Top Tweets for #milionsmissing
Gov invests £4.75m in research. Good news for #WorldMEDay.
Congratulations to Action for ME, The University of Edinburgh, Decode ME Study, Oxford Nanopore Technologies, and the European Bioinformatics Institute (EMBL-EBI)
https://t.co/hl5BlwRLJC
#MilionsMissing #MEAwarenessWeek
Good news for #WorldMEDay. Gov invests £4.75m in research.
Congratulations to Action for ME, The University of Edinburgh, Decode ME Study, Oxford Nanopore Technologies, and the European Bioinformatics Institute (EMBL-EBI).
https://t.co/WQxmxFD6uk
#MilionsMissing #MEAwarenessWeek
学ぶ・食べる・笑う・ぜんぶある
お！楽しいぞ💙 👩🦼🚶♂️👨🦼🚶♀️Go！
#MEマルシェ
（ハンドメイド作家さん asさん🍞🍗🍡
カラフル編み雑貨やさん 相談🌷 整体師さん 841）
#mecfs #知って欲しい #841擬似体験
#岡崎APS部 #nightingale #MilionsMissing
5/10 シビコ3階
10:00〜
※チラシ完成後再🆙
❤️🩹💜 Proof of life, for those who care💜❤️🩹
TW: attempts
hey all.. I know it's been several months, but has it really been almost a year?! I left Twatter, joined the Millions Missing after beign here everyday for like 6? years lol
I say #milionsmissing because my family has LC and I dropped off quietly like so many others... Finally gave up after YEARS of harassment/abuse/so much drama on top of constant sh@dwban I couldn't take it anymore. But I didn't jsut fall off the map.... I went over a literal/mental/psychological edge, still tryna find my way back...
Hanging by a single thread for soo so long, when it snapped I fell apart and lost everything. Everything. Nearly died, many times... tried to unalive like I was determined... That was back in summer/fall.. they said it was a "trauma-induced psychological break." But I still somehow had to take care of my newly disabled hubby and our 7yr child.. jsut to hold onto 1BR apartment for our family of 3 🙃 So I had to disappear for awhile, then try to get my job back in time to save our housing, and I HAD to avoid this hellsite... even tho it was my only community, many comrades i truly miss...
Hardly anyone noticed anyway lmao
But ✨IF✨ you remember me the 3+ years of daily mutaid community aid work I did for the most marginalized.. Please say hi, drop a GIF or sumthin plz it's been lonely AF. for literally Years... TIA 💜
Kommt heute um 10 (-12) Uhr zum #heldenplatz in #Wien zum #SchuhProtest für #mecfs Patientens!
Ebenso in #Berlin , #salzburg und weitere!
#MECFSAwarenessDay
#MEAwarenessDay
#milionsmissing
#unnversorgseit1969
Kommt heute um 10 (-12) Uhr zum #heldenplatz in #Wien zum #SchuhProtest für #mecfs Patienten von der @oeg_mecfs!
#MECFSAwarenessDay
#MEAwarenessDay
#milionsmissing
#unnversorgseit1969
Wieso eigentlich ein Schuhprotest für #MECFS vorm Parlament in Wien von der @oeg_mecfs?
#MECFSAwarenessDay #milionsmissing #MEAction #unversorgtseit1969
I would love for someone from the ME/CFS world to apply! We need allies on the US Preventive Services Taskforce. See information below. #mecfs #milionsmissing https://t.co/S15jTQJOQI
Meine Tanzschuhe stehen seit Jahren unbenutzt im Schrank. Aus der Tanzgruppe bin ich verschwunden,als wäre ich verstorben.15 Jahre an #MECFS erkrankt,nach 12 Jahren und 24 Ärzten die Diagnose. Keine Therapie. #MECFSimBundestag #milionsmissing @Karl_Lauterbach @CduEuskirchen
Yes! As with @oslersweb Hilary Johnson's brilliant 1996 book 'Osler's Web,' writing that is both meticulously researched and a compelling read for anyone who wants to understand the history of the #CDC's catastrophic response to #MyalgicE patients soon to become #MilionsMissing.
May 12th: 30th International #MEAwarenessDay. If your Dx is #MyalgicE or so-called "MECFS", & you wonder why we must STILL fight for medical/human rights 30+ yrs later, here's your best educational tool : 92-pg book @ Amazon by brilliant investigative journalist @oslersweb. #pwME
Not Going Quietly screening & panel discussion April 21st. Film about activist Ady Barken. Great opportunity to learn about the fight for equitable healthcare in the US. Watch the trailer: https://t.co/JYbm6RyJ4u Tickets: https://t.co/oyslASNd1p @itsbodypolitic #milionsmissing
Can't get a blood test at home, as gp says I'm 'mobile'. What a slap in the face. I can barely move, & pain & fatigue are off the charts plus I have kiddo to look after. This is life with 'invisible' illness. #milionsmissing @MEAssociation @MEActNetUK #mecfs #fibro #LongCovid
Once again, #MilionsMissing will be virtual. Although we can’t meet in person, there are still some fun, artistic ways we can spread awareness and show our support for those with ME!
This #MillionsMissing, we thought it would be fun to show our support by decorating our windows
Once again, #MilionsMissing will be virtual. Although we can’t meet in person, there are still some fun, artistic ways we can spread awareness and show our support for those with ME!
This #MillionsMissing, we thought it would be fun to show our support by decorating our windows
The amazing @TheCanaryUK always push media boundaries.
Today is no exception: our Canary has gone zebra for #InternationalZebraDay. Not only recognising the animals but also people living with "rare" illnesses like #EhlersDanlosSyndrome. #MedicalZebras. THANK YOU #MilionsMissing
Pictures from meactnet
I am one of the #milionsmissing
I went missing from my life in 2009 after fighting glandular fever/ mono 2 years prior
Lots more people will go missing after trying to recover from… https://t.co/4hDAZixviC
Please check out #MEAwarenessHour The cruel neurological #MyalgicEncephalomyelitis stole everything my amazing daughter Nathalie (@welcomewords) wanted to do with her life. She is one of the #MilionsMissing who need your help and advocacy.
Happy day after the #MilionsMissing and #MEAwarenessWeek 🙃 how’s everyone doing?
hope you’re not crashing too hard. if you’re able to I think we should share what these campaigns cost us afterwards.
tag your photo #MEInAction so people can see why we need change *now*
Today, May 12th is International ME Awareness Day. For this disease to receive more visibility, funding and education people need to care and fight together!! Stand up, stand together and BE THE CHANGE, learn more, visit @MEActNet @PlzSolveCFS #MilionsMissing
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