ME/CFS Quotes

Spotlighting ideas, news, and research related to the debilitating disease ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) #MECFS | by @winstoncb

[ME/CFS Quotes @mecfsquotes]

Animation produced for @mecfsquotes by @winstoncb. Music by Andrew Vickers.

German translation by @eskabadu and Claudia from @MMissingGermany.

Available to download in multiple formats for advocacy: https://t.co/a1uxWFx4C0

[ME/CFS Quotes @mecfsquotes]

The hallmark symptom of ME/CFS is exertion intolerance. No matter how much you want to do normal activities most people take for granted, exertion can make you far more ill — for days, weeks, months, or longer.

[ME/CFS Quotes @mecfsquotes]

Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like to go and do. #MECFS #LongCOVID #PEM #PESE

[Winston Blick @winstoncb]

Post-exertion meme output in ME/CFS: A single-subject case study #MECFS

[ME/CFS Quotes @mecfsquotes]

For UK-based people with ME/CFS, a final opportunity to take part in this major study: https://t.co/eUaW9s0HA3

[Dan 🦠➡️🧠🔥 @Dan_Wyke]

2023: "We didn't know anything about it."

2021:

[NIH @NIH]

News: NIH study identifies features of Long COVID neurological symptoms https://t.co/TfSoNkyPU8

[ME/CFS Quotes @mecfsquotes]

Dr. Avik Roy is also on Twitter:

👉 @AvikRoy74969264

[ME/CFS Quotes @mecfsquotes]

Thank you to Dr. Avik Roy & Dr. Gunnar Gottschalk from Simmaron Research for your presentation on today’s NIH ME/CFS Advocacy Call. We look forward to following your progress.

https://t.co/x3v56LJPKI

Follow 👉 @ggottschalkPhD @RedefiningMECFS

#MECFS

[ME/CFS Quotes @mecfsquotes]

• For official videos and transcripts of NIH ME/CFS events: https://t.co/RzHJhd0WI8

• Join the NIH ME/CFS email list: https://t.co/8be3xzT71d

[ME/CFS Quotes @mecfsquotes]

More gems from Dr. Hanson in this thread: https://t.co/daH8ZFJdmQ

Follow on Twitter 🐦 @DrMaureenHanson @CornellMECFS [email protected]

Follow on YouTube 🎥 https://t.co/oDOa5kykJD

[Winston Blick @winstoncb]

1/ Powerful remarks by Dr. Maureen Hanson (@DrMaureenHanson) on the “Next Steps for ME/CFS Research” panel at the April 2019 @NIH meeting “Accelerating Research on ME/CFS”.

🧵

Read the full remarks:
https://t.co/XraSHYAUrU

#MECFS #pwME cc #LongCOVID

[ME/CFS Quotes @mecfsquotes]

DJs really be putting anything before the drop…

#MECFS

🧵

[ME/CFS Quotes @mecfsquotes]

Few know more about the state of funding in the U.S. and what needs to change than Dr. Maureen Hanson, Director of the Center for Enervating Neuroimmune Disease @Cornell.

Dr. Hanson’s 2019 @OpenMedF keynote is unfortunately still as relevant as ever: https://t.co/JLOSMaKdgv

[Bhupesh K Prusty @BhupeshPrusty]

We will announce a biomarker for #MECFS and #LongCovid very soon. A very interesting piece of the puzzle to unfold in coming weeks. Knowingly I did not use the word 'Novel Biomarker' as a lot is known about it and that is actually a very good news. Fingers crossed!

[Putrino Lab @PutrinoLab]

Friends, we are once again putting out a big call for ANYONE who has had COVID and FULLY RECOVERED (no persistent symptoms) in the NEW YORK CITY area to assist us with a #LongCovid study. If this sounds like you, please contact us at [email protected]