Top Tweets for #PaceTrials
@sunsopeningband Now that I see them in lab coats, I realize I trust @iamjohnoliver & @jonstewart with science more than any #PACEtrials doctors. At least they know to consult good sources, to listen with care, to not be 19th century villains. #GreatestMEdicalScandal #JohnVsJonVsMe
@CounsellingSam @catsocialintel @wesstreeting @GwynneMP They will do what they did to ME sufferers and fund ‘flawed’ research, forwarding the narrative that LC is self inflicted and use it against LC folk.
#PACETRIALS & DWP who part funded it. I bet they have already planned it. I don’t think I can Vote for them knowing all this.
How are these trials getting through #ethics?
Who has been listening/ignoring fall out from
#PACETrials ? Such a costly way forward #MECFS #LongCovid new @NICEComms guidance is no longer new. #research
Highlights Baroness Scott speaking at the Long Covid debate in the House of Lords 17 Nov 2022.
Mentions similarities with ME, How ME has been ignored, the use of dangerous treatments, and how some Long Covid researchers are not using what has already been learnt from ME.
👆 On how the @TheLancet has become a reflection of the establishment, enforcer of the status quo, and has lost its way through series of slip-ups — publishing shoddy science like #PACEtrials + lack of transparency… The very things the Lancet was founded to combat.
What’s in a Name? The power of power, narrative, and of naming things that are so numerous we no longer see them.
A whistle stop of #PACEtrials #ME/CFS #LongCovid #NICE & on recognising the politics of illness & harms in medicine.
pp37-39 (abt 1/2 way in)
https://t.co/EGb9djxbXg
A great listen, whether you are familiar or not with conversations around ME/CFS it’s a great insight into some of Tom’s work-TY @TomKindlon & @LlewellynKing2 for this thoughtful piece.
“There’s seems to be a particular problem in Britain...”
#PACEtrials & #psychiatry in ME/CFS
ME/CFS researcher & advocate @TomKindlon is featured in a new episode of @LlewellynKing2's ME/CFS Alert: https://t.co/rsA9Kzr18Q. Tom discusses his battle with ME/CFS, his role in the PACE trials, & his advocacy work to improve understanding of ME/CFS in the medical community.
Great news..!!
Time for an independant investigation of the #PaceTrials..!!
#GMC #notguilty #research #MyalgicEncephalomyelitis #mecfs #doctors #patients #evidence
NEXT STOP THE PACE AUTHORS
Press Release by @BasicManual LTBM says
"Dr Sarah Myhill Exonerated In Latest Battle with The GMC"
LTBM asks
"Was This A Politically-Motivated Prosecution?"
"Has The GMC Gone Too Far This Time?"
Read the whole story here - https://t.co/S6O0Smkcd2
The Mayo Clinic has removed recommendations of Graded Exercise Therapy (GET) & Cognitive Behavioral Therapy (CBT) from their webpage on ME/CFS! This signifies increased understanding of ME/CFS in the medical community, & helps to protect from potentially harmful recommendations.
Medical harm & negligence.
Embrace the change of heart that seems to have come from Prof W statement yesterday on #longcovid - but it will be hard to believe w/o any acknowledgement & reparation of harm that has been done for decades to #pwME from #PACEtrials & pervasive beliefs
Det opdaterede Cochrane review erkender også, at
De fleste studier i #pacetrials er baseret på bredere diagnosekriterier end hvad der aktuelt anbefales. Og at andre diagnosekriterier kan give andre resultater.
#sundpol #mecfs #pain #MyalgicE #ICC4me @JaneHeitmann @Blixt22
@cjball_london @paulapeters2 @DPACSheffield @blacktriangle1 @suejonessays @AnitaBellows12 Plse RT the post below & posts from @Dr_M_Guthridge to help raise awareness of the danger to ME patients posed by flawed #GETCBT treatment protocols derived from suspect #PACEtrials.
Going down the rabbit-hole of the #PACEtrials debacle and feeling sick to my stomach. As a #physio my drive is to help patients and #gradedexercise is key for so many of my patient groups. But for #ME #CFS it is the wrong approach. (1/2)
Going down the rabbit-hole of the #PACEtrials debacle and feeling sick to my stomach. As a #physio my drive is to help patients and #gradedexercise is key for so many of my patient groups. But for #ME #CFS it is the wrong approach. (1/2)
I was diagnosed with ME/CFS in 2000 I am a doubly qualified nurse with 27 years experience . I was forced to go back to work by DWP in 2011, I worked in Tesco on checkouts I was sacked by them in Sept 2017 I’m worse now than for years :( #PACETrials #Get #MECFS
Today's #MEdebate is 2pm plse share social media & urge your MP to attend.Whats your experience of asking for help from your MP & @dwp @NICEcomms your outcomes if given wrong #pacetrials was your child harmed by GET?
@Reuters_Health You call yourself a health science Journal with an article like that. You should be ashamed of yourself. The 100% proven facts from the papers & emails forced to be released 5 years after #PaceTrials show they manipulated results to get results they wanted #mecfs
Thank you @TheFeedSBS for powerful piece on #MyalgicEncephalomyelitis & lack of access to @NDIS. Over 200,000 Australians appreciate your explanation of the flaws of #PACETrials and the dangers of #GradedExerciseTherapy. Thank you @EmergeAus @davidtuller1 @SusanOpine #NCNED #cfs
A journalist is working on a piece on the PACE trial (of graded exercise, CBT, etc.) & would like to hear from individuals who have been affected by issues relating to it on a personal level. She has asked me to highlight her request.
Her email address is: [email protected]
Stop The Abuse - Dr. Myhill On PACE Exposed https://t.co/ufbqGufe0M via @YouTube #PaceTrials #PACE #MECFS #MAIMEs #ME #CFS #Fibromyalgia #Fibro #PostViralSyndrome
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