coach Moisa @coach_moisa]

We just finished the 2nd week of Rancho High Tennis Camp - we still have one more week - openings still available for Week 3 - see attached flyer! Girls tryouts July 29-Aug 1, 2024-Mon-Thurs- 3pm-430pm
@RanchoHSCougars @RCHS_SA @sports_rchs @RCHSAchievement @MrRobertSanch

[Carolina Sunada @SraSunada]

@BHildebrandRCHS 🙏🏼🙏🏼🙏🏼 prayers for health and healing, Coach!

[New York Yankees @Yankees]

Today, as we commemorate the 85th anniversary of Lou Gehrig’s legendary “Luckiest Man” speech, we are honored to be joined by some of the most dedicated and inspiring local organizations in the fight against ALS: @ALSofGNY, @ALS_RideForLife, @HerALSStory, @iamalsorg, and Quinn for the Win.

To help “Strike Out ALS” please text “ALS” to 44321.

[Carolina Sunada @SraSunada]

@neil_emms 💗 so very sorry for your loss.

[Carolina Sunada @SraSunada]

@SeanDollars You go, Sean! Bravo 👏🏽 👏🏽

[No More Excuses ALS Watchdogs! @als_now]

Q: If the people in the payment downline get so excited over every "novel" new drug that supppsedly slows #ALS (death) by 34%, 68%, or "5 or 6 months" (with little to zero anecdotal evidence), why was the only drug in #ALS history denied when it slowed #ALS progression by 125% in some- with plenty of anecdotal evidence of visible function and life preservation? Would it have anything to do with sponsorships, photo-ops, or other interesting business relationships? #ENDALS

[Carolina Sunada @SraSunada]

This is ALS —gratitude and sadness, anger and joy, bittersweet moments every day.
@CeciCrow

[Brian Wallach @bsw5020]

These days I often find myself crying when I think about my daughters. I am sad that I cannot do what other fathers do and I cry happy tears because I am lucky to still be here with them. I carry both emotions in my heart and it shapes who I am.

Good night moon.

[Brian Wallach @bsw5020]

For the past six years, Sandra and I have advocated nonstop. We do so because people living with ALS right now deserve the chance to be a part of the first generation to survive ALS.

Not today, ALS. Not today.

[NBC Asian America @NBCAsianAmerica]

Californians are honoring the influential Filipino American labor rights leader Larry Itliong, who organized strikes and built coalitions between farmworkers alongside César Chávez and Dolores Huerta. https://t.co/yhTCRLNwCG

[Shah Minokadeh, M.D. @MinoShah]

.@DrCaliff_FDA, 37 year old Scott died last week of #ALS leaving behind his wife & 2 young children

This is the fate of ALL who are diagnosed 154 years after ALS was first identified

CONGRESS, help END the CRUEL @FDACBER regulatory for 100% FATAL ALS.
Grant #NUROWN Accelerated Approval with a Phase 4 postmarketing study.
#NurownWorks #NurownIsSafe #CriticalUnmetNeed

ALS IS NOT RARE & it's rapidly becoming more common.

You're MISTAKEN if you believe that HORRIFIC #ALS can't happen to YOU.
>90% of people diagnosed have NO family history.

You or your loved one could be next.

Don't wait for ALS to enter your life to ACT.

@RepGuthrie @RepLarryBucshon @RepAnnaEshoo @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun
@RepJasonCrow @TeamCalvert @RepBrianFitz @RepTerriSewell @ChrisCoons @RepAndyHarrisMD @PattyMurray @SenatorDurbin @SenatorHassan @RepDonBacon @SenSanders @RepMMM @RogerMarshallMD @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @RepBarragan @RepAngieCraig @RepKimSchrier @RepLoriTrahan @cathymcmorris @SenAmyKlobuchar @SenatorWicker @SenKevinCramer @JohnBoozman @SteveDaines @RepStephenLynch @RepMariaSalazar @RepJenniffer @RepPaulTonko @RepChuck @Congressman_JVD @RepDavids @kevinmullin @RepChrisPappas @SenRickScott @neeratanden46 @michaelcburgess @SenMarkey

[Shah Minokadeh, M.D. @MinoShah]

I am dying of #ALS WITH NO CHANCE OF SURVIVAL after being diagnosed at 35 years old,

I have been left to die denied #NUROWN due to the CRUEL @FDACBER regulatory RIGIDITY for 100% FATAL ALS, despite witnessing YEARS of UNPRECEDENTED #RealWorldEvidence of efficacy.

@DrCaliff_FDA, grant NUROWN Accelerated Approval with a Phase 4 postmarketing study.
#NurownWorks #NurownIsSafe #CriticalUnmetNeed

CONGRESS, dying #ALS patients, with broken bodies & no Big Pharma allies, NEED YOU to advocate on our behalf.

I have been aware & witness to the destruction of my life as #ALS has ravaged my body.

HORRIFIC 100% FATAL #ALS IS NOT RARE & is rapidly becoming more common.

>90% of the afflicted, like me, have NO family history.

You're MISTAKEN if you believe that HORRIFIC ALS can't happen to YOU.

Don't wait for ALS to enter your life to ACT.

@RepGuthrie @RepLarryBucshon @RepAnnaEshoo @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun
@RepJasonCrow @TeamCalvert @RepBrianFitz @RepTerriSewell @RepAndyHarrisMD @PattyMurray @SenatorDurbin @SenatorHassan @RepDonBacon @SenSanders @RepMMM @RogerMarshallMD @RepDianaDeGette @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @RepBarragan @RepAngieCraig @RepKimSchrier @RepLoriTrahan @cathymcmorris @SenAmyKlobuchar @SenatorWicker @SenKevinCramer @JohnBoozman @SteveDaines @RepStephenLynch @RepMariaSalazar @RepJenniffer @RepPaulTonko @RepChuck @Congressman_JVD @RepDavids @kevinmullin @RepChrisPappas @SenRickScott @neeratanden46 @michaelcburgess @SenMarkey

[Carolina Sunada @SraSunada]

My sister @CeciCrow is living with this horrific disease and is dying waiting for a treatment to be approved and released. #endALS #NurownNOW #ALSwarrior

[Shah Minokadeh, M.D. @MinoShah]

As ALS progresses and you can't move or speak, your life is largely spent alone inside your head.

This loneliness is brutal. I hope that nobody else has to experience the EXTREME suffering of ALS. #EndALS

[Brian Wallach @bsw5020]

This is me. I am a 42 year old father and husband living with a currently fatal disease, ALS.

I tweet about ALS, advocacy, changing the world and my life. My tweets have been called inspiring and raw.

I dare you to follow me. You won’t regret it.

[Carolina Sunada @SraSunada]

My sister @CeciCrow is #1IN400 and fighting for her life.
I hate that this disease exists. I hate that our family knows what it is. But now that we do, we’re charged with raising awareness so that others can be spared the horror of this cruel disease.
#ALSAwarenessMonth

[Shah Minokadeh, M.D. @MinoShah]

100% FATAL #ALS IS NOT RARE & the incidence is increasing

Over 90% have NO family history or risk factors. YOU/YOUR LOVED ONE COULD BE NEXT

Congress, END the CRUEL @FDACBER regulatory RIGIDITY for ALS.
Tell @DrCaliff_FDA to grant NUROWN Accelerated Approval.
#NurownWorks #NurownIsSafe

How many more have to die before the #FDA treats #ALS with the same urgency and flexibility as cancer treatments?

@RepGuthrie @RepLarryBucshon @RepAnnaEshoo @RogerMarshallMD @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun @cathymcmorris @RepSarbanes @RepJasonCrow @TeamCalvert @RepBrianFitz @ChrisCoons @RepAndyHarrisMD @DickDurbin @SenJohnThune @RepDianaDeGette @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @RepBarragan @RepAngieCraig @RepBuddyCarter @RepKimSchrier @RepDonBacon @RepLoriTrahan @lindseyvonn @katefagan3 @SurvivorPenner @katiecouric @PhilRosenthal @jimmykimmell @michaelcburgess @RepMGriffith @RepGusBilirakis @PattyMurray @BernieSanders @POTUS @SenMarkey @SenatorHassan

[Carolina Sunada @SraSunada]

My sister @CeciCrow is dying waiting for access to #NUROWN. We urge @FDACBER to accelerate approval & access NOW. #ALS is a 100% fatal diagnosis -no cure. no treatments. #pALS like my sis research meds & experimental treatments praying something works to slow progression.

[Shah Minokadeh, M.D. @MinoShah]

Dan died of 100% fatal #ALS leaving behind his wife & 2 children.

Congress. @FDACBER regulatory RIGIDITY has left generations with ALS to #DieWaiting despite YEARS of #NUROWN safety & UNPRECEDENTED #RealWorldEvidence.

DEMAND #Nurown Accelerated Approval with a postmarketing phase 4 study. @DrCaliff_FDA
#NurownIsSafe #NurownWorks

ALS IS NOT RARE & the incidence is increasing. Don't wait for ALS to enter your life to ACT.

@RepGuthrie @RepLarryBucshon @RepAnnaEshoo @michaelcburgess @boblatta @RepMGriffith @RepGusBilirakis @RepBillJohnson @RepRichHudson @RepBuddyCarter @DrNealDunnFL2 @RepJohnJoyce @RepHarshbarger @RepMMM @JayObernolte @cathymcmorris @RepSarbanes @RepDebDingell @RepAnnieKuster @RepRobinKelly @RepBarragan @repLBR @RepAngieCraig @RepKimSchrier @RepLoriTrahan @FrankPallone
@BernieSanders @PattyMurray @SenBobCasey @SenatorBaldwin @ChrisMurphyCT @timkaine @SenatorHassan @SenTinaSmith @SenMarkey @SenBillCassidy @SenRandPaul @SenatorCollins @SenMullin @lisamurkowski @SenatorBraun @RogerMarshallMD @SenatorRomney @RepAndyHarrisMD @RepMikeQuigley @janschakowsky @rosadelauro

[Brian Wallach @bsw5020]

I never dreamed of seeing this headline on @people magazine.

https://t.co/DKFo9FLeIL