Top Tweets for #FDWarrior
Finally arrived in Oxford after a long drive. My beautiful girl @raachelxoxx has an appointment tomorrow at the Nuffield Orthopaedic Centre to see what can be done about the tumour in her skull. Fingers crossed #FDwarrior 🤞
@Army_RCN @GooseBayCO @FNOJeff @SummersideCO "Spreadsheets and Calendar invites" tome 5 of my memoirs. It will be coming out just in time for Christmas. #FDwarrior #RCN
My sons rare syndrome includes Fibrous Dysplasia as a "symptom" , lifes a bit tricky when you have an 80 yr bone age under 25 yr old skin but he makes us proud every day. #FDWarrior
"Just because you look different it shouldn’t stop you from going for what you want in life."🦋
Lottie is 13 and has a condition which pushes one of her eyes lower but it hasn't prevented her from following her acting dream.
👉 https://t.co/akZVej0rvo
#MyVisibleDifference
Archery and swimming, not bad choices for sports that can be done with hardware in your legs. #FDWarrior #fibrousdysplasia #raredisease #fdwarriors
Meet Camryn.
Camryn is a 19 year old #fdwarrior who will be staying at the @NIH starting the Denosumab trial. We’re asking you, no matter where you are in the world, to send Camryn a card or letter to lift her spirits during her almost-three-week hospital stay.
Wij waren aanwezig bij #zeldzameziektendag 2019 in Maastricht.
Kennis en ervaringen delen over #grensoverschrijdendezorg voor zeldzame ziekten in Europa.
#RareDiseaseDay #ShowYourRare #ShowYouCare #fibrousdysplasia #FDMAS #fdwarrior #fibreuzedysplasie @VSOPzeldzaam @RareEndoERN
Celebrating #RareDiseaseDay in honor of our #fdwarrior Zach. He was diagnosed in 2017 and has battled through 2 operations to repair fractures in his R leg. Super proud of this kid. #showyourstripes #mdanderson
As a person with a brain injury due to Fibrous Displysia, I have noticed significant cognitive improvement when I participate in music therapy.#FDwarrior https://t.co/quwoOSpARx
Music has the ability to repair brain damage.
Heel veel succes voor alle kanjers die vandaag lopen tijdens de Leiden Marathon ten gunste voor onderzoek naar #fibreuzedysplasie 👍👍👍
Go Go Go!!!
#leidenmarathon2018 #beterbot #fdwarrior #renmeevoorfd #trots @LUMC_Leiden
The irony of it being 7 years TO THE DAY since my first surgery(emergency neuro)& having a clunker of a migraine is not beyond me. Can't believe it's been 7 years since it all began. How much everything has changed. How much I've changed! It's an interesting day. #FDwarrior #MAS
Wishing this mad @ManUtd fan a very happy 14th birthday. Love you son, so very proud of all you do & the young man you're turning into.xx #fdwarrior #staystrong
My best friend runs the #GreatNorthRun today! 🏃🏽♀️ Good luck doll running for #FibrousDysplasia 💪🏻🎉 #FDwarrior #getinspired https://t.co/0zBBnu7aW1
@F3Nation this is #AubreyStrong she if a #fdwarrior this is the reason F3 means so much to me! @f3carterico @F3ENC this is my Hero!
Fibrous Dysplasia rare bone disorder in skull w/chronic head pain. #IAmAPreexistingCondition #FDWarrior #DrsSayI'm"Unique"
Going to uppsala 9 may to remove one pf the ill bones around my left eye. #fibrousdysplasia #fdwarrior #fd
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