Spotlighting ideas, news, and research related to the debilitating disease ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) #MECFS | by @winstoncb
Animation produced for @mecfsquotes by @winstoncb. Music by Andrew Vickers.
German translation by @eskabadu and Claudia from @MMissingGermany.
Available to download in multiple formats for advocacy: https://t.co/a1uxWFx4C0
The hallmark symptom of ME/CFS is exertion intolerance. No matter how much you want to do normal activities most people take for granted, exertion can make you far more ill — for days, weeks, months, or longer.
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like to go and do. #MECFS#LongCOVID#PEM#PESE
Thank you to Dr. Avik Roy & Dr. Gunnar Gottschalk from Simmaron Research for your presentation on today’s NIH ME/CFS Advocacy Call. We look forward to following your progress.
https://t.co/x3v56LJPKI
Follow 👉 @ggottschalkPhD@RedefiningMECFS#MECFS
1/ Powerful remarks by Dr. Maureen Hanson (@DrMaureenHanson) on the “Next Steps for ME/CFS Research” panel at the April 2019 @NIH meeting “Accelerating Research on ME/CFS”.
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Read the full remarks:
https://t.co/XraSHYAUrU
#MECFS#pwME cc #LongCOVID
Few know more about the state of funding in the U.S. and what needs to change than Dr. Maureen Hanson, Director of the Center for Enervating Neuroimmune Disease @Cornell.
Dr. Hanson’s 2019 @OpenMedF keynote is unfortunately still as relevant as ever: https://t.co/JLOSMaKdgv
We will announce a biomarker for #MECFS and #LongCovid very soon. A very interesting piece of the puzzle to unfold in coming weeks. Knowingly I did not use the word 'Novel Biomarker' as a lot is known about it and that is actually a very good news. Fingers crossed!
Friends, we are once again putting out a big call for ANYONE who has had COVID and FULLY RECOVERED (no persistent symptoms) in the NEW YORK CITY area to assist us with a #LongCovid study. If this sounds like you, please contact us at [email protected]